- Joined
- Aug 4, 2008
- Messages
- 15,752
When it rains it really pours.
We called my wifey4vr's mom on facebook live for mothers day and her dad was having another stroke or a tia, he failed the stroke protocol and was showing heart issues on the heart monitor. He is on the way to the hospital by ambulance.
When it rains it really pours.
We called my wifey4vr's mom on facebook live for mothers day and her dad was having another stroke or a tia, he failed the stroke protocol and was showing heart issues on the heart monitor. He is on the way to the hospital by ambulance.
His diagnosis is "Posterior reversible encephalopathy syndrome"When it rains it really pours.
We called my wifey4vr's mom on facebook live for mothers day and her dad was having another stroke or a tia, he failed the stroke protocol and was showing heart issues on the heart monitor. He is on the way to the hospital by ambulance.
I am a medical mess lol
I have had doctors throw up their hands as they walk out the door because they do not know what to do with me.
I had a really great doctor but the medical group dropped my insurance with no notice so had to switch doctors.
My current doctor is the throws hands up type so after this mess am going to have to find another.
So,,,
Low lung volume - probably an effect of being born by emergency c-section with the cord around my neck. Or just genetic no one knows.
asthma
Sleep apnea
copd
messed up jaw that makes copd act worse, the way the nerves run make it pretty much unoparabe. Dentist made it worse by not knowing what he was doing and tried to fix my bite using a plate system. Using all the insurance money so when I got to see a doctor who might have been able to help there was no insurance money so could not get it fixed during the growth phase when it might have been possible without surgery,
On oxygen 24/7 amount varies depending on how im doing.
Arthritis in joints badly.
Have had 4 dvt's and a pulmonary embolism as well as dozens of superficial blood clots. On blood thinners for life.
Had pleurisy that was deemed to dangerous to remove by surgery so have a lot of scar tissue around one lung and reduced capacity even more.
Have had a heart attack sometime.
High blood pressure
Have enlarged right ventricle from copd.
I am a lot overweight.
Have a lot of allergies.
Went for many years with no insurance so could not get any of this treated for a long time.
Birth defect in the bones of my back, deforming my back.
Badly damaged both knees as a kid and elbow as an adult.
I'm a mess and a half.
I have had a couple doctors look at my medical history and ask me how are still alive. Then I tell them how I cracked my skull open twise before the age of 5 and show them the scars.
I feel you on all of this. I thank God particularly for two positive characteristics I have; I heal better and faster than anyone I know - and - I have massive lungs. Huge. About double normal size. My oxygen sats sit around 97-100 all the time, so I figure if I can get O2, I'm well placed for a lot of things. On the other hand....
My father's side of the family has a genetic deformation in the right ascending coronary artery. It's like a kink in its structure. In our family, on that side, you turn 50...you get a stent. Fat, thin, smoker, non-smoker - for your 50th birthday - a stent. That's just the way it is. On my mother's side, chronic hypertension. I was diagnosed with this when I was 33. I'd been feeling weird and made a dr's appt. As I reversed out of the driveway, I collected one of the decorative stone pilons on one side of the driveway. Didn't care. Kept going and to this day I remember the deep gouging sound of the pilon taking out the entire right hand side of the car. Still didn't care, I was so out of it. Got to the dr who took my BP - it was 260/160. So I hear you on the hypertension thing. Mine has been well controlled for years now, but I have to be careful and, obviously, even now I have ongoing heart issues as well as auto-immune.
When I was 14, I pulled a drowning girl out of a public swimming pool and herniated 10 discs - 8 in my spine and 2 in my neck. It caused so many structural issues that I've had to live with ever since. But worst of all, 15 years ago, during an on-the-table examination by a neurosurgeon, while he was trying to check my range of mobility, he overdid it and 2 of my herniated discs burst and pierced the meninges and I bled out cerebro spinal fluid and almost died. I had a year on my belly, a 3 year total recovery, and I gained 130 lbs - and I was always 20lbs chunkier than ideal to start with. During that period I ran the gamut of pain and disability, but have slowly clawed my way back, down 98lbs, 32 to go. It's taken the full 15 years and multiple set backs. And even now - heart issues, and a brand new stent, as of a week ago. So I know as well as anyone that weight loss is not necessarily the entire answer. But it's part of it, and I'd encourage you not to give up on that. I say this with -zero- judgment, and NOBODY knows better than someone who's overweight that it's necessary to lose weight - like - d'uh, y'know? I cannot tell you how many times people who had no idea of my pain levels, my immobility, my level of effort, and on and on and on would say to me, "You need to lose weight." YA THINK?? I used to go home and talk to DH and say to him, "I wanted to respond - 'Come closer so I can spit in your eye.' " People can be so stupid and ignorant as to the way chronic illness can sap the will to live - forget diet and exercise! But there IS hope down the end of that particular tunnel, Karl, and you deserve to be able to claim it. So regardless of where you are right now, I'm going to hang onto hope for you for better days and improvement and forward momentum, even if, like me, it takes decades.
You are my brother in the struggle - and I get that. Bodies, man - they're tough for some of us. Praying for you in the ongoing fight - for energy and intelligence and patience and joy and love. And for health. Loads and loads of health. ox
I feel you on all of this. I thank God particularly for two positive characteristics I have; I heal better and faster than anyone I know - and - I have massive lungs. Huge. About double normal size. My oxygen sats sit around 97-100 all the time, so I figure if I can get O2, I'm well placed for a lot of things. On the other hand....
My father's side of the family has a genetic deformation in the right ascending coronary artery. It's like a kink in its structure. In our family, on that side, you turn 50...you get a stent. Fat, thin, smoker, non-smoker - for your 50th birthday - a stent. That's just the way it is. On my mother's side, chronic hypertension. I was diagnosed with this when I was 33. I'd been feeling weird and made a dr's appt. As I reversed out of the driveway, I collected one of the decorative stone pilons on one side of the driveway. Didn't care. Kept going and to this day I remember the deep gouging sound of the pilon taking out the entire right hand side of the car. Still didn't care, I was so out of it. Got to the dr who took my BP - it was 260/160. So I hear you on the hypertension thing. Mine has been well controlled for years now, but I have to be careful and, obviously, even now I have ongoing heart issues as well as auto-immune.
When I was 14, I pulled a drowning girl out of a public swimming pool and herniated 10 discs - 8 in my spine and 2 in my neck. It caused so many structural issues that I've had to live with ever since. But worst of all, 15 years ago, during an on-the-table examination by a neurosurgeon, while he was trying to check my range of mobility, he overdid it and 2 of my herniated discs burst and pierced the meninges and I bled out cerebro spinal fluid and almost died. I had a year on my belly, a 3 year total recovery, and I gained 130 lbs - and I was always 20lbs chunkier than ideal to start with. During that period I ran the gamut of pain and disability, but have slowly clawed my way back, down 98lbs, 32 to go. It's taken the full 15 years and multiple set backs. And even now - heart issues, and a brand new stent, as of a week ago. So I know as well as anyone that weight loss is not necessarily the entire answer. But it's part of it, and I'd encourage you not to give up on that. I say this with -zero- judgment, and NOBODY knows better than someone who's overweight that it's necessary to lose weight - like - d'uh, y'know? I cannot tell you how many times people who had no idea of my pain levels, my immobility, my level of effort, and on and on and on would say to me, "You need to lose weight." YA THINK?? I used to go home and talk to DH and say to him, "I wanted to respond - 'Come closer so I can spit in your eye.' " People can be so stupid and ignorant as to the way chronic illness can sap the will to live - forget diet and exercise! But there IS hope down the end of that particular tunnel, Karl, and you deserve to be able to claim it. So regardless of where you are right now, I'm going to hang onto hope for you for better days and improvement and forward momentum, even if, like me, it takes decades.
You are my brother in the struggle - and I get that. Bodies, man - they're tough for some of us. Praying for you in the ongoing fight - for energy and intelligence and patience and joy and love. And for health. Loads and loads of health. ox
but need to lose another 100 that I have not been able to touch.
I tried something simular and my blood sugar went unstable.Have you seen the fasting thread? Essentially you could choose to eat your meals within a 6 or 8 hour window and then you don't eat anything after that. I lost 90+ lbs 3 yrs ago eating my (healthy) meals between 10 a.m. and 4 p.m. If you Google Jason Fung you'll find his books, vids, etc. where he explains the health benefits and how to's of fasting.
I tried something simular and my blood sugar went unstable.
Thanks I will look into it when im not so stressed out.It shouldn't if you do it properly and under your doctor's care. Fung's speciality is diabetic patients some of whom are morbidly obese (400+ lbs) and knows what he's doing. Not trying to push anything on you but it wouldn't cost you anything but a bit of time to research his successes. You've nothing to lose but those stubborn 100 lbs.
I have lost and mostly kept off 60+lbs for a couple years(my weight varies up and down 15lbs or so) but need to lose another 100 that I have not been able to touch.