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PLEASE COME TO MY MONSTER SLAYING PARTY!!

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LostSapphire

Ideal_Rock
Joined
Nov 4, 2007
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3,336
Hi everybody.

I'd love for you to come to a party to celebrate the slaying of the Monster in my brain!!

(old thread below - beware, there's a lot of wallowing, whining, and pity-partying going on) - I'm going to have it un-stickey-d soon to make room for people who really need support. As I think this girl's outta the woods! woo hooo


https://www.pricescope.com/community/threads/lostsapphire-sending-out-love-dust-prayers-and-support-to-you.101315/

I am ready to say that the monster (and his evil twin) is now WELL AND TRULY DEAD!!!

Can we have the emotie-fest now????

Let's start with cake:
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YAY YAY YAY YAY YAY
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Catherine (LostSapphire)
 

HappyAnniversary

Shiny_Rock
Joined
Mar 31, 2007
Messages
419
http://www.pricescope.com/idealbb/files/sending_flowers.gif

YEA!!!!!! I've only lurked before but wanted to say YEAAA I am so glad you've slayed this monster!! This is my first attempt at emoties, I'll feel silly if it just shows the addy and not the smiley face sending flower, but you get the picture anyway I hope.

edited to add "i suck at emoties", I am reduced to using the happy clappy hands
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snlee

Ideal_Rock
Joined
Oct 6, 2004
Messages
5,891
Date: 2/15/2009 12:32:18 PM
Author: Lorelei
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LostSapphire, that''s such wonderful news! I am so happy to hear!
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And since I am not great with the emoties, I ditto Lorelei.
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Skippy123

Super_Ideal_Rock
Joined
Nov 24, 2006
Messages
24,299
Wowooo that is the WONDERFUL news
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I am so happy for you!!!!

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strmrdr

Super_Ideal_Rock
Joined
Nov 1, 2003
Messages
23,295
kicken news!!!!!!!!!!!
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LostSapphire

Ideal_Rock
Joined
Nov 4, 2007
Messages
3,336

ETA to the above, to save you from reading through 25+ pages trying to figure out what went on here:


I have had severe facial/jaw pain for almost 4 years, resulting in numerous surgeries on my jaw, gums, teeth, etc etc.


Was finally diagnosed with Atypical Trigeminal Neuralgia in November 2008. Medications were not helping.


January 20, 2009 I had a "MicroVascular Decompression" (MVD for short). This neurosurgery went into my brain stem and disentangled my trigeminal nerve from a large artery that was pressing on it.

That''s the short version. It is now 25 days post-op, and my symptoms are finally going AWAY. YAY.

AND NOW, LET''S GET BACK TO THE PARTY!
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LS

 

Kaleigh

Super_Ideal_Rock
Joined
Nov 18, 2004
Messages
29,570
YAY FOR YOU!!!!! I am so happy for you!!!!
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paeony

Shiny_Rock
Premium
Joined
Oct 25, 2008
Messages
233
Wow, you must be feeling so much relief, both physically and emotionally... Amazing
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SOOO happy for you!!!!
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Catmom

Super_Ideal_Rock
Premium
Joined
Apr 6, 2005
Messages
11,120
Date: 2/15/2009 12:47:11 PM
Author: Skippy123
Wowooo that is the WONDERFUL news
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I am so happy for you!!!!

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Since I suck at emoties too, I ditto Skippy!!!!!!!!
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purrfectpear

Ideal_Rock
Joined
Mar 31, 2008
Messages
4,079
Scary stuff. I''m overjoyed that you are now symptom free. Hip, hip, hooray
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AmberGretchen

Ideal_Rock
Joined
Jan 6, 2005
Messages
7,770
Well, I''m not good with the fancy emoties and pretty colored text, but WOOOOOOHOOOOOOOOOOO
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mia1181

Brilliant_Rock
Joined
Oct 25, 2006
Messages
1,789
WOOO-HOOOOOO! This is the most amazing news I have heard in a while!!!!!!!

LETS PART-AY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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isaku5

Ideal_Rock
Joined
Aug 15, 2005
Messages
3,296
I suck at emoties too, but wanted to join this party! Fantastic news LS!! I''ll bring the champagne and Pepsi for Storm
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FANTASTIC NEWS!!!
 

AprilBaby

Super_Ideal_Rock
Premium
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VRBeauty

Super_Ideal_Rock
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tradergirl

Brilliant_Rock
Joined
Jan 26, 2008
Messages
837
How rough was the surgery for you and the recovery time? I have a friend with the same condition which is almost disabling.

I am very happy that you have finally overcome it.
 

Po10472

Brilliant_Rock
Joined
Mar 2, 2007
Messages
1,443
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ladypirate

Ideal_Rock
Joined
Jul 30, 2007
Messages
4,553
Yay LS!!!!!!! I''m so thrilled for you!!!
 

ksinger

Ideal_Rock
Premium
Joined
Jan 30, 2008
Messages
5,078
Wow. I''ve read enough about trigeminal neuralgia to know what incredible news that really is!

I''m lousy at inserting emoties, so just imagine them there. ;-) I''m so glad to hear that you are better!!!! What an incredible relief that must be, and feeling like you''ve got your lift back!!

YAY!!
 

LostSapphire

Ideal_Rock
Joined
Nov 4, 2007
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Date: 2/15/2009 3:58:35 PM
Author: tradergirl
How rough was the surgery for you and the recovery time? I have a friend with the same condition which is almost disabling.

I am very happy that you have finally overcome it.
Tradergirl:

It''s been 3-1/2 weeks. Not a great, fun time, but not the worst I''ve ever experienced either. The hardest part was thinking it didn''t work for the first 3 weeks.....

The neurosurgeon told me his greatest frustration is meeting patients with Trigeminal Neuralgia who have endured YEARS of agony and unnecessary dental surgeries. And, the longer the patient waits to deal with the TN surgically (ie: through an MVD), the lesser chance of success. He said that the ''window of opportunity'' for success would be in a patient with less than 7 years with TN, and better if it were 3-4 years instead.

I also believe that the sheer FEAR of neurosurgery is what keeps so many people in the agony. Having had one neurosurgery 15 years ago that was quite similar to this one, I didn''t think twice about whether I should go ahead with it. Compared to the condition, brain surgery is a PIECE OF CAKE
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(well, not really but pretty close because it''s over quickly, as opposed to years of disabling pain).

There is an amazing resource out there, a book called "Striking Back". I''ll include the link for the website below. If you ever wanted to give your friend a gift, this would be it. It was the BEST resource available to me.
http://www.tna-support.org/storefront/proddetail.asp?prod=sb2004

I hope your friend can find some relief. All I know is that I finally HAVE MY LIFE BACK. And even up to a week ago, I had given up hope of ever being ''normal'' again.

Feel free to post any other questions if they come up. I hope your friend finds some relief.

Here are a couple of support groups as well, lots of resources there if she''d like to join us. A LOT of first-hand accounts of the surgery on there as well:

http://www.livingwithtn.com/

http://neurotalk.psychcentral.com/forumdisplay.php?s=016a59af119b4321f9a740cec5cee2af&f=26

http://brain.hastypastry.net/forums/forumdisplay.php?f=271

Hope this is of some help.
LS
 

Brown.Eyed.Girl

Ideal_Rock
Joined
Jun 4, 2008
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6,893
YAY LS!!!!!!!!!!!!!!!!

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