LostSapphire: sending out love, dust, prayers and support to you!!!
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LostSapphire
Ideal_Rock
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Hello eveybody
It's Saturday in Canuck-Land. What's to be grateful for today? (I'm working hard at this list today as the monster has woken up so bear with me):
I made a star for our huge blue spruce out on the front lawn...lotsa lights on it but I thought it needed a star...sweet DH has put it up and it looks awesome.
The reindeer are all set up outside (small herd)
NO more outside lights work: we're all done. and there's one extension cord left over...hmmmm
The fire is burning brightly in the living room. Furkids sleeping on the rug in front. Sweet DH reading his paper and working on the Sudoku.
Boxes are brought up from the XMAS room in the basement for indoor decorating. I can work away at that this week as I want...nice to have a place where the xmas gunk doesn't interfere with the kitchen or my office. That's a good thing!
Cider is warming up on the stove with cinnamon and cloves. Almost good enough to drink.
Today I can work around the house all day in my jammies. woohoo Nothing scheduled until this evening. Might even have a nap.
And, best thing: I made it through another week. A squeaker but still we'll take it.
Thank you all again for your beautiful notes. I read them all (often more than once) in the night when the monster is at full bore....
LS
It's Saturday in Canuck-Land. What's to be grateful for today? (I'm working hard at this list today as the monster has woken up so bear with me):
I made a star for our huge blue spruce out on the front lawn...lotsa lights on it but I thought it needed a star...sweet DH has put it up and it looks awesome.
The reindeer are all set up outside (small herd)
NO more outside lights work: we're all done. and there's one extension cord left over...hmmmm
The fire is burning brightly in the living room. Furkids sleeping on the rug in front. Sweet DH reading his paper and working on the Sudoku.
Boxes are brought up from the XMAS room in the basement for indoor decorating. I can work away at that this week as I want...nice to have a place where the xmas gunk doesn't interfere with the kitchen or my office. That's a good thing!
Cider is warming up on the stove with cinnamon and cloves. Almost good enough to drink.
Today I can work around the house all day in my jammies. woohoo Nothing scheduled until this evening. Might even have a nap.
And, best thing: I made it through another week. A squeaker but still we'll take it.
Thank you all again for your beautiful notes. I read them all (often more than once) in the night when the monster is at full bore....
LS
swimmer
Ideal_Rock
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- Nov 9, 2007
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Thinking of you LS, hoping that your monster goes to sleep for a long time. I know that the diagnosis is incomplete, but how can they not treat your pain better? I get Botox in my sternocleidomastoid to relieve the pain of benign growths, but cannot imagine what you are going through. I just hope they can give you something to relieve this.
LostSapphire
Ideal_Rock
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Dear Diary:
I hope you can bear with me. My neurosurg wanted me to document the pain when it was at its worst. I had a hard time describing it to him when I was there last week because it was reasonably well controlled. So here goes.
The Monster is well and truly awake and really ticked off .
It's like my upper left jaw is in a vise (for those of you not aware of medeival-type tools, there's a pic below). It's tightened around my palette on the one side, and the outside of my face on the other.
It is so tight it feels like if I could take a pliers and remove all of my upper left teeth that would help relieve some pressure.
The inside of my mouth (upper left portion only) is burning and feels really swollen.
The boundaries of the pain are from the front-centre of my jaw (ie: below my nose) along mid-cheek to my hairline. Down along the jaw (in other words, about a 3" strip").
If I press on the jawline really hard, it feels better. Even better is to press really hard with an icepack. No cloth in between, the feeling of 'almost frostbite' is a relief.
We were out at a Christmas function tonight. Had to run to the car from the venue. My face started screaming with that little bit of activity. We drove home with my fist jammed into my face.
Monday I hope to get some meds to get me through the next month. For those of you wondering, the neurosurg wanted me to stay on the Tegratol at this level until I saw the next guy. They are treating it rather conservatively at this point, because the diagnosis was just made 4 weeks or so ago.
The flareups of this kind of pain have been happening for 3-1/2 years or so, about every 6 months. They last about 3-4 months.
Nighty Night.
LS
ETA that sounds really depressing but I feel better having written it down.
I hope you can bear with me. My neurosurg wanted me to document the pain when it was at its worst. I had a hard time describing it to him when I was there last week because it was reasonably well controlled. So here goes.
The Monster is well and truly awake and really ticked off .
It's like my upper left jaw is in a vise (for those of you not aware of medeival-type tools, there's a pic below). It's tightened around my palette on the one side, and the outside of my face on the other.
It is so tight it feels like if I could take a pliers and remove all of my upper left teeth that would help relieve some pressure.
The inside of my mouth (upper left portion only) is burning and feels really swollen.
The boundaries of the pain are from the front-centre of my jaw (ie: below my nose) along mid-cheek to my hairline. Down along the jaw (in other words, about a 3" strip").
If I press on the jawline really hard, it feels better. Even better is to press really hard with an icepack. No cloth in between, the feeling of 'almost frostbite' is a relief.
We were out at a Christmas function tonight. Had to run to the car from the venue. My face started screaming with that little bit of activity. We drove home with my fist jammed into my face.
Monday I hope to get some meds to get me through the next month. For those of you wondering, the neurosurg wanted me to stay on the Tegratol at this level until I saw the next guy. They are treating it rather conservatively at this point, because the diagnosis was just made 4 weeks or so ago.
The flareups of this kind of pain have been happening for 3-1/2 years or so, about every 6 months. They last about 3-4 months.
Nighty Night.
LS
ETA that sounds really depressing but I feel better having written it down.
risingsun
Ideal_Rock
- Joined
- Dec 19, 2006
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LS~I am so concerned about you. You must get some relief from the pain. I hope that your doctors are able to help you find something that will work for you. I take Topamax to reduce pain and spasms. I also call it "stupidmax," because it affects my memory and word retrieval skills. I'll be as dumb as dirt, before you know it
<----small attempt at some levity...Please keep checking in. We are all here for you.
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- Apr 2, 2006
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- 11,220
LS: Words just are not enough. I''m in awe at your grace and eloquence while yoy''re dealing with such pain.
I would secon Pandora''s suggestion... if your neuro''s can''t come up with a better solution with this next visit, it''s time to call in a pain specialist.
I''m hoping for a good day for you today.
I would secon Pandora''s suggestion... if your neuro''s can''t come up with a better solution with this next visit, it''s time to call in a pain specialist.
I''m hoping for a good day for you today.
LostSapphire
Ideal_Rock
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- Nov 4, 2007
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The monster stayed quiet today for the most part.
I finished my Christmas tree tonight.
Enjoyed the sermon at church.
Went out for lunch with my friends. We laughed a lot.
Dug out my Mom''s old meatloaf recipe and we had that for dinner. YUM!
LS
iluvcarats
Ideal_Rock
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- Apr 17, 2008
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So glad you had a nice day. I am sending prayers and dust to you via the NYS thruway into Canada
(They are invisible - you don't even have to declare them through customs!
)
ladypirate
Ideal_Rock
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LS, I''m glad you had a good day today. I''m keeping you in my prayers.
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Same here!
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I''m just now reading through this. I am sorry for your pain and so hopeful for you that they can quickly find the cause and cure. I so admire you for trying to find bright spots - I think it is that type of mental attitude that helps the most.
Best wishes for speedy relief - I truly mean that!
Best wishes for speedy relief - I truly mean that!
- Joined
- Feb 27, 2007
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I am so glad you had a pretty good day. It broke my heart to read how much pain you have when the monster is getting your attention. I hope they get you some new and better meds soon - like YESTERDAY wouldn''t be soon enough. HUGS to you girl. Your star on the tree sounds lovely.
Kaleigh
Super_Ideal_Rock
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Oh my heart goes out to you LS. Glad you had a good day today, had fun with friends. Love the star on your tree. Praying you get relief soon. Sending lots of prayers your way. You are a strong one, I wish I could take some of the pain away.
LostSapphire
Ideal_Rock
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Thank you Gecko, for the giggle.
I just got a call from my doctor''s office. They have bumped my appointment to Thursday.
I said that would be fine, as long as they would prescribe some morphine in the meantime...nyuk nyuk.
LS
I just got a call from my doctor''s office. They have bumped my appointment to Thursday.
LS
gwendolyn
Ideal_Rock
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Aww, sweetie, I am sorry to hear that. But glad that it sounds like you had a good weekend! Hopefully that will help you keep the monster at bay until Thursday. Sending big hugs to you, m''dear!!Date: 12/8/2008 1:43:00 PM
Author: LostSapphire
Thank you Gecko, for the giggle.
I just got a call from my doctor''s office. They have bumped my appointment to Thursday.I said that would be fine, as long as they would prescribe some morphine in the meantime...nyuk nyuk.
LS
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