Need prayers

[Maisie]

I have had a message to call the Genetics counsellor. I am really worried now as I knew if she got in touch within two weeks of me being tested for Fragile X Syndrome that it would probably be bad news.

My stomach is churning. I feel so sick. I am so scared to call her tomorrow.

 

[Mandarine]

Oh Maisie....

My heart breaks for you because I can''t even imagine how you feel. I can''t do more than just send prayers and good thoughts your way. May God keep your beautiful son safe (he truly is such a cutie!!!). I pray that this is nothing more than a scare, and you will come back tomorrow with good news for all of us. I pray that if this is not the case, that you and your husband are strong through all of it.

All my prayers right now are for you and hubbie to stay calm tonight, and for that phone call tomorrow to be positive and only good news.

Big hugs,

M~

 

[Skippy123]

Maisie,
I am thinking of you and you are in my prayers. Hugs.

 

[iwannaprettyone]

You are in my thoughts and my prayers too.

Hang in there!

 

[Joolskie]

My thoughts and prayers are with you Maisie...

 

[Dee*Jay]

Maisie, biggest hugs outgoing. Let us know as soon as you can about the results.

 

[ChargerGrrl]

Oh Maisie! I''m sending you lots of good vibes from waaaay across the pond.

Stay strong, and check in when you can.

 

[Stephanie]

Maisie, please don't worry yourself sick. Everything will be alright. We are here for you when you come back with the news.

 

[snlee]

Maisie, sending you lots of good vibes. You are in my thoughts.

 

[divergrrl]

Maise: {{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}} It will be ok....no matter what. James is doing great & has hit some great milestones lately, no matter what happens, you will make it through this & James is an amazing boy.

We are all here for you....please try to stay calm until you hear from her, ok?

 

[strmrdr]

prayers outgoing

 

[isaku5]

Prayers and {{{{big hugs}}}}} going out to you, Maisie. This is certainly a tough wait for you and your family- thank goodness it''s only one night.

Your earlier post and pictures certainly indicated that James is making great strides. No matter what the results are, you know his potential is there.

It may just take a little longer for him.

 

[KimberlyH]

Maisie,

You will all be okay, no matter the outcome, because you are such a strong family. My thoughts and prayers are with you and yours.

~K

 

[sevens one]

Prayers and ****Hugs****
coming your way.

 

[Girlrocks]

My thoughts and prayers are with you. There is nothing worse in life that worrying about your kids. All of the moms here are thinking of you tonight.

 

[ellaila]

You and your beautiful family are in my thoughts and prayers, Maisie ...

 

[Kaleigh]

(((( huge hugs Maisie))))) Sending prayers your way. We are all thinking of you and are hoping for the best. But James will be fine either way, think of all that he has accomplished recently. What a sweetie pie. Hang in there, sweetie.

 

[Ellen]

*saying prayers*

 

[Miranda]

Sending prayers Maisie! You and your family are in my thoughts.

 

[mrssalvo]

prayers and hugs from me too...

 

[Miscka]

My thoughts and prayers are with you Maisie

 

[diamondseeker2006]

Praying for good news, Maisie!

 

[oshinbreez]

Keeping all of you in my prayers. No matter what happens, it''s all part of God''s plan. There ARE reasons for everything. Keep strong.

 

[Tacori E-ring]

I hope it is good news! Your family is in my thoughts!

 

[DiaDiva]

Maisie, you are in my thoughts and prayers. Hang in there....

 

[Maisie]

The result was positive. I''m devastated.

 

[NYCsparkle]

Maise, I''m so sorry. *big hugs* your family will be in my prayers.


I know you probably already know this, but their are a ton of web support groups for families with your sons condition.
www.DailyStrength.org

There is also a book called:
Dear Megan: Letters on Life, Love and Fragile X by mary busby, and it is a highly inspirational book. i''m sure you have read plenty of clinical stuff, this book is written by 2 mothers.

*hugs*

 

[AGBF]

Maisie,

I have been following the threads about other aspects of your life in Hangout and wasn''t aware that this was happening contemporaneously. I have seen other threads here (in Family, Home & Health) about your son''s being tested for autism, but I do not recall reading about "Fragile X". Can you (or someone else) send me to the correct thread so that I can read more about it?

I am very sorry that he has it. I have an acquaintance with two special needs children. One (the boy) is autistic. I know that they both have an identifiable genetic factor. When she had a third child she was grateful he did not have it. She is now 46 and pregnant with twin girls who are also free of the genetic flaw. I will ask her if this is called, "Fragile X"...but not right now. She is on bed rest, trying not to give birth before mid July since the twins are not due until August....

Life can be very hard. My heart is with you and your family.

Deb

 

[Samantha Red]

Maisie

I am so sorry to hear this news. However, you sound like an incredibly strong and loving family and I am sure you will help each other through.

My thoughts are with you

 

[Maisie]

I first started talking about the testing in this thread:

https://www.pricescope.com/community/threads/what-do-you-wish-for-on-valentines-day.56451/

I had thought James was being tested for Fragile X back then but it turns out he wasn''t. I have had the tests instead as I didn''t want to traumatise him further. I have it so they now have to test him for it. I feel so guilty that I gave him this - I know I couldn''t have known but its still devastated me. I feel sick and my head is really killing me from crying so much. I know we will get through this but it just looks so hard from where we are standing.