aljdewey
Ideal_Rock
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17-year-old girl who initially refused treatment for a highly curable cancer is now in remission and is seeking release from state custody to finish her last two months of chemotherapy at home, the teen and her lawyer said Monday.
The patient, called only Cassandra C. in court papers, has changed her mind about undergoing chemotherapy for Hodgkin lymphoma, once seeing the drugs as "poison." She now fully intends to complete her prescribed, six-month regimen, she told NBC News.
"I'm committed to finishing the rest of my chemo, which is 2 more cycles, March and April. I would love more than anything to be able to come home to finish it all. I miss my life so dearly, especially my mom, my cat and my boyfriend," Cassandra typed from her hospital room in an interview conducted via Facebook messages.
State child-welfare officials removed the teens's cell phone in December, Cassandra said. State workers returned the phone about six weeks later, based on her request. However, the device was not working well enough Monday to allow a phone interview, she said.
"I will never be okay with how this all happened — being taken away from home, hospitalized and especially being strapped to the bed for the surgery for the port placement. Although I haven't had any major side effects besides hair loss, I still wish I was given the right to explore and go with alternatives," Cassandra wrote.
"Anybody should have that right. Minor or not. But, hearing the wonderful news about being in remission — not having any visible signs of active Cancer is what helped me accept the chemotherapy, knowing it's working and I don't need any radiation. [That] encouraged me to keep going and just get it done and over with."
Cassandra was ordered into temporary state custody in January by the Connecticut Supreme Court. State justices ruled she was legally too immature to make her own medical conditions. They ordered her to continue chemo at a Hartford hospital where those treatments began in November. She was diagnosed in September.
Now, the teen wants to commute from her mother's residence to finish out her chemo sessions instead of being held against her will at the facility, said her lawyer, assistant public defender Joshua Michtom.
"She should be allowed to go home," said Michtom, who is scheduled to argue for Cassandra's freedom next Monday at a hearing in juvenile court.
"If, somehow, she shouldn't complete treatment, there's not a great risk that she would die. So, we're going to argue that at this point there is no imminent risk of harm," Michtom told NBC News.
"This is a kid who had a job [at a mall retail store], who was contributing to household finances, had a credit card that she was paying the bills on regularly. Now, she's lost the job. She's behind on her bills," he added. "It's not that she doesn't have the money to pay them ... She's in the hospital, and she just can't do it. So her whole life has been on hold."
The hearing next Monday presumably would pit Michtom's argument that Cassandra be released now against the stance of the Connecticut Department of Children and Families (DCF), which has retained custody of the teen since January.
"It just seems like there's no reason to postpone that another two months," Michtom said.
DCF Commissioner Joette Katz declined to respond specifically to Michtom's assertions that Cassandra is no longer a harm to herself and should be allowed to return home now.
"We are very pleased with Cassandra's progress toward a complete recovery," Katz said in a statement.
"We understand how difficult this has been for Cassandra and her family, but we have had full confidence throughout that the medical professionals involved in her treatment would be successful in saving her life," Katz zaid.
Michtom said that Cassandra's doctor told him that Cassandra is now in remission.
At Connecticut Children's Medical Center in Hartford — where Cassandra has been undergoing her chemo treatments — a spokeswoman declined comment, citing patient confidentiality laws.
Doctors have said her odds of recovery are 80 to 85 percent with chemo, but that she would die without it.
Her mother, Jackie Fortin, has said she supports her daughter's decision.
"There's been a lot of misinterpretation and exaggeration about my mom," Cassandra wrote. "Through both the media and [DCF]. My mom in no way had an influence on my decisions.
"Last summer when doctors were trying to determine what was wrong with me and Cancer was in question I had told my mom that I would not do chemotherapy if it turned out to be Cancer (not knowing I wouldn't of had a choice). When I was diagnosed with cancer It broke my moms heart, she knew there was no changing my mind," she added in another Facebook message.
"Not that she didn't try-she tried to encourage me to do it, she told me a mother should never have to lose her child, and that we'll get through it. But that wasn't going to convince me. My mind was set on seeking alternatives for treatment. My mom loves me, she wasn't going to fight me. She decided to stand by my side, and support whatever it was that I wanted."
The remaining rounds of chemo can be completed in three-day stretches for which she could be driven from her mother's home back to the hospital, Michtom said.
She also takes pills and could "certainly do that at home, the public defender added. "As it is now, she is mostly at the hospital doing nothing."
First published March 9th 2015, 2:57 pm
Jambalaya|1425950330|3844631 said:packrat|1425950112|3844630 said:B/c she's young, our first instinct is to say NO YOU CAN'T QUIT. EVER. NO MATTER WHAT. But what gives us the right to decide that she hasn't tried hard enough, or done enough or been thru enough or put herself thru enough? (a couple months from the time she legally becomes an adult no less) Do we think she doesn't value herself or her life enough? People would give their left arms to have their loved ones brought back from their deaths of cancer and here's this smarmy young thing thinking she can make decisions for her life when she doesn't "get it" and *she* has the possibility of a longer life when other loved ones didn't and we think she's throwing her life away. Is there a length of time, like you have to go thru 11 rounds of the hardest chemo ever, and then we go ohhh yeah that really sucked for you, ok go ahead and throw in the towel? And when we're not the ones going thru it and we're not the ones helping a loved one go thru it looking it in the face 24/7, it's a bit easier to sit here and our computers and be her champions to not give up.
Well, I agree, Packrat. How many people who are OK with this girl having unwanted treatment forced on her would be OK with the same thing happening to them - a treatment that is definitely not wanted by you, remember.
I also do not understand why adults get a chemo break and this girl didn't.
But anyway, it doesn't matter what anyone thinks. The state did what it wanted, and it's done now. And hey, maybe there will be a positive outcome. Maybe sheĺl live to be 90, and won't get another cancer, and will travel the world, and feel right within herself about the forced treatment. There was something in TIME magazine the other week about positive people having lower cancer rates. I hope she feels positive about the whole thing when she feels better.
Jambalaya|1425998932|3844883 said:Ah, OK, just read the link. She's not 100% happy. She is trading her acquiescence to two more cycles for the chance to go home, as she has been held against her will in a hospital for the last few months and had her phone taken away from her as well, for six weeks.
"I will never be okay with how this all happened — being taken away from home, hospitalized and especially being strapped to the bed for the surgery for the port placement. Although I haven't had any major side effects besides hair loss, I still wish I was given the right to explore and go with alternatives," Cassandra wrote."
But she is happy that the chemo worked. So it's a mixed bag.
Okay that's not cool. Yes, be responsible for your own decisions, but let your parents pay the cost :STooPatient|1425959869|3844707 said:We have a similar online thing and they do that also. The medical treatment gets a bit stickier. They are still able to decline but we are held responsible and doctors, schools, etc can call CPS if they feel needed treatments aren't being done. Not sure where it goes from there. Thankfully, we haven't gotten to that point yet.
Oh....but we have had "A" authorize a (thankfully minor) thing and the doctor did it without getting an okay from us then sent us the bill.
telephone89|1426005138|3844974 said:Okay that's not cool. Yes, be responsible for your own decisions, but let your parents pay the cost :STooPatient|1425959869|3844707 said:We have a similar online thing and they do that also. The medical treatment gets a bit stickier. They are still able to decline but we are held responsible and doctors, schools, etc can call CPS if they feel needed treatments aren't being done. Not sure where it goes from there. Thankfully, we haven't gotten to that point yet.
Oh....but we have had "A" authorize a (thankfully minor) thing and the doctor did it without getting an okay from us then sent us the bill.
During the class where we were informed that our child could authorize or refuse treatment, we were also informed of the shocking news that our child could move out and a judge would approve as long as the child was safe and needs were met, AND we would still be legally responsible for anything the child did while NOT living in our home until the age of 18. I'll never forget the psychologist's words "if your child decides they want to live with Suzi and eat toast all day, the judge has to approve because the child is safe and their needs are met."msop04|1426005878|3844985 said:telephone89|1426005138|3844974 said:Okay that's not cool. Yes, be responsible for your own decisions, but let your parents pay the cost :STooPatient|1425959869|3844707 said:We have a similar online thing and they do that also. The medical treatment gets a bit stickier. They are still able to decline but we are held responsible and doctors, schools, etc can call CPS if they feel needed treatments aren't being done. Not sure where it goes from there. Thankfully, we haven't gotten to that point yet.
Oh....but we have had "A" authorize a (thankfully minor) thing and the doctor did it without getting an okay from us then sent us the bill.
I was wondering about something like this! If the pt isn't footing the bill, shouldn't the parents have some say?? (yes, I'd love that nose job while I'm out!)![]()
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momhappy|1425988956|3844808 said:Jambalaya|1425950330|3844631 said:packrat|1425950112|3844630 said:B/c she's young, our first instinct is to say NO YOU CAN'T QUIT. EVER. NO MATTER WHAT. But what gives us the right to decide that she hasn't tried hard enough, or done enough or been thru enough or put herself thru enough? (a couple months from the time she legally becomes an adult no less) Do we think she doesn't value herself or her life enough? People would give their left arms to have their loved ones brought back from their deaths of cancer and here's this smarmy young thing thinking she can make decisions for her life when she doesn't "get it" and *she* has the possibility of a longer life when other loved ones didn't and we think she's throwing her life away. Is there a length of time, like you have to go thru 11 rounds of the hardest chemo ever, and then we go ohhh yeah that really sucked for you, ok go ahead and throw in the towel? And when we're not the ones going thru it and we're not the ones helping a loved one go thru it looking it in the face 24/7, it's a bit easier to sit here and our computers and be her champions to not give up.
Well, I agree, Packrat. How many people who are OK with this girl having unwanted treatment forced on her would be OK with the same thing happening to them - a treatment that is definitely not wanted by you, remember.
I also do not understand why adults get a chemo break and this girl didn't.
But anyway, it doesn't matter what anyone thinks. The state did what it wanted, and it's done now. And hey, maybe there will be a positive outcome. Maybe sheĺl live to be 90, and won't get another cancer, and will travel the world, and feel right within herself about the forced treatment. There was something in TIME magazine the other week about positive people having lower cancer rates. I hope she feels positive about the whole thing when she feels better.
This whole case stems around the fact that she lives in Connecticut. Many states have adopted a "Mature Minor" law that takes into account the age and situation of a minor to determine maturity. It allows minors above the age of 16 to take part in the decision making process when it comes to serious medical issues. This particular girl was not allowed to "take a break" from chemo because Connecticut doesn't have a Mature Minor Law - She was considered a minor at age 17 and therefore the state intervened. I have mixed feelings about it, but again, the line has to be drawn somewhere in those states that don't allow for individual circumstances. Had she lived in another state, perhaps her medical requests would have been granted….
House Cat|1426006220|3844992 said:During the class where we were informed that our child could authorize or refuse treatment, we were also informed of the shocking news that our child could move out and a judge would approve as long as the child was safe and needs were met, AND we would still be legally responsible for anything the child did while NOT living in our home until the age of 18. I'll never forget the psychologist's words "if your child decides they want to live with Suzi and eat toast all day, the judge has to approve because the child is safe and their needs are met."msop04|1426005878|3844985 said:telephone89|1426005138|3844974 said:Okay that's not cool. Yes, be responsible for your own decisions, but let your parents pay the cost :STooPatient|1425959869|3844707 said:We have a similar online thing and they do that also. The medical treatment gets a bit stickier. They are still able to decline but we are held responsible and doctors, schools, etc can call CPS if they feel needed treatments aren't being done. Not sure where it goes from there. Thankfully, we haven't gotten to that point yet.
Oh....but we have had "A" authorize a (thankfully minor) thing and the doctor did it without getting an okay from us then sent us the bill.
I was wondering about something like this! If the pt isn't footing the bill, shouldn't the parents have some say?? (yes, I'd love that nose job while I'm out!)![]()
![]()
Sigh, it is a broken system.
Jambalaya|1426010143|3845040 said:Momhappy - yes, I see what you mean. I agree the line has to be drawn somewhere. It's a pity all states don't have the Mature Minor rule because it sounds so sensible.
Same thing with Farrah Faucett.smitcompton|1426014656|3845102 said:Hi,
Just to mention that alternative medicine was the road followed by Steve Jobs of Apple. He decided no chemo, he would battle this his way. It didn't work and he was too late for traditional treatments. He spoke about his decisions and of course would change what he did, if he could. Sometimes we don't get second chances.
There is one problem that i see in allowing this young woman to go home, and that is that usually each successive treatment brings with it harsher symptoms(side effects). You get sicker and sicker as the body keeps being attacked by the chemo. I hope she is apprised of this. She may still refuse to complete the course of treatment.
It heartens me to see when the Gov't does a good thing. Good for those people who cared and made a difference. I hope one day she will thank them.
Annette
msop04|1426013284|3845082 said:Jambalaya|1426010143|3845040 said:Momhappy - yes, I see what you mean. I agree the line has to be drawn somewhere. It's a pity all states don't have the Mature Minor rule because it sounds so sensible.
It does sound sensible, but then there's the question of who gets to decide if said minor is "mature enough" to fall into that category?? Sounds like a big can of worms to me... as most complex issues are...![]()
msop04|1426005878|3844985 said:telephone89|1426005138|3844974 said:Okay that's not cool. Yes, be responsible for your own decisions, but let your parents pay the cost :STooPatient|1425959869|3844707 said:We have a similar online thing and they do that also. The medical treatment gets a bit stickier. They are still able to decline but we are held responsible and doctors, schools, etc can call CPS if they feel needed treatments aren't being done. Not sure where it goes from there. Thankfully, we haven't gotten to that point yet.
Oh....but we have had "A" authorize a (thankfully minor) thing and the doctor did it without getting an okay from us then sent us the bill.
I was wondering about something like this! If the pt isn't footing the bill, shouldn't the parents have some say?? (yes, I'd love that nose job while I'm out!)![]()
![]()
missy|1426031271|3845231 said:momhappy, there are different chemotherapies just as there are different cancers. For this cancer chemo is the only way for such a high rate of cure. Nothing else. I agree do your research and make sure you have the full picture but for this cancer there are no acceptable alternative therapies.
luv2sparkle|1426031507|3845234 said:msop04|1426005878|3844985 said:telephone89|1426005138|3844974 said:Okay that's not cool. Yes, be responsible for your own decisions, but let your parents pay the cost :STooPatient|1425959869|3844707 said:We have a similar online thing and they do that also. The medical treatment gets a bit stickier. They are still able to decline but we are held responsible and doctors, schools, etc can call CPS if they feel needed treatments aren't being done. Not sure where it goes from there. Thankfully, we haven't gotten to that point yet.
Oh....but we have had "A" authorize a (thankfully minor) thing and the doctor did it without getting an okay from us then sent us the bill.
I was wondering about something like this! If the pt isn't footing the bill, shouldn't the parents have some say?? (yes, I'd love that nose job while I'm out!)![]()
![]()
When my son was injured and in a coma, the hospital would not give us information or allow us to authorize treatment because he was 18. They did however, put a 1 million dollar lien on our house. Needless to say, we got a lawyer.