So as it turns out...maybe...NOT a heart attack?

[Queenie60]

And I'm home. No diagnosis as yet, still waiting for results to come back. Came home and fell asleep sitting up on my sofa. Called my best girlfriend in Australia this evening and she led out by saying "I'm sorry I woke you up."

I said - "You didn't wake me up - I called you."

Her - "No, I mean earlier when I called."

Me - "Oh - did you speak to DH? I didn't hear the phone - you didn't wake me."

Her - "Um - you answered the phone. We spoke."

Me - "We DID??"

So - yeah - I'm that tired. But I'm home, and I so love you all for your support and friendship. It made an inestimable difference - it truly did. Hospital at the moment is such a lonely, dare I say terrifying place. I heard a bunch of "Covid 19 Code Blue" calls while I was there - and the saddest ones were when the announcement came, a few minutes later, "Covid 19 Code Blue alert - cancelled."

On the other hand, BIDMass is playing a few bars of Neil Diamond's 'Sweet Caroline' every time someone with Covid is successfully released, and that was happening all through every day. I wish someone could somehow get a message to Neil Diamond to let him know how much joy that song has for a whole bunch of people at the moment, and how much it lifts the spirits of people hanging on by a thin thread.

Thank you, PriceScope friends; you were, each and every one, my own, personal, Sweet Carolines. I'm hoping when we finally get a diagnosis that it will be a thing that can be addressed, solved, and moved on from.

Unlike that dangling preposition, that I already fear will haunt me forever.

Love to you all. <3

Love you too @mrs-b - take care of yourself. Q

 

[Matata]

Thank you, PriceScope friends; you were, each and every one, my own, personal, Sweet Carolines. I'm hoping when we finally get a diagnosis that it will be a thing that can be addressed, solved, and moved on from.

Unlike that dangling preposition, that I already fear will haunt me forever.

Lol, as a former editor, I immediately did a mental edit and banished your dangler to its proper place. So very happy to hear that you are home and all my digits remain crossed that you get a speedy and fixable diagnosis. I am humbled by the grace and wit with which you have faced this challenge. Gentle hugs.

 

[Karl_K]

awesome news me does a happy dance!!
Thank you Lord!!!

 

[MissGotRocks]

You are allowed a dangling preposition or two after all you have been through!

So glad to know that you are home and resting. Take good care, keep us posted and we will all keep positive thoughts ongoing for you.

 

[Slickk]

So relieved to read you are home. I hope you enjoy an uninterrupted nights sleep and a peaceful weekend. Hospitals are not conducive to sleeping!
And oy to your bruises. I had those beauty marks as well recently during a health crisis. I hope you are pain free and comfortable.
Continuing to send warm regards as I wear your pansy pendant and think of you.
Here is another Hudson Valley picture. The Bear Mountain Bridge in the glorious fall.

 

[Aryana]

So glad to see you are home. Best wishes for a quick and positive diagnosis!

 

[mrs-b]

I went to go to sleep. But then I heard that Brian Howe, lead singer from Bad Company had died today. So instead, I cranked up this - and played a little air drum. There is still joy in the world, and I'm not dead yet.

I'm posting this because I have no ego. I'm not even going to ask you all to forgive the way I look. I *will* say, tho, that I had something in my eye when Tim filmed this. But - seriously - 4 days ago I was afraid I was going to die. Today I'm air drumming and dancing to one of the great rock bands of all time. And that is *everything*.

And by the way - yes, that did hurt. And it was so worth it.

And check out those drugs....

 

[MamaBee]

I went to go to sleep. But then I heard that Brian Howe, lead singer from Bad Company had died today. So instead, I cranked up this - and played a little air drum. There is still joy in the world, and I'm not dead yet.

I'm posting this because I have no ego. I'm not even going to ask you all to forgive the way I look. I *will* say, tho, that I had something in my eye when Tim filmed this. But - seriously - 4 days ago I was afraid I was going to die. Today I'm air drumming and dancing to one of the great rock bands of all time. And that is *everything*.

And by the way - yes, that did hurt. And it was so worth it.

And check out those drugs....

That was great @mrs-b..I’m so happy you are happy at home..<3

 

[Daisys and Diamonds]

all those pills on the bed are having an effect that the onion i just sliced did not
are you feeling any less worse ?

 

[Calliecake]

I loved your video @mrs-b . You look beautiful!!!

 

[yssie]

Welcome Home!!!!!

 

[JPie]

Glad you're home! Rock out.

 

[Polabowla]

Glad you're finally home!

 

[mrs-b]

all those pills on the bed are having an effect that the onion i just sliced did not
are you feeling any less worse ?

@Daisys and Diamonds - I'm feeling better, thank you. The adrenalin surges that lead to the cascading pain and racing pulse and rigors have decreased a little, and my inflammation markers dropped by over 25% in the last 24 hours alone. And please don't be concerned by the drugs; about 1/3 of them are vitamins, and another 1/3 will drop off over the next couple of weeks. I wish I could live drug-free, but virtually no one with Crohn's has that luxury. I'll probably end up a 3-in-the-morning and 3-in-the-evening girl. And I can easily live with that.

 

[Daisys and Diamonds]

@Daisys and Diamonds - I'm feeling better, thank you. The adrenalin surges that lead to the cascading pain and racing pulse and rigors have decreased a little, and my inflammation markers dropped by over 25% in the last 24 hours alone. And please don't be concerned by the drugs; about 1/3 of them are vitamins, and another 1/3 will drop off over the next couple of weeks. I wish I could live drug-free, but virtually no one with Crohn's has that luxury. I'l probably end up a 3-in-the-morning and 3-in-the-evening girl. And I can easily live with that.

that Cronh's is a terrible thing

but all these gentle hugs ...
you need one huge group hug that squeeses all that pain away

 

[Daisys and Diamonds]

my swlf sown wattle tree is trying to flower for you Mrs-B
its very early
im glad i didnt pull it out

but maybe @missy can post us some pictures of springtime in Brooklyn

 

[ItsMainelyYou]

Rock on with your bad self, f**k yeah!
I'm so happy to see you home and *whispers* I hope at least one of those drugs is fun

 

[arkieb1]

I'm glad you are getting better, hopefully they can sort it all out. That was a funny video, you can take the Aussie out of Australia, but you can't take the Aussie out of you.

I've been to Whitby too, perhaps that is also an Aussie thing, - seeing where our forefathers hail from.....

 

[Cluless]

Mrs B Glad to see you are home!
You're Awesome, Rock on!
I agree with Daisy and Diamonds, so there ya go lol xo

 

[Ally T]

Perfect video to watch first thing in the morning!

So, so glad you're home & comfy in your own space. Get lots of rest & feel better soon x

 

[Niffler75]

Hey lovely lady. It's your Whitby buddy here! Absolutely loved your video. You look gorgeous and I would still look like a 'hot mess!'

So glad you are home comfy in bed.
I am managing health conditions too. I have Ehlers Danlos and also had brain surgery when I was younger. I understand about managing long term health conditions.

Sending big virtual hugs and will check in later! x

 

[missy]

my swlf sown wattle tree is trying to flower for you Mrs-B
its very early
im glad i didnt pull it out

but maybe @missy can post us some pictures of springtime in Brooklyn

Happy to oblige.
Springtime 2020 in Brooklyn, NY USA.
With the exception of the first photo which I couldn't resist adding.



















@mrs-b I hope this morning you wake feeling well and strong and happy. Continued hugs and healing dust being sent your way.

 

[mrs-b]

@missy - these photos are so beautiful! I wish we were back in NY. I've never really warmed to MA, and I loved NY. And seeing the city in the spring - ahhhhh! Does my heart good!

 

[AGBF]

Wow, mrs-b, I can't believe you managed to make a video! You are so awesome.

Big hugs,
Deb/AGBF

 

[mrs-b]

Wow, mrs-b, I can't believe you managed to make a video! You are so awesome.

Big hugs,
Deb/AGBF

To be honest, @AGBF - I was sore and tired afterwards. But it was pure joy that overtook me in that moment - for a few seconds, I was the happiest girl in the world.

 

[Luce]

Mrs B.....that was precious....you rock!!! So glad you are home!

 

[mrs-b]

I'm glad you are getting better, hopefully they can sort it all out. That was a funny video, you can take the Aussie out of Australia, but you can't take the Aussie out of you.

I've been to Whitby too, perhaps that is also an Aussie thing, - seeing where our forefathers hail from.....

@arkieb1 - did you love my accent? 20 years away from home, and I sound exactly like I did the day I got off the boat.

Never gonna take the Aussie out of this girl.

 

[mrs-b]

Hey lovely lady. It's your Whitby buddy here! Absolutely loved your video. You look gorgeous and I would still look like a 'hot mess!'

So glad you are home comfy in bed.
I am managing health conditions too. I have Ehlers Danlos and also had brain surgery when I was younger. I understand about managing long term health conditions.

Sending big virtual hugs and will check in later! x

@Niffler75 - I didn't want to 'like' your post, and I want to look up Ehlers Danlos before I respond. And brain surgery can't possibly be fun under ANY interpretation.

I want to understand what you're going through. What can you tell me about this - if, indeed, you feel comfortable sharing at all.

 

[AGBF]

So glad you are home comfy in bed.
I am managing health conditions too. I have Ehlers Danlos and also had brain surgery when I was younger. I understand about managing long term health conditions.

I am sorry to hear that you have been (and are still) struggling, Niffler. I do not know what kind of Ehlers Danlos you have, but when my daughter was little (age 3) one doctor wanted to do surgery on both her hips. I wanted to get a second opinion and ended up going up and down the East Cost getting opinions (I got five). We ended up doing no surgery and my daughter was followed throughout her childhood by a pediatric orthopedic surgeon at the Hospital for Special Surgeries. During all of the kerfuffle one surgeon said she might have Ehlers Danlos III. A geneticist at Yale confirmed that she might have it, but that since there was as of then no genetic test for it, we couldn't know. What she did say was that if she had Ehlers Danlos III that the surgery might not work as well as some surgeons were proposing.Her wingspan was greater than her height, and given other features she had, she was also tested for Marfan's Syndrome. The echocardiogram turned up that she had mitral valve prolapse (which resolved itself) but she was followed by a pediatric cardiologist for years, too! (No Marfans. Just long, long thin fingers that were good for playing piano and cello until her emotional problems became too great for her to enjoy playing an instrument anymore.)

Sorry for the threadjack, mrs-b, but I have felt a kinship with Niffler and wanted to share my daughter's story with her.

 

[DAF]

Here I am in hospital this afternoon - best day I've had, pain-wise. It wasn't as heavy, didn't last as long, and I recuperated more quickly. The tests they're running won't be back for a few days, so my attending cardiologist said I could go home for a few days till they work out how to proceed. Am now also seeing rheumatologists, who are checking me out for large vessel vasculitis, and they need an ultrasound of my temporal artery to make sure I "Don't go blind over the weekend while you're at home." (well, cheers to that!) But assuming that goes well, I'll leave tomorrow, probably in the afternoon.

I'll have to come back; the more time that goes by, the more this is looking like something surgical - but we'll see. In the meantime I'm taking home basically a pharmacy to manage my symptoms during the adrenalin/pain surges, so I'm hoping all will be well.

And here I am, just off the phone with my cardiologist, pretty damn pleased about leaving!! Fingers crossed the ultrasound goes well. And that I don't...er...go blind...over the weekend. Seriously, I know they're trying, but a few social skills wouldn't hurt, y'know?

This is why I asked you what your SED rate was. Temporal arteritis is diagnosed by biopsy of one of the temporal artery blood vessels. I had a "flare" in CRP and SED rate and got close to needing the biopsy before my numbers went down. Yes, it can cause blindness.

Sending dust your way for healing.