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Prayers and positive wishes needed for our friend Independent Gal

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I''ve missed this until now. I''ll be sending you positive thoughts.
 
Indy I''m still sending prayers all day every day and last thing at night every night. I''m still hoping for a miracle for your boys. You are a wonderful woman and I truly admire your strength and dignity in the midst of all this.

I noticed on the Preggos thread that a number of people have decided to make donations to the March of Dimes. In a similar vein, for a long time now I''ve been meaning to knit some blankets and hats for an organisation here that brings them into hospitals to give to preemies. The hospitals here don''t have any clothes small enough for the really teeny babies, and sometimes mothers are handed their babies wrapped up in a dishcloth because the normal baby blankets are just way too big. I am going to go out this weekend and buy the yarn to get started. I will think of you, and of your babies, with every stitch. The project here is called ''Wrapped in Love'', and those babies truly are. And you, and Mr Indy, and your babies are too. You take care of one another and know we are all thinking of you.
 
Del that is a beautiful thing to do, bless you!

Indy, my thoughts and prayers are still with you, your family and your cubs.
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Would someone (Delster?) please post a link to the other thread so that we can also read that one. I tried to find it and was unsuccessful. I am sure that if I persevered, I would eventually find it, but it is easier to ask for help here. Thank you. I am still thinking of Indy, her husband, and the cubs.


Deborah
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Thanks, Michelle!



Deb
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Indy, just checking in on you today.
 
Date: 10/17/2008 10:18:43 AM
Author: Catmom
Deb, Here''s the link to that thread. You''ll have to search through the thread to get the info...

https://www.pricescope.com/community/threads/calling-all-the-pregnant-psers.47081/page-412
Deb and anyone else who is interested: Indy''s plight began around around the last week in September, so if you start there is the preggo thread you will find the most recent information (it all startes around here: https://www.pricescope.com/community/threads/calling-all-the-pregnant-psers.47081/page-393). If you are curious about the larger picture with her boys, she found out about their shared placenta in July some time I think, so reading back to that point there are lots of posts from her detailing the specific issues that such identical twins face. I had no idea myself.

Indy I am still thinking of you every day!
 
Hello everyone and thank you thank you thank you for your continued concern, prayers, good wishes, donations, knitting, and all the many other kindnesses you offer. I am just so touched.

Some of you were curious about what is what so here is a quick (?) summary.

My twin boys are called "monochorionic-diamniotic monozygotic twins" (!!) This means that they came from one single fertilized egg (so they are identical) that split somewhere between 3 and 8 days after the cells started dividing. At that stage, certain processes have already got going, which mean that the twins share ONE placenta in ONE chorionic sac, but other processes have not yet started, which means they each have their own amniotic sacs.

In lay terms, they are hanging out in their own water bubbles, but sharing a single source of food and a single blood circulation system.

Nobody knows why, but this kind of twins has astronomically higher rates of every complication. Even things that seem totally unrelated: heart defects, down''s syndrome, other chromosomal problems and anatomical abnormalities, preterm birth,... and so lots and lots of them die from these things. It is also common for one twin to have a bigger share of the placenta than the other, and identical twins are sometimes born with one of them TWICE the size of the other. Sometimes, the smaller one doesn''t make it.

The biggest killer of these babies is called "Twin to Twin Transfusion Syndrome" TTTS which is a condition where the blood supply becomes unequal. About 15-20% of all mono-di twins (like mine) get this syndrome, and without intervention, it kills both of them. There is a surgery that can help save about 50-60%, though.

So, with alllll that, these babies die at a rate of about 1 in 4 or 1 in 5 overall. So, when you get pregnant with mono-di twins, you know that there is a very high chance your babies won''t make it because of one of these complications which usually arise in the second or early third trimester.

My babies had been doing OK, with only very early, minor signs of TTTS, excellent and equal growth rates, etc. and doctors don''t know why the preterm labor started.

It is very unusual for it to happen so early, and there is no treatment for it that could get us through the 4-5 weeks we''d need before the babies would stand much of a chance of surviving with their brains intact. Beyond all the physical problems, very early preemies and twins who have had problems in the womb often have bleeding in the brain which causes cerebral palsy and a host of other brain damage issues. Severe retardation and massive physical disabilities are the result in many of those who survive at all, when born that early (before about 27 weeks).

I believe the earliest preemie survivor was born at 22 weeks. A small handful survive at 23-25 wks... then things start to get better.

I''m at 22 weeks next Tuesday.

Again, thanks for your good wishes. Some days are harder than others, and mostly we''re just trying to focus on doing things for other people, and counting our blessings to pass the time!

As my friend reminded me, each baby, no matter how short a time it has, is unique and beautiful and the moments we will have with our sons should be full of appreciation. I am trying to start looking at the labor as part of that unique and beautiful very short life of my sons and as something not to be dreaded, but to be embraced as part of the whole process. Not easy! But I''m trying.


















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Indy thanks for explaining everything. I was a little confused.


You are so incredibly strong, I really really admire you. You and your family are still in my thoughts and prayers.
 
I''m so glad you checked in Indy. each day is a bonus gift! who would have thought you''d have made it this far? you are a strong lady and the time you will have with your sons, whenever that is will be so precious.
 
IG thank you for checking in..huge hugs and prayers going out to you still! It sounds like you have a positive attitude and you''re doing as well as possible.
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Keep up the strength, you are a strong woman!
 
Thanks for checking in -- i think about you and your family a lot and I keep sending lots of strength vibes your way.
 
IG, Thanks for the update. I will continue to keep you and your babies in my prayers.
((((((HUGS)))))

~SL.
 
Indy, prayers continued dear friend!
 
bless your heart. you are an uplifting inspiration to the rest of us. you and your babies are in my prayers...hope to hear more positive updates from you.
 
Your family is in my thoughts IG... prayers of strength and peace and love are coming your way, crossing fingers for luck too!
 
How very heartbreaking, Indy. I have been gone because of my father''s death recently and am really behind on theads here. I will also be praying for your little babies and you and your husband as well.
 
Indy you are in my prayers.


Mrs.2Artists
 
Indy,
I''m so sorry to hear about this and my thoughts will be with you. Sending good vibes and well wishes to you, the cubs and your family. Stay strong and take care.


Diamondseeker2006,
I''m sorry for your lost too.
 
IG - You are amazing. I applaud your strength and grace. I''m praying for you guys and keeping you in my thoughts.
 
Thank you for checking in and letting us know what has been happening. You have an incredibly positive outlook and I so admire you for that. My thoughts and prayers are with you and the twins.
 
Your strength and courage are certainly admirable - and my thoughts and prayers are with you all.
 
Best wishes, thoughts and prayers going out to Indy and her little cubs!
 
My heart goes out to you IG.....many prayers to you and your cubs.....hubby, too......

Lori
 
Prayers and positive thoughts are coming your way Indy Gal.
 
Thank you for the summary and update Indy, your family is in my thoughts; you''ve already made it a remarkable way with weeks of pre-term labor, let''s home for several more. You and your husband are remarkably strong, loving and grounded people. I wish you all the best.
 
Indy Gal, thank you for giving us an update.
I am hoping against hope that your boys know a good thing when they see it and STAY PUT!

I have a good friend whose labor also started too soon, gave birth early at 25 weeks. He was in intensive care for a few months. He will always be small, but has remarkably exceeded everyone''s expectations (they were told terrible things about his prognosis when he was in the hospital).

The main thing is to take one day at a time, and we are all pulling for you.
 
Indy, I just wanted to let you know that I''m still sending up lots of prayers for you, your husband, and your little boys. You are handling your situation with incredible grace, and I really admire you for it.
 
Thinking of you tonight Indy. I find you to be an amazing person, full of grace. Sending prayers to you, the cubs and your hubby.
 
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