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Is it always better to know what''s wrong with you? Or ignorance bliss sometimes.

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Gypsy

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Spent day in ER. Might have Lupis. Will find out this week. Have 2 generations of lupis in my immediate background so I know what it means, completely. Scared. Part of me is wishing I''d just kept igoring things instead of pushing to find out why I feel so wrong.

Hopefully the ER doctor was wrong and was just trying to pass the buck, like all the other doctors I''ve been seeing this week.

Feeling bitter, scared and really tired.
 
Gypsy, I''m so sorry. I really hope it isn''t lupus, and that there''s some (relatively) benign explanation for your feeling poorly. I think it''s better to know what''s wrong with you so you can treat it, but there have been many times in my life where I wish I could''ve stayed blissfully unaware and continued to believe that things would just get better of their own accord--it''s so much easier that way.

I''m so sad to hear that you''re suffering. Sending dust your way.
 
Thank you kitty, very much. It''s been a hard day. Maybe tomorrow will be better.
 
*hugs*

prayers outgoing!
 
Date: 1/26/2009 2:30:14 AM
Author: strmrdr
*hugs*

prayers outgoing!
Ditto, I am sending good thoughts and prayers your way that you feel better soon sweetheart.
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Sweetie, I hope the doctor is wrong.

I''ll keep you in my thoughts and prayers and I''ll you big massive {{{HUGS}}}.
 
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I hope he is wrong too.
Hang in there Gypsy.
HUGE (((((((HUGS)))))))
 
I''m sorry Gypsy! I hope you find out definitively what it is and you start to feel better soon. I''m of the mind that it''s better to know what you are deeling with so that you can find the right treatment. My most positive thoughts that the doctor is wrong!
 
oh Gypsy, I''m so sorry. sending prayers your way....
 
Gypsy, just want you to know I''m thinking of you.
 
Its always better to know when it regards your health
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I really hope its nothing...((hugs))
 
Gypsy, I''m so sorry to hear you''re not feeling well. Intuition is the sixth sense in my opinion, and if you feel ''off'' or like something is not quite right, it''s better to know than not. At least you''ll know and you and DH can attack the problem together.

I''m thinking of you...
 
Ditto on HH''s post. As much as knowing is overwhelming, the NOT knowing WHAT could be worse. Prayers for you, Gypsy.
 
It depends for me...if it''s something that is showing symptoms and we can do something about it I certainly want to know.

If it were something that didn''t really affect my quality of life and there was no medical interventions that would help cure it, I would rather live in ignorant bliss probably...
 
Date: 1/26/2009 10:09:46 AM
Author: Hudson_Hawk
Gypsy, I'm so sorry to hear you're not feeling well. Intuition is the sixth sense in my opinion, and if you feel 'off' or like something is not quite right, it's better to know than not. At least you'll know and you and DH can attack the problem together.

I'm thinking of you...
Ditto this! I hope they were wrong, but if they were not maybe after the shock wears off you will feel relief to have a diagosis and be able to plan ways to treat it!

ETA I just looked lupus up and wanted to say that you really shouldn`t worry too much until you have seen a specialist who can properly assess you and determine if you have it! Autoimmune diseases are so hard to properly diagnose, that you should only take the word of someone who really knows their stuff! Big HUGS lady, I hope the ER doctors were wrong! But regarding wanting to know or not, with this one I would want to know for sure since there are many things you can do to stave off flareups with autoimmune diseases.
 
I'm sorry you are going through this, Gypsy!

That is so tough.

FWIW, one of my best friends was diagnosed with Rheumatoid Arthritis after a long struggle to try to find out what was causing her awful symptoms. I know for her, it was a relief to know *what* was wrong and that it wasn't just in her head. Although she was completely freaked out with the diagnosis - knowing what was wrong and knowing how to treat it made a huge difference for her.

It has been over a year since her diagnosis - and with the help of medication she is feeling better and doing better every day.
 
Thoughts and prayers heading your way - I truly hope there is another explanation. But if not - you are an incredible woman, from what little I know of you here on PS. I''m sure you''ll face whatever comes with the grace and strength I''ve seen in all of your posts. ((HUGS))
 
I''m sending ((((BIG HUGS))) to you sweetie! Don''t worry just yet as it takes a specialist many hours to arrive at such a diagnosis.

I believe in knowing upfront on a health problem as it gives you an earlier start on the road to recovery.
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Hey Gypsy, sorry to hear you had this bad experience in the e-room. But do not get attached to that diagnosis. Lupus is hard to diagnose and an emergency room setting is probably not the place where the final outcome will be known. So take it extra mellow and don''t jump to conclusions. I have had doctors scare me to death and be way wrong.

Get some additional info from specialists and then you can get a thoughtful interpretation of your total symptoms. Hang in there, we are all thinking of you!
 
Gypsy, I am so sorry to hear about your sad day. I am sure right now you''re very scared, and angry, and emotionally exhusted...so please know that I am sending you lots of positive and uplifting energy and will keep you in my prayers.

Personally, I think knowing is better. Even though having to consciously "fight" is hard work...not knowing, but suffering, is scary.

If you know what''s going on within your body, you can attack the problem as opposed to just living with it. Your knowledge will become the difference between simply surviving and thriving.

On a personal note, my Mother and my father''s sister (my paternal Aunt) both suffered from breast cancer. The knowledge of this brings me, at 25, into the doctor for yearly mammograms. I''ve also spoken with different doctors about proactive mascetomy surgery to cut the chance of getting breast cancer myself by over 90%. Sure, every year in the weeks leading up to the mammogram I''m terrified. But, my belief is that being aware makes you strong, even when it''s scary...not knowing and waiting is scarier yet.

((big hugs)) and best wishes for good news.
 
Gypsy,
HUGE HUGS. I know this is all scary stuff. But for me, better to know and mount a great fight than not know and lose... You are a fighter. My thoughts and prayers are with you and John. Keep on keeping on. Let''s see what the final word is... Keep the faith, a positive attitude is key going foward, I know easy for me to say. But I truly believe that. My strongest prayers are being sent your way.

I wish I could be there to give you a hug in person. We are all here for you. Remember that. If you need to scream, cry or vent we will be here for you. I am praying all of this is just a blip on the radar screen.

My BFF from High school was diagnosed with MS, but it turned out to be wrong. Plus she''s a nurse. I dunno, but there is hope. I always have hope. I hope you do too.
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Lisa
 
Oh honey - I''m so sorry to hear that this may be a possibility. I know it sucks big-time right now, but I really think this uncertainty will be worse than knowing what''s actually wrong. Once you know, you and John can come up with an action plan to fight it - and I have no doubt you guys will win.

All fingers, toes, and paws are crossed at our house for you.
 
Oh Gypsy that is so horrible. I really hope that doctor is wrong.
[HUGS]
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Aww. Sorry you are not felling well. Hopefully you will get an accurate diagnosis after some in depth testing and a second opinion. HUGS to you and let''s hope for some good news.
 
Oh Gypsy, I''m so sorry to hear this. It''s better to know what''s wrong with you so you can treat it, but I can imagine how you''d rather be blissfully unaware. I hope the ER doc is wrong. Sending lots of PS dust and hugs to you.
 
Date: 1/26/2009 11:31:56 PM
Author: AmberGretchen
Oh honey - I''m so sorry to hear that this may be a possibility. I know it sucks big-time right now, but I really think this uncertainty will be worse than knowing what''s actually wrong. Once you know, you and John can come up with an action plan to fight it - and I have no doubt you guys will win.


All fingers, toes, and paws are crossed at our house for you.
+1 to this.

I bet you feel horrible right now, Gyps, but if I had a dollar for every mis-diagnosis I''ve had from the ER I''d be able to afford a lot more bling than I have. Definitely wait to see what your doctor has to say about it.

You are such a strong person. I am sending you huge, huge hugs and thoughts and positive energy. Love you. <3
 
Hi all. Gypsy''s husband here. Just wanted to let you all know she was checked into the hospital today to find out what was causing the spells she was having. She''ll probably be in there for the next two to three days at the least while they do every test imaginable on her.

Which, honestly, is a relief to me. Hopefully, we''ll know more in a few days.

Thank you for any good thoughts you may throw her way.

Will keep you all posted.
 
I''m so sorry to hear that Gypsy is in the hospital, but I''m hoping this means she will get treatment and start feeling better soon. I will be sending tons of prayers her way. Please let her know I will be thinking of her and hoping for the best.
 
Hi John: Thank you for signing in to let us know how Gypsy is doing. It's nice to know she has you by her side. Like you, I'm glad she's getting a good medical evaluation, and that you're located in an area that has so many excellent diagnostic facilities. Hopefully the doctors will find something eminently treatable...

I know I'm not the only PSer who will be keeping Gypsy and her doctors in my thoughts and prayers.
 
prayers outgoing!
Thank you for letting us know MisterGypsy.

Let her know we are thinking and praying for her!!!
Thanks!!!
 
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