I just don''t feel well anymore...

[dragonfly411]

Marian
I am so sorry to hear what you are going through. Lots of positive vibes coming your way! Stay STRONG!

 

[Snicklefritz]

I can''t even imagine the pain you''re feeling. I''m so sorry. I''m glad you felt safe to share on PS, and I sincerely hope that there is relief for you in the near future.

 

[dani13]

OH Marian, Im so very sorry you are going through this. I hope that one day very soon you will be pain free. I will be keeping you in my thoughts and prayers....*HUGS*

 

[HollyS]

Oh, my dear.

I wish I could do something - - anything - - to help you with the pain. All I can really think to do is pray; I promise I will do that every day.

Many hugs to you.

 

[somethingshiny]

Date: 1/31/2010 7:55:56 PM
Author: risingsun

Date: 1/30/2010 8:48:37 PM

Author: somethingshiny

I have migraines and TMJ and THAT is plenty of pain to deal with. I can''t imagine the constant pain you must feel. Could something like acupuncture, herbal remedies, MET, or other alternative treatments give some relief?



I''m so sorry to hear of your current situation and I pray that you find some relief very soon.

I''m sorry that you are dealing with migraines and TMJ. I have considered alternative therapies. What is MET? Several posters have suggested trying something along these lines. I will look into it and thank you for suggesting it.

MET is Microcurrent Electrical Therapy. It''s supposed to be similar to TENS but longer lasting. I''m not really familiar with it, it''s just something I came across when searching for migraine treatments. I think it''s been used to treat anxiety and depression as well as many forms of pain and wounds.

 

[Upgradable]

Risingsun, have you had your PCP check your vit D? Some suggest that megadoses can be helpful. I''m having a bit of fibrofog, so don''t remember, but have you checked out the fibro forum on MDJunction.com?

 

[Gailey]

Rising Sun,

I have only just seen your post and have not read through the entire thread yet. I just want to tell you how sorry I was to hear that you are feeling so poorly, and send you a big e-hug.

XX

 

[risingsun]

Date: 2/1/2010 6:14:02 PM
Author: somethingshiny

Date: 1/31/2010 7:55:56 PM
Author: risingsun

Date: 1/30/2010 8:48:37 PM

Author: somethingshiny

I have migraines and TMJ and THAT is plenty of pain to deal with. I can''t imagine the constant pain you must feel. Could something like acupuncture, herbal remedies, MET, or other alternative treatments give some relief?



I''m so sorry to hear of your current situation and I pray that you find some relief very soon.

I''m sorry that you are dealing with migraines and TMJ. I have considered alternative therapies. What is MET? Several posters have suggested trying something along these lines. I will look into it and thank you for suggesting it.

MET is Microcurrent Electrical Therapy. It''s supposed to be similar to TENS but longer lasting. I''m not really familiar with it, it''s just something I came across when searching for migraine treatments. I think it''s been used to treat anxiety and depression as well as many forms of pain and wounds.

Thanks for the info. I have used the TENS, but the pain is pretty widespread. I believe there is a TENS or something similar that is an implant. I bet that would be exciting when getting an MRI!! I''ll check into the MET.

 

[risingsun]

Date: 2/2/2010 4:39:34 PM
Author: Upgradable
Risingsun, have you had your PCP check your vit D? Some suggest that megadoses can be helpful. I''m having a bit of fibrofog, so don''t remember, but have you checked out the fibro forum on MDJunction.com?

My Vit D level has been checked and is within normal range. Thank you for the link. I will check it out.

 

[risingsun]

Date: 2/2/2010 6:52:25 PM
Author: Gailey
Rising Sun,

I have only just seen your post and have not read through the entire thread yet. I just want to tell you how sorry I was to hear that you are feeling so poorly, and send you a big e-hug.

XX

Thank you, Gailey. I have been overwhelmed--in a good way--with all of the responses I have received. I want you to know how special each post is to me.

 

[Bliss]

Marian, you are such a beam of beautiful light in the PS world. I am sending you all of my positive thoughts and energy to help you through these tough times. (HUGS)

 

[zoebartlett]

Thinking of you today, Marian! I hope today was a good day and that you''re feeling well.

 

[OUpearlgirl]

Bless your heart. I can''t imagine, I hope that someway, somehow your troubles can go away. HUGS!

 

[joflier]

I''m sorry to hear that your suffering with all these things. You surely have a plate-full. My thoughts are with you. I''m another chronic-pain sufferer , and I understand how hard those bad days can be to get through. Stay strong - I hope things get much better for you asap!

 

[Gailey]

Marian,

What a cacophony of problems. It wasn''t so long ago that I said to "Losty", that bad things happen to the best people and I am sure that this is the case with you. It is a testament to the way you have interacted with other Pricescopers that this thread is now on page 4 and so many people have responded.

I wanted to write again because I have suffered some of the problems that you do and I want to share what has helped me.

I''ve had GERD for 26 years or so. I thank Baby Gailey for that as it started when I was pregnant. Anyway about 15 years ago I started to suffer from painful oesophageal spasms such as you describe. Around the same time and completely separately, my GP started treating me for mild depression and anxiety with a combination of Wellbutrin and Prozac. And voila, the spasm''s disappeared. I think I have the Wellbutrin to thank for that because I didn''t take the prozac for very long. The gerd persists, but the spasms have never come back (touch wood!)

I also suffer from migriane and have done since moving to the migraine capital of the universe 14 years ago. For many years, I managed to keep these under control with Zomig. It kept the pain down but left me with a feeling akin to going 9 or 10 rounds with Mike Tyson - sort of pummelled. About 2 years ago, the zomig started to become less effective and I was having more and more headaches.

Thankfully, I came across an article about how botox was helping migriane sufferers. Well "in for a penny" as they say, I decided to try it and if I did have to suffer the indignity of looking like a complete babe, well so be it! On a more serious note, whilst not an immediate cure after 3 treatments (9 months) I was able to report a significant reduction in pain and also a much longer time span between attacks. The last treatment I had saw me completely migraine free for all but one week of a three month period.

I don''t know if any of this will help you, but knowledge is power - right?

Good luck honey, I''ll be rooting for you.

XX

 

[gardengloves]

Hi Rising Sun,

I''m a newcomer to PS, but think you''ve taken a great first step towards healing and wellness but eliminating the stress of going back to work, and taking the time to focus on healing. A very courageous step. You need the time to tend to your health in a stress free environment free of deadlines looming, and I congratulate you on taking this important step. I hope you mend and heal and reknit your body in this golden time just for you.

As a chronic sufferer of MS I wish you well on your voyage to wellness. Miracles do happen. Thanks for reaching out and allowing us to help and share. Don''t trouble responding, you need complete freedom, social commitments and polite interactions are also a form of stress... you need a time to focus on your wellness. Be well.

 

[Harriet]

Marian,
I am sorry and wish you all the best.

 

[DiaDiva]

Marian,
You''ve always been so gracious to everyone. I''m really sorry to read about the health problems you''re currently facing. I''m on a different time zone from you so any time you want to "chat" during your night, I''ll be awake!

{{{Big hug}}}

 

[Lorelei]

Still thinking of you lady!!xoxoxo

 

[rosetta]

i wish you better health for 2010

good health is truly the greatest blessing in life

big gentle hugs xx

ps i''m a doctor, and though i can see how complex your medical history is, no one will ever understand how awful it can get but you. very sorry you are going through this

 

[risingsun]

Date: 2/2/2010 10:27:30 PM
Author: Gailey
Marian,

What a cacophony of problems. It wasn''t so long ago that I said to ''Losty'', that bad things happen to the best people and I am sure that this is the case with you. It is a testament to the way you have interacted with other Pricescopers that this thread is now on page 4 and so many people have responded.

I wanted to write again because I have suffered some of the problems that you do and I want to share what has helped me.

I''ve had GERD for 26 years or so. I thank Baby Gailey for that as it started when I was pregnant. Anyway about 15 years ago I started to suffer from painful oesophageal spasms such as you describe. Around the same time and completely separately, my GP started treating me for mild depression and anxiety with a combination of Wellbutrin and Prozac. And voila, the spasm''s disappeared. I think I have the Wellbutrin to thank for that because I didn''t take the prozac for very long. The gerd persists, but the spasms have never come back (touch wood!)

I also suffer from migriane and have done since moving to the migraine capital of the universe 14 years ago. For many years, I managed to keep these under control with Zomig. It kept the pain down but left me with a feeling akin to going 9 or 10 rounds with Mike Tyson - sort of pummelled. About 2 years ago, the zomig started to become less effective and I was having more and more headaches.

Thankfully, I came across an article about how botox was helping migriane sufferers. Well ''in for a penny'' as they say, I decided to try it and if I did have to suffer the indignity of looking like a complete babe, well so be it! On a more serious note, whilst not an immediate cure after 3 treatments (9 months) I was able to report a significant reduction in pain and also a much longer time span between attacks. The last treatment I had saw me completely migraine free for all but one week of a three month period.

I don''t know if any of this will help you, but knowledge is power - right?

Good luck honey, I''ll be rooting for you.

XX

Wellbutrin didn''t agree with me. I take Bentyl for GERD and the spasms. It helps until it doesn''t, KWIM? I do use Zomig for migraines and it is effective. Unfortunately, it sometimes triggers stomach spasms. I am trying to convince my insurance company to approve Botox. The neurologist recommended it. So far, no go. It''s too expensive for us to take it on by ourselves. The Zomig is over $200 for six nasal applications. With the amount I go through per month, it would be less expensive if they approved the Botox!! I am open to all suggestions, Gailey.

 

[risingsun]

Date: 2/2/2010 11:42:05 PM
Author: gardengloves
Hi Rising Sun,

I''m a newcomer to PS, but think you''ve taken a great first step towards healing and wellness but eliminating the stress of going back to work, and taking the time to focus on healing. A very courageous step. You need the time to tend to your health in a stress free environment free of deadlines looming, and I congratulate you on taking this important step. I hope you mend and heal and reknit your body in this golden time just for you.

As a chronic sufferer of MS I wish you well on your voyage to wellness. Miracles do happen. Thanks for reaching out and allowing us to help and share. Don''t trouble responding, you need complete freedom, social commitments and polite interactions are also a form of stress... you need a time to focus on your wellness. Be well.

I am so sorry that you are suffering with MS. Do you have your pain under control? I will have you in my thoughts and prayers, gardengloves. Thank you for your kind words to me.

 

[risingsun]

Again, to everyone else who has responded, my deepest thanks for your support and kind words. This week has been quite difficult. I have flu-like symptoms, but I don''t have the flu. I had both types of flu shots about 6 weeks ago. This month I will be seeing my PCP, MOHS surgeon [he did the surgeries on my face for skin CA], and have my testing and evaluation by my hematologist/oncologist for the MGUS. I doubt that anything has changed, but I feel worse. I probably have whatever is going around. I''m just frustrated. I used to feel like a well person, who had sick days. Now I feel like a sick person, who has more bad days than good ones. This is not a healthy way to think, but that is were I am. I am going to visit the other threads and lose myself in some bling.

 

[Maisie]

 

[risingsun]

Date: 2/3/2010 12:01:07 PM
Author: Maisie

Thanks for the hug, Maisie. I really needed one today

 

[Maisie]

Date: 2/3/2010 4:00:24 PM
Author: risingsun

Date: 2/3/2010 12:01:07 PM
Author: Maisie

Thanks for the hug, Maisie. I really needed one today

You are welcome. I keep thinking about you and feeling sad that you are so unwell.

 

[icekid]

rising- You are such a sweetheart and it makes me sad to know all that you''re having to endure right now. But, you''re one strong lady and I know you''re going to keep battling though. We''re here for you! HUGS!

 

[Madam Bijoux]

I''m sorry you have to go through all this. I hope the doctors can find something to help you feel better.

 

[Lula]

I''m so sorry to hear this, Risingsun. You are one of my favorite posters -- I love how you (politely, but firmly) stand up to RD in the Rocky Talky forum.

You are in my thoughts.

 

[monarch64]

Marian, I''m sorry I''m late in responding to your thread. I''m glad you posted and are talking about your illness here and I hope that helps. I really enjoy your company on PS and wish you all the best in your treatment, and am sending you positive thoughts and gigantic virtual hugs. Your spirit and attitude are fabulous.