Pandora II
Ideal_Rock
- Joined
- Aug 3, 2006
- Messages
- 9,613
Just wondering if anyone has any advice, suggestions or has been in this situation...
Daisy is now 17 months and pretty much refuses to eat. When she started solid food she was pretty good and would try everything and eat a decent amount. We did Baby-Led-Weaning where they go straight to adult food rather than purees etc and it went really well. However she then stopped being interested and although she tries things most get spat straight out again.
My husband has a hereditary blood disorder and whilst we were testing her for that, her haemoglobin levels came back as lower than they should be. When they were repeated 6 weeks later they were even worse - she has a haemoglobin level of 10 and a ferritin level of 8, her vitamin B12 levels were also low (no signs of pernicious anaemia though - folate levels are normal as are blood cell sizes).
The haemotologist referred us to a specialist dietician at the hospital and put her on a paediatric iron supplement. She suggested Vitamin B12 injections but our GP would prefer not to do them as they're very unpleasant and he feels we should see if it can be corrected with diet. She's on the small side but not malnourished (according to the specialists) and well ahead on all her milestones. She is also super-active and never sits still - the hospital said they had never seen a child with anaemia who was as energetic as she is.
To give an idea of what she eats:
Breakfast: 5 teaspoons of yoghurt - won't eat any more than that.
Snack: grapes - eats a few, stores them in her mouth and then spits them out an hour or so later - or a packet of baby apple crisps - won't eat more than a couple.
Lunch: pasta - might eat 4 pieces of fusilli, won't eat any vegetables other than peas or sweetcorn or meat with it. If I cut them up or make them into a paste she won't eat the pasta at all, she will eat pesto though.
Snack: cheese - she likes cheese and will eat a decent size piece.
Dinner: scrambled eggs on toast - eats a quarter of a slice of toast and 5 teaspoons of scrambled egg.
Things she loves (but isn't allowed more than once a week) - french fries, crisps, chocolate. Other food she likes but still doesn't eat much of - curry, rice, asparagus, potatoes, peas, sweetcorn.
Things she hates: bananas, most biscuits, rice-cakes, meat of all varieties, avocados, most fruit and vegetables.
She's not into puddings or sweet things other than chocolate.
She drinks water, won't drink formula and won't drink milk (both DH and I wouldn't drink milk as children either).
She is still breastfed and currently around 70-80% of her calories are coming from this. I have stopped her snacking on breast-milk every 20 minutes and don't feed her for at least an hour before meal-times, but she's being fed every 3 hours or so. The tantrums are spectacular over this! The dietician and the haemotologist have told me to definitely not give up breastfeeding as they want her to at least get calories from somewhere and because my husband has severe allergies as well as being immuno-compromised. I have a great immune system and so far Daisy has only had a couple of mild colds that she's shaken off in a couple of days. Plus they think that she's so stubborn and determined that it won't make her eat.
She also doesn't sleep - hasn't napped during the day since she was around 3 months old. If I get her to bed around 9pm she'll often be up again at midnight and won't go back to sleep till 4am or so, if she goes to bed with us at midnight/1am then she sleeps through till 9am or so - but does eat at night from me but without waking. We have always co-slept but are currently weaning her into her own bed which has been tough but she now goes to bed there in the evening and comes in with us when she wakes up after we've gone to bed. The hope is to gradually stretch the time she sleeps before coming in with us.
She is unbelievably stubborn and determined - much like her parents...
The dietician thinks it's behavioural rather than a problem with swallowing or anything of that sort and we are being referred to a child behaviour specialist to see if they have any ideas. They have all said to be very careful about making food an issue and not to force her or start trying to bribe etc.
She's now on vitamin supplements - powders that have to be mixed up and they taste horrible, one far worse than the other. I had to get 15ml into her of the nasty one this evening and DH had to hold her down so I could get the syringe in her mouth. I hadn't even got halfway and she threw the whole lot up plus everything she had had for supper...
I hate having to hold her down and shove medicine into her 3 times a day but unless she starts eating there is no choice.
Sorry - very long post!
Daisy is now 17 months and pretty much refuses to eat. When she started solid food she was pretty good and would try everything and eat a decent amount. We did Baby-Led-Weaning where they go straight to adult food rather than purees etc and it went really well. However she then stopped being interested and although she tries things most get spat straight out again.
My husband has a hereditary blood disorder and whilst we were testing her for that, her haemoglobin levels came back as lower than they should be. When they were repeated 6 weeks later they were even worse - she has a haemoglobin level of 10 and a ferritin level of 8, her vitamin B12 levels were also low (no signs of pernicious anaemia though - folate levels are normal as are blood cell sizes).
The haemotologist referred us to a specialist dietician at the hospital and put her on a paediatric iron supplement. She suggested Vitamin B12 injections but our GP would prefer not to do them as they're very unpleasant and he feels we should see if it can be corrected with diet. She's on the small side but not malnourished (according to the specialists) and well ahead on all her milestones. She is also super-active and never sits still - the hospital said they had never seen a child with anaemia who was as energetic as she is.
To give an idea of what she eats:
Breakfast: 5 teaspoons of yoghurt - won't eat any more than that.
Snack: grapes - eats a few, stores them in her mouth and then spits them out an hour or so later - or a packet of baby apple crisps - won't eat more than a couple.
Lunch: pasta - might eat 4 pieces of fusilli, won't eat any vegetables other than peas or sweetcorn or meat with it. If I cut them up or make them into a paste she won't eat the pasta at all, she will eat pesto though.
Snack: cheese - she likes cheese and will eat a decent size piece.
Dinner: scrambled eggs on toast - eats a quarter of a slice of toast and 5 teaspoons of scrambled egg.
Things she loves (but isn't allowed more than once a week) - french fries, crisps, chocolate. Other food she likes but still doesn't eat much of - curry, rice, asparagus, potatoes, peas, sweetcorn.
Things she hates: bananas, most biscuits, rice-cakes, meat of all varieties, avocados, most fruit and vegetables.
She's not into puddings or sweet things other than chocolate.
She drinks water, won't drink formula and won't drink milk (both DH and I wouldn't drink milk as children either).
She is still breastfed and currently around 70-80% of her calories are coming from this. I have stopped her snacking on breast-milk every 20 minutes and don't feed her for at least an hour before meal-times, but she's being fed every 3 hours or so. The tantrums are spectacular over this! The dietician and the haemotologist have told me to definitely not give up breastfeeding as they want her to at least get calories from somewhere and because my husband has severe allergies as well as being immuno-compromised. I have a great immune system and so far Daisy has only had a couple of mild colds that she's shaken off in a couple of days. Plus they think that she's so stubborn and determined that it won't make her eat.
She also doesn't sleep - hasn't napped during the day since she was around 3 months old. If I get her to bed around 9pm she'll often be up again at midnight and won't go back to sleep till 4am or so, if she goes to bed with us at midnight/1am then she sleeps through till 9am or so - but does eat at night from me but without waking. We have always co-slept but are currently weaning her into her own bed which has been tough but she now goes to bed there in the evening and comes in with us when she wakes up after we've gone to bed. The hope is to gradually stretch the time she sleeps before coming in with us.
She is unbelievably stubborn and determined - much like her parents...
The dietician thinks it's behavioural rather than a problem with swallowing or anything of that sort and we are being referred to a child behaviour specialist to see if they have any ideas. They have all said to be very careful about making food an issue and not to force her or start trying to bribe etc.
She's now on vitamin supplements - powders that have to be mixed up and they taste horrible, one far worse than the other. I had to get 15ml into her of the nasty one this evening and DH had to hold her down so I could get the syringe in her mouth. I hadn't even got halfway and she threw the whole lot up plus everything she had had for supper...
I hate having to hold her down and shove medicine into her 3 times a day but unless she starts eating there is no choice.
Sorry - very long post!