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Request for dust and prayers please....

yennyfire

Ideal_Rock
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Jun 6, 2010
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I woke up the day after Thanksgiving with really swollen hands/feet and pain in my joints. I assumed it was *just* the fact that Thanksgiving is a higher sodium meal than I'm used to and that it would go away. Well, it didn't. After a few days, I went to urgent care (I can never get a same day appt. with my dr. when I need one!) I was concerned that my blood pressure was going to be high (it's normally not, but we have polycystic kidney disease (PKD) in my family and high blood pressure is often one of the first signs that the kidney's are in trouble).

Long story short, my bp was fine and the other tests came back OK, so they told me I'd have to see my own dr. Fast forward a week. I got a call today telling me my bloodwork was back and that I have some sort of autoimmune disease. My dr. referred me to a rheumatologist. I've tried to avoid googling the topic, as I'm almost afraid to hear what I might find out, but I know that anytime your own body is attacking itself, it's not a good thing.

I've left a message for the rheumatologist and am hoping to get an appt soon, but my dr. told me that there's likely a lenghty wait. Meanwhile, I am having a hard time doing daily things, like drying my hair, holding a pen (hence difficulty helping my kids with homework), etc....anything that requires me to use my hands...which is just about everything.

So, I'd really appreciate any spare PS dust you can send my way. I have a young family and don't want my health to affect their lives. It has broken my heart to tell my 7 year old son that I can't play baseball with him or play a card game because Mommy can't flip the cards over. Honestly, I'm afraid. I've always known the day might come when my kidney's would start to shut down (I have PKD like my Dad) and I might need a transplant, but something like this was just not on my radar.

And, to lighten things up...here's my petty complaint related to all of this....my darn fingers are so swollen I can't even get my rings on my pinky finger!! Waaaaaa!!! I miss my bling. I hadn't realized just how much pleasure I get out of them on a daily basis. I really don't want to have to size them up to like a 9 or something (from a 5.5/6)!! Only on PS, right??? :errrr:
 
Oh no. Much dust to you, it sounds horrible! :errrr:

Im really sorry to hear that you have APKD too.
 
YENNY!!! oh no!!! DUST DUST DUST!!! POOF!!! Big blast of dust from Ontario down to you!

You are in my thoughts right now --- I hope all ends up well... stay strong my sweet friend! I'm hoping nothing but wonderful things for you and a clean bill of health! {{{HUGS HUGS HUGS}}}
 
Dear Yenny-I am sending you loads and loads of PS healing dust!!! I hope it all turns out OK and keeping you in my thoughts and prayers! Big (((hugs))) to you!!!!
 
So sorry to hear you are having health issues, Yenny. The thought of kidney problems is very scary. I'm sending a ton of dust your way.

Any chance you can go to a different rheumatologist who can see you sooner?
 
Tons and tons of dust coming Yenny!
 
mary poppins|1354657947|3322500 said:
So sorry to hear you are having health issues, Yenny. The thought of kidney problems is very scary. I'm sending a ton of dust your way.

Any chance you can go to a different rheumatologist who can see you sooner?

Good question Mary. I tried to get in with a colleague of a friend of my sister's and his practice was closed, so the guy I'm trying to get in with is already my second choice. I hate to just pull a name out of the yellow pages, kwim?

Thanks Rosetta...you are a physician, correct? Can I just ask you one question (so I can avoid the WWW on this topic)? Can autoimmune diseases just go away on their own or am I facing a lifetime of meds?

Thank you Enerchi, I am certain your dust will work, by sheer force of your spirit! Thanks packrat and missy, I appreciate your dust and good thoughts.
 
So sorry to hear about this yenny! Tons of dust and positive thoughts coming your way...I'm not normally a pushy person, but I would really emphasize your symptoms and discomfort when making the appointment, I would think they would try to fit you in asap. Hope you see a specialist soon, I'm sure being in limbo like this is adding to your worry.
 
Dust in piles, in big sparkly dust balls, in boxes & bags to you, Yenny. What a rotten time of year to be worried, too. We are all with you here -- holding your hand even without its bling! Lean on us, honey!

--- Laurie
 
HI:

WOW YF, very sorry for your trouble and pain. Healing vibes across the miles...

kind regards, Sharon
 
yennyfire|1354658460|3322513 said:
mary poppins|1354657947|3322500 said:
So sorry to hear you are having health issues, Yenny. The thought of kidney problems is very scary. I'm sending a ton of dust your way.

Any chance you can go to a different rheumatologist who can see you sooner?

Good question Mary. I tried to get in with a colleague of a friend of my sister's and his practice was closed, so the guy I'm trying to get in with is already my second choice. I hate to just pull a name out of the yellow pages, kwim?

Thanks Rosetta...you are a physician, correct? Can I just ask you one question (so I can avoid the WWW on this topic)? Can autoimmune diseases just go away on their own or am I facing a lifetime of meds?

Thank you Enerchi, I am certain your dust will work, by sheer force of your spirit! Thanks packrat and missy, I appreciate your dust and good thoughts.

Perhaps the colleague can recommend another doctor.

I'm not Rosetta or a doctor, but I know that some autoimmune diseases can go into remission (a time period where there isn't a flare up) and meds may not be necessary during remission. And please, I know it's hard, but try not to do a bunch of research on the Internet before getting a diagnoses. More often than not, you will needlessly freak yourself out. Sending hugs and more dust your way.
 
mary poppins|1354660145|3322558 said:
yennyfire|1354658460|3322513 said:
mary poppins|1354657947|3322500 said:
So sorry to hear you are having health issues, Yenny. The thought of kidney problems is very scary. I'm sending a ton of dust your way.

Any chance you can go to a different rheumatologist who can see you sooner?

Good question Mary. I tried to get in with a colleague of a friend of my sister's and his practice was closed, so the guy I'm trying to get in with is already my second choice. I hate to just pull a name out of the yellow pages, kwim?

Thanks Rosetta...you are a physician, correct? Can I just ask you one question (so I can avoid the WWW on this topic)? Can autoimmune diseases just go away on their own or am I facing a lifetime of meds?

Thank you Enerchi, I am certain your dust will work, by sheer force of your spirit! Thanks packrat and missy, I appreciate your dust and good thoughts.

Perhaps the colleague can recommend another doctor.

I'm not Rosetta or a doctor, but I know that some autoimmune diseases can go into remission (a time period where there isn't a flare up) and meds may not be necessary during remission. And please, I know it's hard, but try not to do a bunch of research on the Internet before getting a diagnoses. More often than not, you will needlessly freak yourself out. Sending hugs and more dust your way.

Thanks MP. Definitely NOT googling anything on the internet....just too scary to live with some of those possibilities while I wait to see the dr.
 
Thinking of you, yenny!
 
Yenny... I'm praying for you!
 
I'm feeling better already...sharing all of this with you has helped a lot, as DH is traveling this week, so I'm on my own and didn't want to burden my parents until I knew more definitively what's going on.

Pardon me for not thanking each of you individually...typing isn't the easiest thing right now. :knockout:
 
Good luck Yenny! Just keep calling daily til someone cancels! Do not be afraid to bug them!
Thinking of you....
 
Oh my goodness, I hope the best possible outcome for you!
 
Oh Yenny...I'm so very sorry to hear that you are going through this. I will definitely keep you in my thoughts and prayers and am sending truckloads of dust your way. I have a friend in a similar situation. She has been dealing with autoimmune diseases for years and has been on dialysis. Luckily, they just found a kidney donor for her. I hope your situation does not come to that, however.

Please keep us posted. In the meantime, can you wear your beautiful rings on a chain around your neck?
 
Big buckets of dust coming your way! I really hope you feel better soon.
 
My advice: STAY OFF OF WEBMD! lol

Good luck, and I hope it's not as serious a diagnosis as you are worrying yourself over.
 
Yenny, Dust, Prayers and Positive thougths cooming you're way, stay strong and stay away from the net xo
 
yennyfire|1354658460|3322513 said:
mary poppins|1354657947|3322500 said:
So sorry to hear you are having health issues, Yenny. The thought of kidney problems is very scary. I'm sending a ton of dust your way.

Any chance you can go to a different rheumatologist who can see you sooner?

Good question Mary. I tried to get in with a colleague of a friend of my sister's and his practice was closed, so the guy I'm trying to get in with is already my second choice. I hate to just pull a name out of the yellow pages, kwim?

Thanks Rosetta...you are a physician, correct? Can I just ask you one question (so I can avoid the WWW on this topic)? Can autoimmune diseases just go away on their own or am I facing a lifetime of meds?

Thank you Enerchi, I am certain your dust will work, by sheer force of your spirit! Thanks packrat and missy, I appreciate your dust and good thoughts.

Autoimmune diseases can go into remission but I must be honest with you: they can flare up again and you may need life long medication to prevent an exacerbation. Type 1 diabetes is an autoimmune condition requiring life long insulin for example. Moderate/severe rheumatoid arthritis may need long term treatment. I can't really say much without knowing the specifics but getting on the right meds can greatly improve your daily life. Not being able to play cards with your son because of pain/limitations: that's not acceptable in my books. Do not google: you will fixate on the worst case scenario.

I really hope you can get some fast and effective help ASAP yenny!

ETA I'm not a rheumatologist but I will try to help any way I can eg with medical jargon etc
 
Im not going to be of much help but think I should point out that autoimmune disorders is a vary large field. Arthritis is one. Yes in some cases it can be crippling, but in most it is just a manageable rheumatism. I'm only pointing that out so that you might not over react to the auto-immune label. Labels are not diagnoses and diagnoses are fluid.
My fingers swell all the time, but then I use them roughly all the time. Often, I cant get my ring on. I take an aleve everyday and that makes a huge difference.
Meanwhile, I send you dust.
 
I know what its like when you find out you have something wrong. Especially when you have young children. Your mind races off ahead and thinks of the worst case scenario. I hope its something that is easily treated and you can go back to a normal life soon.
 
Oy Yenny! I want you to be able to wear that beautiful ring!
You're a smart cookie to stay off the web until you know more.
One day at a time sweetie...
 
Oh dear Yenny! I'm so sad to read this news. I will pray for you and send dust by the dumptrucks.

My husband has an autoimmune disease which flares and remits. But even at its worst it is just annoying not debilitating so I pray that you'll have the same relative good luck.

And your poor lonely bling! That's just not fair. Harrumph.
 
Lots of healthy dust coming your way from LA!

*Hugs* I'm so sorry you're having such a scary situation!!
 
more california dust at you!
 
Thinking good thoughts for you Yenny. Do you have a large teaching hospital near you? They often have the best specialists on staff and could perhaps get you in for a visit quickly.
 
Sending super powerful environmentally enhanced very very special Oregon healing dust your way.
 
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