CharmedOne
Brilliant_Rock
- Joined
- Jan 7, 2012
- Messages
- 796
My son is four. He was diagnosed with autism when he was two. The doctors came by the how three times before they diagnosed him, so I know it wasn't a rushed diagnosis. However, he was turning two soon and they decided to do this "Official test." The test consisted of a few toys. My son had never played with 75% of the toys but they said that even with that in mind he should still know how they worked. After the test the said he was autistic and recommended him for services. So he started with early intervention. At three I put him in preschool. I am trying so hard to get my son the service that he needs as well as exposing him to everyday things that kids his age do. But lately I have been getting nothing but lied to and taken for granted.
My son (I call him Demo) is nonverbal and not able to tell me things happen to him. I feel like some of hid teachers and therapist have been exploiting that. I had him in OT and speech therapy at this place. But they would never let me go back with him there excuse was that other kids where back there and they felt he would do better without me. I thought it was odd but I'm new at these services outside the home. One day I asked to use their restroom and saw that they had my son on the swing still and this was 25 minutes into the session. He was crying to get off and they kept putting him back on. So I asked about it when they brought him out and she said something about linear something. Demo loves the swing. You normally have to fight to get him off of it. He started speech there about five weeks ago and the sessions were back to back, OT then speech. So when speech started an hour later they had him back on the swing again. So I decided to use the restroom excuse to check on him and they weren't doing anything with him, they were chatting about personal matters. They also had another kid on the same swing as Demo. They also was doing his music therapy and his brushing completely wrong. So I decided to take him out of that place.
His BSC has had Demo for quite awhile now and after I take him out she tells me that she thought they were not doing things right there and the two programs were not executed properly. How can you be his advocate, if you knew there was a problem and never said anything! It's all so frustrating.
Demo came home from school and the next day he had scabs all around his mouth and nose. So I called the school and asked if he fell and they told me no. His BSC comes over to my house three days later and says that Demo fell flat on his face and had a mouth full of mulch. One of her TSS's was there and saw him fall and left him there crying because he was afraid that I wouldn't approve of her touching him. How stupid is that! I would help a stranger if I saw a kid fall on their face! So I asked for a TSS to be with Demo at school. The BCS spoke with the teacher and they said it was ok. Fast forward one week and now the teacher says he can't have one. I later found out that Demo's BSC went to the teachers supervisor because the teacher is just letting the kids run around the whole day and not teaching them anything. Now my son has to pay because they are at odds with each other. I'm so fed up right now, I feel like taking my son out of school and home schooling him.
The teachers, the TSS, the BSC don't believe anything I tell them about my son's abilities. They think I'm embellishing them. When he started school at 2, I told them he knew his letters, colors and numbers and we are working on beginning sounds. They blew me off. So I was at a parent child activity and there was a rug with letters and number. So I said "Demo show mommy the J." He showed me all his letters and numbers. The teacher said "Wow, I didn't believe you." They also say he is two young to read. I have set up an iPad with a ton of apps for him and he uses the sign language app to request things a lot of the time. The app has words, so if he wants juice he will go to the word juice and the app will say the word and show the sign for it. So he makes sure I hear the word and then he does the sign. He goes in the dvr and finds a movie he wants to watch scrolls to it, turns it on and fast forwards it to the songs or scenes he likes. The therapist where here and saw him do it and the discounted as he memorized the words. He has been doing all this since one and I just want him learning as much as I can. But its so frustrating because I don't send my son to school everyday for a play date. She should be teaching these kids, it's what she is getting paid for. Now she is leaving and really doesn't care, so our kids lose out.
I took Demo bowling and his TSS and BSC was there. His BSC suggested that I get him a MR diagnosis. She said with autism his services will decrease at 18 and stop at 21. She said with a mental retardation diagnosis his service will increase at 18 and even more so at 21. So I asked her what it entails. What so they do to arrive at a MR diagnosis. She said the do a I.Q. Exam. I asked her what kinds of things do they ask. She said "Oh don't worry, he would never pass it." My heart sank
How can you be an advocate for children. Your job is to make sure they get the services they need so they can grow up to be productive adults and you don't even believe in them. She left my house soon after that and I just broke. I haven't cried like that in a long time. When my husband came home and asked how the meeting went, I couldn't even say. I was so upset. I'm not sure what to do now. She took Demo's case from another BSC because she knew him. She got him a TSS really fast but she says and does things that are truly not helping my son. I'm not sure what to do about all this but I know that from now on I will tell her that the way she says, what ever she says at the time is very hurtful and not helping my son at all.
I'm sorry for any typos. I just had to right this down. It's 1am here and this was upsetting me so much I couldn't sleep. Here are some picture of my lil guy
My son (I call him Demo) is nonverbal and not able to tell me things happen to him. I feel like some of hid teachers and therapist have been exploiting that. I had him in OT and speech therapy at this place. But they would never let me go back with him there excuse was that other kids where back there and they felt he would do better without me. I thought it was odd but I'm new at these services outside the home. One day I asked to use their restroom and saw that they had my son on the swing still and this was 25 minutes into the session. He was crying to get off and they kept putting him back on. So I asked about it when they brought him out and she said something about linear something. Demo loves the swing. You normally have to fight to get him off of it. He started speech there about five weeks ago and the sessions were back to back, OT then speech. So when speech started an hour later they had him back on the swing again. So I decided to use the restroom excuse to check on him and they weren't doing anything with him, they were chatting about personal matters. They also had another kid on the same swing as Demo. They also was doing his music therapy and his brushing completely wrong. So I decided to take him out of that place.
His BSC has had Demo for quite awhile now and after I take him out she tells me that she thought they were not doing things right there and the two programs were not executed properly. How can you be his advocate, if you knew there was a problem and never said anything! It's all so frustrating.
Demo came home from school and the next day he had scabs all around his mouth and nose. So I called the school and asked if he fell and they told me no. His BSC comes over to my house three days later and says that Demo fell flat on his face and had a mouth full of mulch. One of her TSS's was there and saw him fall and left him there crying because he was afraid that I wouldn't approve of her touching him. How stupid is that! I would help a stranger if I saw a kid fall on their face! So I asked for a TSS to be with Demo at school. The BCS spoke with the teacher and they said it was ok. Fast forward one week and now the teacher says he can't have one. I later found out that Demo's BSC went to the teachers supervisor because the teacher is just letting the kids run around the whole day and not teaching them anything. Now my son has to pay because they are at odds with each other. I'm so fed up right now, I feel like taking my son out of school and home schooling him.
The teachers, the TSS, the BSC don't believe anything I tell them about my son's abilities. They think I'm embellishing them. When he started school at 2, I told them he knew his letters, colors and numbers and we are working on beginning sounds. They blew me off. So I was at a parent child activity and there was a rug with letters and number. So I said "Demo show mommy the J." He showed me all his letters and numbers. The teacher said "Wow, I didn't believe you." They also say he is two young to read. I have set up an iPad with a ton of apps for him and he uses the sign language app to request things a lot of the time. The app has words, so if he wants juice he will go to the word juice and the app will say the word and show the sign for it. So he makes sure I hear the word and then he does the sign. He goes in the dvr and finds a movie he wants to watch scrolls to it, turns it on and fast forwards it to the songs or scenes he likes. The therapist where here and saw him do it and the discounted as he memorized the words. He has been doing all this since one and I just want him learning as much as I can. But its so frustrating because I don't send my son to school everyday for a play date. She should be teaching these kids, it's what she is getting paid for. Now she is leaving and really doesn't care, so our kids lose out.
I took Demo bowling and his TSS and BSC was there. His BSC suggested that I get him a MR diagnosis. She said with autism his services will decrease at 18 and stop at 21. She said with a mental retardation diagnosis his service will increase at 18 and even more so at 21. So I asked her what it entails. What so they do to arrive at a MR diagnosis. She said the do a I.Q. Exam. I asked her what kinds of things do they ask. She said "Oh don't worry, he would never pass it." My heart sank
How can you be an advocate for children. Your job is to make sure they get the services they need so they can grow up to be productive adults and you don't even believe in them. She left my house soon after that and I just broke. I haven't cried like that in a long time. When my husband came home and asked how the meeting went, I couldn't even say. I was so upset. I'm not sure what to do now. She took Demo's case from another BSC because she knew him. She got him a TSS really fast but she says and does things that are truly not helping my son. I'm not sure what to do about all this but I know that from now on I will tell her that the way she says, what ever she says at the time is very hurtful and not helping my son at all. I'm sorry for any typos. I just had to right this down. It's 1am here and this was upsetting me so much I couldn't sleep. Here are some picture of my lil guy
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