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My diagnosis - very dramatic day - long post

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Beacon

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I posted that I needed a breast biopsy and I had it done on the 22nd. I got the results back: lobular carcinoma in situ.

This sounds terrible, but I will start at the end and say that apparently this is not breast cancer. It means I will need to remove whatever left of it there is and I will have to go into some treatment modalities to make sure things stay fine.

BUT, the way I found out about it was something else! By total coincidence, I had an appt with my OB/Gyn today for my normal annual exam. This doctor gets a copy of my lab reports from my mammograms. When I went in I did not know the results of my biopsy but she did.

The ob/gyn came in an I noticed she looked really grave. She asked me how I had been and sort of beat around the bush. I told her, hey I had a biopsy two days ago and I don''t yet have the results, but you might have them by now. She looked at me and as best she could, handed me a tissue and told me, "I am sorry, it was positive for cancer." Man did I feel bad! She did the exam, which i totally forgot she was even doing. I had not seen the report and I asked her what it said and she told me: lobular carcinoma in situ. I kind of had heard about this type of thing and I vaguely remembered it as not being the worst thing. But I asked her if it was bad and she hedged and told me the surgeons and team would tell me and she was very sorry.

I was by myself after that and the feeling was bad. I had cancer. Not a good feeling. It was Friday afternoon and I was wondering how the heck I would make it through the weekend. I really needed consultation, ASAP.

As it turns out the breast surgeon I know is in the same building so I walked to her office and requested an appointment as a newly diagnosed breast cancer patient. The receptionist got the surgeon on the phone and read her my report. This all took a while. I sat and contemplated calling my husband, but just couldn''t call. I knew I would start to cry and he was at work and it would really mess him up. So I just hung out. After a while the receptionist came back and gave me an appointment date and said, "the surgeon told me to tell you that you don''t have breast cancer."

I just looked at her like she was from Mars, and said, "umm, ok". Now I was just like a zombie - I could hardly remember how to get out of the building, I felt like I was on drugs. But I carried on and realized there was someone else I could call on.

I went over to my radiologist''s office. She is head director of the breast center here and very busy. I had no appointment but asked to see her. She graciously took time out to meet me and go over the whole thing.

LCIS is not cancer, it is a collection of noninvasive cells that mean you are at substantially higher risk to get cancer. These cells are quite abnormal looking (mine are grade 3 in places) and will need surgery to remove and make sure there is no other cancer around them. But it''s not cancer, not yet, and my radiologist called the pathologist and talked it over with him line by line to be sure this was the final diagnosis and correct. She is so wonderful.

Then the surgeon called my cell and told me about it and what we were going to do and that it was not breast cancer. This was exceptionally kind of her, as she had just performed 6 hours of surgery.

So I am not out of the woods, there is much more to do, I have an MRI coming and some surgery, but unless something else pops up (which could happen), we have done well to find this trouble and get after it. My appointments for these are already on the books, within two hours of receiving my results. I feel ok going into the weekend. Jarred and appropriately concerned, but not freaking out and crying.

Take home message: ladies - get your mammograms and if anything is even slightly odd - get a biopsy. In my condition, there is not lump, no mass, nothing to feel, no mass to see on mammo no abnormality on ultrasound. It was located due to some tiny calcifications the mammo picked up. I am grateful to the technology that allows this to be found.
 

DiamanteBlu

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That must be such a relief! Good news! I''m glad you caught it early!

As far as your ob/gyn goes . . . nothing like giving you a heart attack as a result of her ignorance . .
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whitby_2773

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beacon - what a rough day! my heart goes out to you for the rocky (and damned inaccurate!) misdiagnosis that started today''s process. but i am beyond pleased for you that this had a positive end.

i''ve been sitting here reading about LCIS, and i saw on the mayo''s site 2 sentences that i liked very much:

"Women with LCIS have a 10 to 20 percent lifetime risk of developing invasive breast cancer in either breast. Fortunately, effective screening and treatment options are available to reduce the risk of invasive breast cancer in women with LCIS."

in other words, 80-90% of women with LCIS NEVER go on to develop breast cancer in either breast.

lovin'' those statistics, beacon. and please keep us informed about your treatment; i want to be one of the MANY women on PS who i''m sure will be supporting you through this.

warm thoughts going your way and prayers of thanks,
 

risingsun

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This is good news. It sounds very treatable. What a day for you! I wish you had been given the correct information from the start. I'm sighing in relief with you...
 

Linda W

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Oh Beacon sweetheart, I am so glad you don''t have cancer. First of all, shame on your Dr. for giving you the wrong diagnosis. There is absolutely no excuse for that. What hell she put you through, for awhile.

Please let us know, what type of treatment you will be receiving. I will be supporting you 100%.

Lots of love,
Linda
xoxoxoxox
 

swingirl

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Oh Beacon, what a day!! I can't imagine your state of mind and what would have happened if you had not gotten ahold of the surgeon and radiologist to give you the correct diagnosis. So glad you were able to get some positive news about prognosis and treatments. It's not cancer! You are lucky to get this caught so early. I hope your surgery and treatment goes well.

You deserve some heavy duty jewelry shopping this weekend!
 

VRBeauty

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Beacon: I''m glad that in the end, it was good news -- and that you''re in the hands of such caring specialists.
 

Sharon101

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Ditto every said already. Your other doctor should be really sorry!
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Glad it`s not cancer, but you could have done without the scare. I cant understand why your doctor was so sure!
 

Pandora II

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Beacon, my mother was diagnosed with this last year. She had a slightly bigger op than the biopsy to remove it and then 3 weeks of radiotherapy.

She was told that 50% go on to become serious breast cancer and 50% just sit there doing no harm. As you can''t predict which you are in advance they treat everyone the same way.

She''s doing great now - and the positive thing is that because of her having it I now get mammograms from age 40 rather than age 50.

Best of luck to you!
 

Dannielle

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All things considered, this is a great result.. I can''t imagine how you must of felt thinking you had cancer..

My thoughts and prayers will continue to be with you.. Get better soon
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Sabine

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Yay for it not being cancer! I''m so sorry you had such a scare and it took so long for someone to explain to you what is going on. I''ll continue to send positive vibes that the surgery is successful and that you never do get cancer!
 

Madam Bijoux

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It''s good that they discovered this early and that it can be stopped. Best of luck to you.
 

SparklyLibra

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Good Morning Beacon.

First things first: (((((MAJOR HUGSS))))) for having had to endure such a fright in the first place.

I''m relieved as well to know that LCIS is very well treated and has such a high success rate of NOT developing into cancer.

I am still sending up prayers for everything to have the BEST possible outcome for you because hey, just knowing you have a ton of people on your team is sometimes half the mental battle. Again, so sorry about the inaccurate diagnosis, as that must have been so frightening.

In the meantime, please try not to fret too much, and feel free to come in and vent if you feel down or overwhelmed. That way we know where your head is at, and can do what we do best and keep you smiling.

We are here for you every step of the way
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cellososweet

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(((HUG))))

This diagnosis really drives me up the wall and I wish the terminology would be changed for the benefit of patient''s sanity. Calling it a Lobular CARCINOMA is indicating that it is cancerous (which it''s not). It really should be listed as a neoplasm (which it is). On another topic, I''m really sorry that you were told that it was cancer in the manner which you were (and especially sorry that you shouldn''t of even been told that it was). People have no tact. My Mum was told she had breast cancer on the phone. On the phone! The doctor called and Mum says "Hello" Dr: "Mrs. X?" Mum: "yes." Dr: "Mrs. X, it''s Dr. a$$***e, just like I thought, It''s cancer. Call my receptionist for an appointment." Hangs up!

Ugh! So I''m really sorry that you had to deal with that. You must have been so terrified being alone in a stark medical room :( I''m just really glad that this was caught early and that you can remain vigilant.
 

KimberlyH

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Beacon, I''m sorry your day was as stressful as it turned out to be. So happy for you that it isn''t cancer, but sorry that you''ll have to endure treatment of any kind. My best to you.
 

icekid

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Well Beacon, while this is not the best news ever, I am so glad for you that this has been caught so early. Getting it early is everything where cancer (or pre-cancer as the case may be!) is concerned. We''ll be thinking of you as you go through the next steps!
 

hlmr

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What an emotional rollercoaster of a day!!

I''m glad they now know what it is, and will be able to take good care of you.
 

Italiahaircolor

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I am so happy things turned out positive. So, so happy. I wish you continued health!
 

canuk-gal

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HI:

Healing vibes across the miles--take care of yourself.

kind regrads--Sharon
 

packrat

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I''m so glad it was caught early-my thoughts and prayers are with you during your treatment and healing!
 

lyra

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Beacon, I just wanted to thank you for sharing your story. I hope you have a good outcome and send you my dust and thoughts.

Your last line hit home. I''m still waiting for my doctor to get the results of my mammogram and ultrasound so we can decide when to do the next check-up. I had the tests done at my local hospital and his office is in another city. He mentioned that there is a hospital with a breast health dept. and explained how good it was there, so I''ll go there from now on even though it''s quite a way from my house. We really do need to be proactive about breast health. Take care!
 

soocool

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Beacon, I am so happy that your mind is at ease and you know it is treatable and most importantly---NOT CANCER!

I can''t stress enough how important that annual mammogram is. I started getting my at age 35 when I found a lump in my left breast which I wanted out before I tried to get pregnant. From that point on it was annual mammograms for me. Four years ago I had a biopsy for microcalcifications found in my left breast and luckily nothing bad was found. My doctors watch very closely and I never miss a mammogram (next Thursday is my next one!) I lost 1 friend a coiuple of years ago to breastt cancer and another completed her chemo and radiation earlier this year. Neither had ever considered a mammogram untill there was a problem, both were in their 40s.

Wishing all the best and let us know how you are doing. MANY HUGS TO YOU!!!
 

snlee

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Beacon, so glad it''s not breast cancer and that it was caught early. I cannot believe your ob! Shame on her for giving you such a scare!
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I continue to think of you and send positive thoughts your way. Hugs.
 

HollyS

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So it''s good news, and not so good news. But, it was found now - - not later, when it was indeed cancer. And you have great people (in medicine) helping you with this. This is all very positive for the best outcome, isnt it?
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We will continue to expect nothing but the best for you.

You remain in my prayers for continued good news, and renewed health in mind, body, and spirit.
 

Sha

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Glad to hear it''s not cancer! what a relief!
 

anchor31

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I''m so sorry you had such a scare. I can''t imagine how you felt. Prayers outgoing for your surgery and the recovery.
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Lilac

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My aunt is going through something like this right now (although your original scare by your ob/gyn must have been terrifying!)

My aunt was told she has calcifications in her breast (and cells that are like pre-cancer cells that could develop into cancer). She had two procedures to remove the cells - the first one didn''t get rid of all the cells, but the second one did. She was told she will need 4-6 weeks of radiation in order to reduce the risk of developing breast cancer later in life. She is doing great now - the procedures went well and she''s starting the radiation soon.

*Hugs* to you while you''re going through this - hopefully you can develop a great plan with your doctors to treat this and it''s great that it is not, in fact, cancer.
 

lulu

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I received the same diagnosis in 2000. I was advised to take tamoxifen and I did for 5 years. I go to a breast care clinic 2x per year and so far so good. With the tamoxifen I''ve apparently brought my risk down to 15%. I was offered MRIs instaed of mammos, but I real feel like I''m on top of it so I declined.
The name is confusing. Frankly a lot of radiologists have assumed I''ve had cancer.
 

UCLABelle

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Great news, but what an awful, awful, stressful day! Hugs!!!
 

vip0802

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Beacon, i''m breathing a huge sigh of relief for you! thank goodness it wasn''t cancer, but upset that your Dr. gave you the wrong diagnosis in the first place! i''m so sorry you had such a rough day and i can''t imagine what you must have been through.

please keep us updated with your treatments too. my warmest thoughts and prayers are with you during this time, and i hope you''ll be better soon!
 
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