I just don''t feel well anymore...

[zhuzhu]

Marian,
I am so sorry to hear what you have been going through medically. Please hang in there and take the best care of yourself, and let others take care of you. We are all here for you whenever you need to talk!
Zhuzhu

 

[Phoenix]

Marian,

First of all, big HUGS!!

Second, you're not oversharing at all. We are here to listen and to support you, wherever and whenver we can. I've found, throughout some of the most difficult times in my life, that PS'ers have always been there and they've been wonderfully supportive. It helps to talk and if there are medical experts on here who can chime in with their opinions and suggestions, all the better. I'm not a medical expert of any sort but I just wanted you to know that it's ok to talk about your issues, and to share with others here.

I also just wanted to throw this out there, please feel free to ignore it. I have a friend who has some medical problems and she's been seeing a natural-path. I understand that you may need to see other doctors too, but would it be a good idea to go see a natural-path to see if he/ she might be able to alleviate some of your symptoms? In my friend's case, she seems to think that not only have her symptoms improved, the cause(s) may have been somewhat addressed too. Of course I don't know for sure if a natural-path can help you, but it might be worth considering (?).

Hang in there, my thoughts are with you.

 

[Sundial]

Marian I don''t post as much as I used to, but I always remember you and how helpful you have been to so many on this forum. And no matter how long I have been away you have always welcomed me back and made me feel as if you were glad to see me posting again. We have also shared our love of Hearts on Fire. I think of you as a very special person and I am so very sorry for everything you are going through. My son has Crohn''s disease and it has been so hard dealing with his single chronic health condition that I can''t even imagine how you are coping with all of the problems you are having. It took great courage to post your story here, but as you know it can be therapeutic to share and you always have people here who are concerned about you and your well being. Pricescope can''t replace your family and friends, but it can be a place where you can go to escape your troubles or share them. I wish you well my friend.

 

[marcy]

I am so sorry to hear about you medical problems and I really hate to hear you are in so much pain. Hugs to you.

 

[wsu12]

This breaks my heart. I think your post was so very brave. I will pray that you find some relief.

 

[Dreamer_D]

Oh Marian, I am so so sorry! Big hugs from me to you.

 

[Regular Guy]

Marian, I''m so very sorry to hear of problems with your health. I''m not sure if this would make a difference...but...last year I was diagnosed with a serious condition (bladder cancer), and although I''ve been "cleared" of this from a second opinion at Hopkins, I just went to be monitored, and understand I''ll still need to be monitored for some time. Anyway, I was directed to a second opinion by this resource, and you may find it helpful. Others who have related medical conditions may provide advice on point that will be helpful.

Very best of wishes; you''re in our thoughts,

 

[Dancing Fire]

hang in there RS.

 

[rainwood]

Marian -

I am so sorry to hear about your health. Juggling multiple medical issues must be so wearing on you. One of my nieces has multiple auto-immune diseases so I''ve seen how hard it can be. I admire your strength and determination to fight the good fight. We''re all here to help however we can.

 

[kas baby]

~hugs to you~

you will certainly be in my thoughts- as well as all of the doctors responsible for coming up with ways to care for you better. I pray that wisdom will come to them to find you relief. I can't begin to fathom the pain you must be going through, but I hope in reading these posts you can find some happiness in knowing that there are certainly many people that will be keeping you in their thoughts- both posters and lurkers alike I'm sure! may you always be surrounded in an atmosphere of healing energy, namaste.

ETA: In addition to Phoenix's post about naturopathy, I don't know a whole lot about it, but I did find this website:http://www.naturopathic.org/
also, have you looked into osteopathic manipulative therapy for your fibro? My aunt has fibro and has been thinking about finding a DO who specializes in it. just a thought.

 

[Lorelei]

Marian,

I have been concerned about you for some time now, so thank you for sharing- that took a lot of courage. I wish there was something practical and more I could do to help but I know there are two things I can do....Be your friend as always and keep you in my thoughts and prayers. We are here for you, many people care and are supporting you 110%

You know I am often online at times when it is quiet here, so if you need to chat just post and I am often around.

 

[Cehrabehra]

((((((RS)))))) That''s such a load, and I''m sorry you are burdened with it. I hope that you can find some way to manage it, maybe find a source for some of it.... lots of hugs!!!

 

[bee*]

Thank you for sharing with us. Sending lots of hugs-I can only imagine how difficult that last 18 months have been for you.

 

[Lorelei]

Date: 1/31/2010 1:59:19 AM
Author: Regular Guy
Marian, I''m so very sorry to hear of problems with your health. I''m not sure if this would make a difference...but...last year I was diagnosed with a serious condition (bladder cancer), and although I''ve been ''cleared'' of this from a second opinion at Hopkins, I just went to be monitored, and understand I''ll still need to be monitored for some time. Anyway, I was directed to a second opinion by this resource, and you may find it helpful. Others who have related medical conditions may provide advice on point that will be helpful.

Very best of wishes; you''re in our thoughts,

Ira, I had no idea.....I just wanted to send you my best and I am so glad you are doing well!!!

 

[Porridge]

I am so sorry to hear this Risingsun. I cannot imagine how difficult all that constant pain and worrying is to deal with. I hope sharing it helped in some way.

{HUGS}

 

[AGBF]

Date: 1/31/2010 5:43:54 AM
Author: Lorelei

Ira, I had no idea.....

Nor did I. I do not believe you said a thing about it. Thank you for saying something to be of comfort to Marian. I wish we could have been of comfort to you, too, Ira. You are such an integral part of Pricescope! Please keep us apprised now that you have finally let us in on your being monitored.

Love,
Deb

 

[oddoneout]

What a horrible things to have to deal with. You''re very strong for working through them. I hope things look up soon.

 

[mrscushion]

Marian, you are very courageous to share. I am so, so sorry for all of this pain you are suffering. I don''t know you at all, but you are in my thoughts and I pray that your symptoms will ease up. In the meantime, if PSers can help you cope in any way, then we''ve done really well. You are such a wonderful member of this community. I am sending you strength. Take care.

 

[gemgirl]

Marian, it took courage to share what you have about your health. I know how difficult it is to deal with multiple health issues on a daily basis. My prayers will be with you as you bare this burden.

 

[curlygirl]

Marian, I''m so sorry you are dealing with all of this. It was very courageous of you to share with us. Please know that you have a support system here that you can always lean on. Thinking of you and sending you all my positive vibes.

 

[beaujolais]

Bummer.

I hear you. Fibro sufferer here too. Shoulder problems too. Every day is a struggle.

I am a medical person who also works in a pain management center.

My thoughts for you (now I don't know which meds are contraindicated by your GI/other conditions or meds):

neurontin
cymbalta
topomax (also used for pain patients and I don't mean just migraine)
massage therapy
chiropractor
stay thin and get regular light exercise (walking outside)

ultram for pain when needed, B6, B12

I do all of the above. Not a fix but it lets me work.

Big soft hugs. Tell me what you think.

 

[Allison D.]

Marian, I''m SO terribly sorry to hear of all you''re enduring....it''s far more than any one person should have to deal with.

I am glad that you did post about it so we can all send strong vibes and wishes for you; people can really understimate the power of what it means to feel supported. It can make all the difference in keeping things manageable.

I hope you feel all the support here for you, one of our PS family, and pray that your burden lightens. If we can help, we''re ready!

 

[Karl_K]

sorry to hear that you are suffering :{
That stinks, you are a great person.

Prayers are outgoing!

 

[MakingTheGrade]

Hugs!

Sorry to hear about your health.

If you do get a chance to go to Hopkins, I think you should go. I went there for college as a pre-med and worked at the hospital for a year after graduation, and met many professors and docs there that were very interested in pain management. They have a specialty clinic that deals with chronic pain that might be worth going to (Blaustein Pain Treatment Center).

I hope things get better soon!

 

[Scorpioanne]

Oh Marian, I am so sorry to hear about what you have been going through. I have had some shortlived experience with some of your GI stuff so have a tiny taste of what that is like. Good for you to practice good self care!

 

[PinkTower]

Dear Marian,

I am so thankful that you shared.
I know only a small amount of what you are going through firsthand, because I have been very ill with Crohn''s at times.
The main thing I took from those worst times was the loss of freedom to go to work as I pleased. I had always taken for granted the ability to get up, put my clothes on, and drive to work. Now, I know going to work and being able to do my job is a privilege. I know you know what I mean.

I''m glad you have decided to share because you have people here who care about you, but you don''t have to go through the physical and emotional drain of expressing things aloud. When you feel like it, or feel low, you can read back through what has been written, or post again. Tender thoughts to you, and prayers.

Pink

 

[risingsun]

I am overwhelmed by the outpouring of support. I will try to get back to each of you, but will respond first to those of you who have questions/suggestions for me. I hope you will all understand that this will take me some time. In usual risingsun fashion, I woke up this morning with a rash covering the entire trunk of my body! I don''t know whether to laugh or cry. It was difficult to sleep last night. I have tinnitus that is with me 24/7 and sounds like whirring metal in my left ear. Last night, my ear decided to throw a party for itself

I will try to continue to talk about my health and I am grateful that you are willing listen.

 

[risingsun]

For now, please accept a most sincere and grateful group thank you for kind thoughts, wishes and prayers on my behalf. I have tried to write some individual responses, but I am unable to do so at this time. I want you to know that I love you all and feel very blessed that you have taken the time to express your feelings to me. If you see me on other parts of PS, it is to find some distraction for myself and my tears. I need to take this all in and then come back to this thread and continue. I trust that I will be able to do this soon.

 

[Lorelei]

Date: 1/31/2010 1:43:16 PM
Author: risingsun
For now, please accept a most sincere and grateful group thank you for kind thoughts, wishes and prayers on my behalf. I have tried to write some individual responses, but I am unable to do so at this time. I want you to know that I love you all and feel very blessed that you have taken the time to express your feelings to me. If you see me on other parts of PS, it is to find some distraction for myself and my tears. I need to take this all in and then come back to this thread and continue. I trust that I will be able to do this soon.

Marian,

Please don''t worry about writing individual responses, we are glad to support you and our main concern is not to put any undue pressure on you in anyway so that Pricescope can give you some distraction.

Hang in there my friend, we are here for you. xoxoxo

 

[MissGotRocks]

Date: 1/31/2010 1:53:26 PM
Author: Lorelei

Date: 1/31/2010 1:43:16 PM
Author: risingsun
For now, please accept a most sincere and grateful group thank you for kind thoughts, wishes and prayers on my behalf. I have tried to write some individual responses, but I am unable to do so at this time. I want you to know that I love you all and feel very blessed that you have taken the time to express your feelings to me. If you see me on other parts of PS, it is to find some distraction for myself and my tears. I need to take this all in and then come back to this thread and continue. I trust that I will be able to do this soon.

Marian,

Please don''t worry about writing individual responses, we are glad to support you and our main concern is not to put any undue pressure on you in anyway so that Pricescope can give you some distraction.

Hang in there my friend, we are here for you. xoxoxo

Could not have said it better. We are not concerned with individual responses - only your well being. Just keep us posted and again, please know that we all care about you.