Dust, prayers, whatever you''ve got....

[ang3199]

I feel strangely comfortable sharing this on here as I don''t IRL. I guess I''m just looking for some encouragement.

For most of my adult life I have had trouble with my digestive tract. Numerous gastro, er, family doctor, and every other specialist you can think of, I''ve seen ''em. Everything turns out the same. All my tests look fine. I''m just ''feel'' like I''m dying when I eat anything. I''m beginning to wonder if my doctors think I''m making this up. Which is incredibly discouraging seeing as how no one knows the pain I go through.

Well, about 4 years ago I started to DIE during sex (TMI, sorry). I mean die. So much that I was on the floor bawling my eyes out with FI looking like a scared little puppy. I die in pain and then the bowel strikes again. It never fails.

My mother has an intense history of ''female problems'', if you will, and had numerous miscarriages before she got pregnant with me. Right after I was born she was rushed to the hospital in severe pain only to be told her fallopian tubes had calcified. Lucky me that I came along before that happened...

So here I am. 24. In pain. Can''t eat. Can''t have sex (mind you I want to). And the Dr is not sure that I will be able to have children.

Long story short (well, that was a bit of a long story, sorry). I''m going in on December 26 to have an exploratory surgery to see what is going on. In a way I want them to find something so I will finally know what is wrong with me. But in another way, do I want to know? What if they tell me I can''t have kids. Bowel problems and pain I can deal with, I''ve always wanted kids...

So please, send your prayers and dust my way. I''d appreciate it so much.

 

[Dee*Jay]

Oh Ang, you poor thing. I hope they *do* find what's wrong, that whatever it is is easy to "fix", and that your ability to have kids is not impacted. Big hugs to you.

 

[Skippy123]

Date: 12/3/2007 10:04:21 PM
Author: Dee*Jay
Oh Ang, you poor thing. I hope they *do* find what''s wrong, that whatever it is is easy to ''fix'', and that your ability to have kids is not impacted. Big hugs to you.

I agree w/DeeJay; saying lots of prayers things get worked out. Huge hug!

 

[Efe]

I am assuming that one of the doctors you have seen is a gyn. Sounds a lot like symptoms of endometriosis, which can spread to affect your bowels. Are you having a laparoscopy?

 

[ang3199]

Yep and Yep. That is what they are thinking it may be. That it has attached itself to my bowels or wrapped around them. I''m on Depo and have been told that Depo is one of the treatments for endo. Strange, b.c it''s not helping me. Or if it is, I can''t imagine the pain I would be in if I were not on it. Doc also wants to look to make sure my tubes aren''t calcified like mom''s were.

 

[ang3199]

BizouMom:Yep and Yep. That is what they are thinking it may be. That it has attached itself to my bowels or wrapped around them. I''m on Depo and have been told that Depo is one of the treatments for endo. Strange, b.c it''s not helping me. Or if it is, I can''t imagine the pain I would be in if I were not on it. Doc also wants to look to make sure my tubes aren''t calcified like mom''s were.

DeeJay and Skippers: Thank you for your words of support.

 

[lumpkin]

Of course, this is just annecdotal, but I saw a documentary a few years ago about endometriosis. Apparently they can often laser a lot of it away. They even showed the doctor doing the procedure and everything got freed up right there on the spot. They interviewed the patient and her family about a month later and the she said she felt so much relief and it completely changed her and her family''s life. I hope that''s what happens in your case -- that they can find out whatever it is and handle it ASAP. I bet you can get a ton of info about endometriosis on the web and go in armed with lots of questions. I''m just as big an advocate at the doctor''s office as I am at my sons'' elementary school.

I totally believe in gathering info before I go in. Advocate dust being sprinkled on your thread.

 

[somethingshiny]

ang~

I had the EXACT same problems for a long time before someone finally diagnosed my endometreosis and polycystic ovarian syndrome. I was treated for constant ulcers (because my intestines were so messed up the acid had no where else to go.) I was always constipated (because the stuff couldn''t make its way down through the tightened intestinal tract.) Sex was awful. I had really bad cramps all month long, but sex was like ripping apart my guts. I felt so bad for DH because he would be so careful and it still killed me. I was finally diagnosed by a new doctor during a pap test. I was lying on the table with tears silently falling on my cheeks. He asked if I''d always been that uncomfortable during tests. When I told him that they had gotten steadily worse over several years, he immediately scheduled surgery. I was VERY scared to go in for surgery. I was in tears when they were prepping me because I was sure they were going to tell me I couldn''t have kids. (We had been trying for four years by this time)

I had the laproscopic surgery. The endometrial tissue was EVERYWHERE, it had adhered lots of intestinal tissue to my uterus with an ovary trapped in between. Of course the cysts didn''t help. It was a rough surgery to recover from because they moved so many organs around during the exploration and had to reposition some. My shoulders ached SOO bad. (apparently the air they fill you with generally chooses to escape through your shoulder area.) BUT, after all that, I did FINALLY carry a baby to term. I had several miscarriages prior to the surgery, but none since. AND, I get to have sex ALL the time!!!

Good Luck with the surgery.

 

[snlee]

How awful! I hope you find out what''s wrong and get better soon! I also hope you don''t have any fertility issues. Thoughts outgoing, ang.