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Calling Lost Sapphire

Hi,

Here is another one praying for you, sending lots of love to you. I have been following your story on PS, and I think your perseverance is amazing. I hope you can use this place to vent when you need to.

Marie
 
Date: 1/21/2010 2:00:13 AM
Author: mariedtiger
Hi,

Here is another one praying for you, sending lots of love to you. I have been following your story on PS, and I think your perseverance is amazing. I hope you can use this place to vent when you need to.

Marie
Click to expand...
HI

Ditto!

cheers--Sharon
 
Date: 1/21/2010 12:26:45 AM
Author: Gailey
I don''t know if this blog will help you Losty, but it is certainly an interesting concept.

Update: Here is an addition to the original blog. It''s still from November 2008, but I read the comments and the last comment from the writer was on December 1st 2009 and is still positive.

Further update: It seems the couple involved in pioneering this therapy live in upstate New York on the Canadian border, which must be within spitting distance of you. another linky
Click to expand...
Thanks Gailey! You are very resourceful! I had discussed the mirror therapy with the neurosurgs...they weren''t optimistic but I think I''ll try it anyways.

We decided against the Rhizotomy before the MVD. The MVD is considered the top of the list..everything else has lower efficacy rates below that.

But I''m up for a little bit of mirrors. who knows?
LS
 
Happy Friday everyone.

I am happy to have made it to the end of the week. Yesterday the monster was wide awake and screaming. But today it''s not as severe so I am very pleased with that.

Hope you all have a wonderful weekend.

LS
 
Atta girl. Never give up hope. I beieve there are videos of the guy's set up on youtube.

One other thought. I wonder if neuro scientists might be more open minded than the neuro surgeons? My own experience of surgeons has been that surgery is the only option.
 
Glad you made it to the end of the week. Have a great weekend, hopefully mostly pain free.
 
Best wishes for getting well. You''re a fighter you''ll get through.
 
I need to whine.
emcry.gif


It hurts really bad. I feel like I need 5 root canals and have a vise on my jaw. NOTHING touches the pain except the medication that makes me really stupid and slow. I cut back the meds 1/2 way to get some clarity in my brain about 3 weeks ago.

The days my brain is clear I''m happy to think I did it.
Days like today when the pain is screaming I''m sorry I did.

Distraction works for a while but the monster doesn''t want to be quiet.

Thanks for letting me wallow.
LS
 
We so enjoy your presence on this board, LS. Thank you for letting me show off my aqua pendant a bit today. Praying for you. I''ve been having a few aches and pains myself, but nothing like your monster. Take care as best you can.
 
Date: 3/7/2010 8:09:30 PM
Author: LostSapphire
I need to whine.
emcry.gif



It hurts really bad. I feel like I need 5 root canals and have a vise on my jaw. NOTHING touches the pain except the medication that makes me really stupid and slow. I cut back the meds 1/2 way to get some clarity in my brain about 3 weeks ago.


The days my brain is clear I'm happy to think I did it.

Days like today when the pain is screaming I'm sorry I did.


Distraction works for a while but the monster doesn't want to be quiet.


Thanks for letting me wallow.


LS
Click to expand...


hallo my friend :)

i dont know if i ever told you that my old bridge partner's best friend has trigeminal neuralgia, set off after he had lasik. he had the same struggle as you - drugs vs pain vs drugs vs pain vs....etc. it was such a viscious cycle.

i think you're both brave and logical to have cut back the pain meds - but i know the road you've taken to find clear headedness is a massively difficult one. i think you're courageous. and smart. my partner's friend lived his life medicated - and it wasn't ideal. he was on narcotics that left him out of touch with society. he couldn't go out, couldn't function in a way which resembled his real personality *ever*, and it was like he disappeared. he stayed home ALL the time. he slept. that was life.

i know the price of hanging on to who you are is unspeakably high and that you'll pay with severe discomfort; the price you're paying is something incomprehensible to someone like me. but i know enough of this unrelenting disease to respect and admire your choice and to understand why you've chosen this path. hold on, losty - hold on....

so. let's talk about opals. and pendants. i LIKE your new idea for an opal pendant! and i laughed when i read that your diamond 'accents' had gone up from .05ct each to a possibility of .35ct each! my word! that's quite an accent! i love the oval shape, tho, as i think it's more modern, more sensual and more beautiful. i think it opens up all different setting possibilities, too. i have an oval opal ring which was my mother's. i'm planning to have it reset at some point with either hot pink sapphires or pink-ish garnets as accent stones. i'm thinking of a jim meyer setting. i think opals really look wonderful in bezel settings; have you decided on a metal color? i'm thinking about rose gold...

and i LOVE your new profile pick! 'Blueberry in the Snow' - gorgeous! :) that whole photo shoot was a lotta fun (for me, the viewer
9.gif
)

something i'd be interested to know; did you think about alternate settings to the blueberry when you got it? if so, what were they? one day - just one day! - i'll get a sapphire, and i'd love to know what alternatives you considered. at the moment, i'm thinking oval + pear diamonds. but this is a long way off - after my new pearl earrings, setting my new diamonds in a 5 stone, recutting and setting a 1.12ct diamond i have, and perhaps even a pair of diamond drops.... *then* we get to 'kareyn's sapphire!' and right after that...is The End of Significant Jewelry Purchases.

i'm thinking of you this evening - sitting next to you and chatting about jewelry...

xo
 
Hi Whitby and FlyGirl.
Thanks for keeping me company. I''m having a rough go tonight. It hurts so bad.

Whitby, the problem with the meds, is when I''m clearheaded, it hurts and I regret going off them. When I''m stupid and dopey and non-functional, I regret taking them ''cause I forget what this pain feels like. It takes 6 to 8 weeks to titrate up to a dose level that works. So it''s not like I can just pop a percocet or two....If tonight I decided to bump the meds back up to where they''re working on the Monster, it would be sometime in April before relief.

I''m going to go and stick an icepack on my face. Will get back to the jewellery discussion later, ok? Can''t focus right now.
 
Date: 3/7/2010 8:57:28 PM
Author: LostSapphire
Hi Whitby and FlyGirl.

Thanks for keeping me company. I''m having a rough go tonight. It hurts so bad.


Whitby, the problem with the meds, is when I''m clearheaded, it hurts and I regret going off them. When I''m stupid and dopey and non-functional, I regret taking them ''cause I forget what this pain feels like. It takes 6 to 8 weeks to titrate up to a dose level that works. So it''s not like I can just pop a percocet or two....If tonight I decided to bump the meds back up to where they''re working on the Monster, it would be sometime in April before relief.


I''m going to go and stick an icepack on my face. Will get back to the jewellery discussion later, ok? Can''t focus right now.
Click to expand...


hi LS

yes, i understand. it took my partner''s friend months to ramp up to suitable pain relief levels; the meds doses were so high - there was no way to just switch it on and off.

chat about jewelry whenever it suits you. sometimes pain makes one want to talk - sometimes withdraw. it can be an ongoing discussion when you want distraction.

:)
 
Date: 3/7/2010 9:10:00 PM
Author: whitby_2773

Date: 3/7/2010 8:57:28 PM
Author: LostSapphire
Hi Whitby and FlyGirl.

Thanks for keeping me company. I''m having a rough go tonight. It hurts so bad.


Whitby, the problem with the meds, is when I''m clearheaded, it hurts and I regret going off them. When I''m stupid and dopey and non-functional, I regret taking them ''cause I forget what this pain feels like. It takes 6 to 8 weeks to titrate up to a dose level that works. So it''s not like I can just pop a percocet or two....If tonight I decided to bump the meds back up to where they''re working on the Monster, it would be sometime in April before relief.


I''m going to go and stick an icepack on my face. Will get back to the jewellery discussion later, ok? Can''t focus right now.
Click to expand...


hi LS

yes, i understand. it took my partner''s friend months to ramp up to suitable pain relief levels; the meds doses were so high - there was no way to just switch it on and off.

chat about jewelry whenever it suits you. sometimes pain makes one want to talk - sometimes withdraw. it can be an ongoing discussion when you want distraction.

:)
Click to expand...
It''s like, I can''t focus tonight. I''ve been working on distracting myself for the past 3-4 nights, and tonight nothing is working. GRRRRR
ok here goes. I''ll pour the tea. Milk and sugar for you?
Yes, I think the pendant is going to be amazing. Once I realized that the first stone was so small, I dug through my dresser and found a pair of .75ctw studs that I havent'' worn in a long time. So they can go into the pendant, along with the 10pointer melee stones (I have 10 of those in a channel set eternity band that I don''t wear either).

If the pics come back looking good from the vendor at Lightening Ridge I''ll order it and play with the stones/design once it gets here. The vendor is going to take some IRL shots on the back of her hand so I can get a true idea of the colour of the stone. Opals are so hard to photograph. The first stone is gorgeous but I think too small. Going to hang on to it though until the other one comes. Who knows, maybe I can incorporate that into the pendant too?
woo hoo I just had an original thought.

I started the blueberry project wanting to replicate the original ring. It evolved as I lurked on PS, and, was then really sorted out once I had found the stone. I really love it. And the process was fun too.

So this new opal thing is good for my brain. I like designing and working with shapes, so FlyGirl''s pendant is giving me inspiration. (Thank you FlyGirl, for the extra pics!). The opal vendor has just sent me a few other photos of other stones which have me thinking. There''s an amazing marquise shape with stunning colour....decisions, decisions..

Whitby, thanks for joining me for tea. I''m off to bed as 5 a.m. comes early tomorrow and I have a roller coaster day at the office. And thanks for helping with the distractions.
Losty
 
Thanks for bumping up your thread, Lostie. I didn''t realize that the surgery didn''t work. I am so very sorry
39.gif
When pain medications don''t help, it''s so difficult to get through the day. I wish there was something I could do to help you, my friend. The energy it takes to live with pain doesn''t leave much for anything else, yet you manage to live your life. I really admire you for that. You are a role model for me. You even manage to mangle Mr. Lostie''s smalls!! I''m up late most nights. If you need to talk, just give a heads up. I know what you mean about feeling like a loser, but you are not. This is something that happened to you and you are doing the best you can with it. Just keep on posting. You are not alone
emlove.gif
 
Date: 3/7/2010 8:09:30 PM
Author: LostSapphire
I need to whine.
emcry.gif


It hurts really bad. I feel like I need 5 root canals and have a vise on my jaw. NOTHING touches the pain except the medication that makes me really stupid and slow. I cut back the meds 1/2 way to get some clarity in my brain about 3 weeks ago.

The days my brain is clear I''m happy to think I did it.
Days like today when the pain is screaming I''m sorry I did.

Distraction works for a while but the monster doesn''t want to be quiet.

Thanks for letting me wallow.
LS
Click to expand...
Oh heck Lostie, the one night I don''t have my laptop on my lap, because I''m watching the oscars. Lordy that was so much like a root canal I am setting a reminder in outlook to remind me not to watch it next year. In fact I think it was your monster doing the presenting this year.

So he''s awake is he, that nasty monster. He needs a good bashing with Linda''s granny bat to slap him back down into place. I tell you, he''s in for a shock, that monster. Because he doesn''t realise who he''s dealing with. He doesn''t realise that he''s taking on the most formidable of opponents. Someone of such immense strength, bravery and fortitude that when he realises, he''s going to cower like a lost puppy, before slinking back into his cave.

I know that tonight that ol'' monster thinks he''s on a roll and he''s doing a little happy dance on your face, and he might have won a small battle tonight, but tomorrow is a brand new day. You are going to get up tomorrow morning and come out of your corner swinging. Marian is going to get up tomorrow and come out of her corner swinging. My Uncle Roger who has just had a relapse after open heart surgery a week ago is going to come out of his corner swinging and all the monsters are going to run for cover and they will know that ultimately, they won''t win.

Your monster won''t win, because you won''t let him win.

My best and more to you Losty, I''m right there in the corner with you - never forget it.

XX
 
thanks Gailey and Marian.
emlove.gif


I''m up. He''s still here too.

We''ll see what the day brings.

LS
 
((HUGS))
 
Mornin'' Losty

I was wondering if you got any sleep last night? Have you managed to go to work today? I shut my computer up last night after I posted because I figured you''d gone to bed and now I feel dumb, because I lay there thinking about you. We could have been chatting. I''ll be in and out today, but I do have a rare break in my hectic social life this evening - Brad''s got to babysit and George has a hangover.

Anyway, here''s a bit of eye candy to cheer you up this morning.

Brad and George.jpg
 
Date: 3/8/2010 11:55:34 AM
Author: Gailey
Mornin'' Losty

I was wondering if you got any sleep last night? Have you managed to go to work today? I shut my computer up last night after I posted because I figured you''d gone to bed and now I feel dumb, because I lay there thinking about you. We could have been chatting. I''ll be in and out today, but I do have a rare break in my hectic social life this evening - Brad''s got to babysit and George has a hangover.

Anyway, here''s a bit of eye candy to cheer you up this morning.
Click to expand...
Hi Gailey.

Yes, I slept ok. The strange thing with this brain/nerve thing, is the minute I go to sleep, the pain stops...so If I could just sleep 24/7 everything would be ducky.

Thanks for the eye candy.

Today wasn''t too bad, yes, I did go in to work, then to a funeral this afternoon. The pain is maybe not so bad (my ''distraction theory'' usually works).

It''s weird, every once in a while it gets the better of me and I feel so ALONE and miserable. Knowing there are people here on PS willing to keep me comfortable till I wallow through the episode, means so much.

Thank you.
LS
 
Date: 3/8/2010 10:37:21 AM
Author: geckodani
((HUGS))
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Thanks Gecko.
emlove.gif


LS
 
Date: 3/8/2010 6:31:30 PM
Author: LostSapphire

Date: 3/8/2010 11:55:34 AM
Author: Gailey
Mornin'' Losty

I was wondering if you got any sleep last night? Have you managed to go to work today? I shut my computer up last night after I posted because I figured you''d gone to bed and now I feel dumb, because I lay there thinking about you. We could have been chatting. I''ll be in and out today, but I do have a rare break in my hectic social life this evening - Brad''s got to babysit and George has a hangover.

Anyway, here''s a bit of eye candy to cheer you up this morning.
Click to expand...
Hi Gailey.

Yes, I slept ok. The strange thing with this brain/nerve thing, is the minute I go to sleep, the pain stops...so If I could just sleep 24/7 everything would be ducky.

Thanks for the eye candy.

Today wasn''t too bad, yes, I did go in to work, then to a funeral this afternoon. The pain is maybe not so bad (my ''distraction theory'' usually works).

It''s weird, every once in a while it gets the better of me and I feel so ALONE and miserable. Knowing there are people here on PS willing to keep me comfortable till I wallow through the episode, means so much.

Thank you.
LS
Click to expand...
Now that is very, very interesting. What does your neuro say about that? Whenever I''ve had serious pain (still not in your league), it has interrupted my sleep pattern no end.

Maybe one day there will be a way to trick the part of your brain that''s responsible for the pain into thinking it''s asleep.
 
I''m just checking in on you. I''ll take a look at this thread later to see how you are doing.
 
Date: 3/8/2010 6:48:03 PM
Author: Gailey

Date: 3/8/2010 6:31:30 PM
Author: LostSapphire


Date: 3/8/2010 11:55:34 AM
Author: Gailey
Mornin'' Losty

I was wondering if you got any sleep last night? Have you managed to go to work today? I shut my computer up last night after I posted because I figured you''d gone to bed and now I feel dumb, because I lay there thinking about you. We could have been chatting. I''ll be in and out today, but I do have a rare break in my hectic social life this evening - Brad''s got to babysit and George has a hangover.

Anyway, here''s a bit of eye candy to cheer you up this morning.
Click to expand...
Hi Gailey.

Yes, I slept ok. The strange thing with this brain/nerve thing, is the minute I go to sleep, the pain stops...so If I could just sleep 24/7 everything would be ducky.

Thanks for the eye candy.

Today wasn''t too bad, yes, I did go in to work, then to a funeral this afternoon. The pain is maybe not so bad (my ''distraction theory'' usually works).

It''s weird, every once in a while it gets the better of me and I feel so ALONE and miserable. Knowing there are people here on PS willing to keep me comfortable till I wallow through the episode, means so much.

Thank you.
LS
Click to expand...
Now that is very, very interesting. What does your neuro say about that? Whenever I''ve had serious pain (still not in your league), it has interrupted my sleep pattern no end.

Maybe one day there will be a way to trick the part of your brain that''s responsible for the pain into thinking it''s asleep.
Click to expand...
That is a fairly typical symptom of ''Atypical'' Trigeminal Neuralgia. If I could only sleep all day!

LS
 
Date: 3/8/2010 8:38:23 PM
Author: risingsun
I''m just checking in on you. I''ll take a look at this thread later to see how you are doing.
Click to expand...
Hi Marian

Thanks for the check in. I''m not ''in extremis'' like the past 4 days. Maybe a 6 or a 7 instead of a 9. Let''s hope for a remission.

LS
 
Date: 3/8/2010 8:54:23 PM
Author: LostSapphire

Date: 3/8/2010 8:38:23 PM
Author: risingsun
I''m just checking in on you. I''ll take a look at this thread later to see how you are doing.
Click to expand...
Hi Marian

Thanks for the check in. I''m not ''in extremis'' like the past 4 days. Maybe a 6 or a 7 instead of a 9. Let''s hope for a remission.

LS
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I''m hoping that you have a remission, too.
 
Date: 3/8/2010 11:09:53 PM
Author: risingsun

Date: 3/8/2010 8:54:23 PM
Author: LostSapphire


Date: 3/8/2010 8:38:23 PM
Author: risingsun
I''m just checking in on you. I''ll take a look at this thread later to see how you are doing.
Click to expand...
Hi Marian

Thanks for the check in. I''m not ''in extremis'' like the past 4 days. Maybe a 6 or a 7 instead of a 9. Let''s hope for a remission.

LS
Click to expand...
I''m hoping that you have a remission, too.
Click to expand...
Thanks, Marian, for keeping me company.

In part, I''m glad (?) to have experienced the recent pain, as I see a facial pain specialist next week. The guru neuro for failed surgeries. I was afraid I''d be pain free that day and sound like a nut.

How crazy does that sound?!

LS
 
Hows tricks my friend?

I have news. Looks like you and I may be neighbours before the year is out. Mr G is being transferred to Ontario. Markham is where his office will be.

Right now the only glimmer of a positive vibe is that I will be closer to you and might be able to get a mangle! Everything else about it sucks big time.

I hope that monster is behaving himself. You can tell him from me that Gailey the monster slayer is on her way.

Thinking about you hon, you''ve been a might too quiet these last few weeks.

XXX
 
Losty~hoping that you check this thread and know that we are thinking of you. If you are able, can you let us know how you are doing? We miss you and send our
emlove.gif
 
Just thinking of you too.
 
Hi there my friends.
Thank you for keeping tabs on me. I'm doing reasonably well, actually. There seem to be fewer "monster face attack" days (maybe every 7-8 days now). And the days in between, things are somewhat steady. For those of you who deal with pain, let's say the in between days are at about a 5-6, which is pretty tolerable for me. Monster days...well, they're off the scale.

It seems to be a fine balance between enough meds to keep the severe pain away, vs too much that makes me stupid. So far, the mix is good. I'm concerned a bit as to how long I can stay at this level, but maybe I'll just ride along until things change up again.

LS
 
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