I just wanna say -- the random comments thread

[VapidLapid]

it i not goo to pill a little tea on your laptop keyboar .

 

[justginger]

it i not goo to pill a little tea on your laptop keyboar .

I was trying to figure out what you wrote in the fawn thread - now I understand! It will be the next form of Pig Latin in no time.

 

[justginger]

VRB, I didn't see you post previously -- I am very sorry for your loss. I hope your happy memories bring you comfort.

 

[VapidLapid]

JG, thank you for the inightful tranlation. Only one letter doent work now, and two number and a forwar la h or que tion mark. For the time being when I need it and remember I try to find one in ome text, and copy and paste it like that. It would be tediou , but I dont get much computer time these days anyway

sO is six months into a trial of fulvestrant with everolimus, with ALL the possible side effects and more. More alarming is that after 30 months of Xgeva she now has ONJ. We are going to a specialist for that on monday

 

[TooPatient]

Missy --

Just saw your post about respiratory infection and thrush. Feel better! I hope you are somewhere you can enjoy some quiet relaxation as you recover. I'm not familiar with oil pulling, but I do know that the traditional non-western treatments can sometimes be far more effective than the standard stuff doctors do. Still thinking good healthy thoughts for you

 

[iLander]

JG, thank you for the inightful tranlation. Only one letter doent work now, and two number and a forwar la h or que tion mark. For the time being when I need it and remember I try to find one in ome text, and copy and paste it like that. It would be tediou , but I dont get much computer time these days anyway

sO is six months into a trial of fulvestrant with everolimus, with ALL the possible side effects and more. More alarming is that after 30 months of Xgeva she now has ONJ. We are going to a specialist for that on monday[/quote]

Hi Vapid,

This sounds awful, and I understand it's extremely painful side effect. So sorry to hear this, please tell your partner that dust is on it's way from me.

I hope you guys are doing okay . . . you're in my thoughts . . .

 

[iLander]

Missy --

Just saw your post about respiratory infection and thrush. Feel better! I hope you are somewhere you can enjoy some quiet relaxation as you recover. I'm not familiar with oil pulling, but I do know that the traditional non-western treatments can sometimes be far more effective than the standard stuff doctors do. Still thinking good healthy thoughts for you

Wait, what? Did Missy finally get a diagnosis? All these months of pain, what the heck was it?

 

[TooPatient]

Missy --

Just saw your post about respiratory infection and thrush. Feel better! I hope you are somewhere you can enjoy some quiet relaxation as you recover. I'm not familiar with oil pulling, but I do know that the traditional non-western treatments can sometimes be far more effective than the standard stuff doctors do. Still thinking good healthy thoughts for you

Wait, what? Did Missy finally get a diagnosis? All these months of pain, what the heck was it?

She posted in the oil pulling thread that she is having additional issues due to her weakened immune system. A respiratory infection and thrush

She's had so much going on I just wanted her to know I'm still thinking of her... but hoping she is enjoying her vacation and not just browsing here!

 

[tyty333]

VRB, I am so sorry for your loss. Her quilt is truly a piece of art and such a wonderful heirloom to be passed down over
the generations.

 

[VRBeauty]

justginger and tyty333: Thank you for your caring thoughts.

Spent the evening going over bank statements, figuring out what my father's finances will look like without my mother's pensions. Suffice it to say I now have a much better understanding of my mother's frugality.

 

[Dancing Fire]

VR, just read the post about your mother have passed away. My deepest sympathy to you and your family.

 

[VapidLapid]

Missy, try chewing fresh thyme and lots of it for the thrush. maybe even infuse it into some oil if you try the oil thinggy. sorry to hear you are going through this.

 

[VRBeauty]

DF, thank yo for your kind thoughts.

When I get back to Sactown I'll resume my practice of keeping an eye out for that watch.

Missy - I'm sorry to read of this latest setback. I hope you get some relief - and a return to your normal good health - soon.

 

[Calliecake]

Missy, I'm new to posting but have been lurking for the past few months. You seem like such a kind and thoughtful person. I am so sorry you've had to endure these health issues and sincerely hope the doctors get to bottom of these issues soon. It has to be draining emotionally for you while you wait for answers. Many times just knowing exactly what's wrong and having a recovery plan in place can make a huge difference.

VB, My deepest sympathy to you and your family on the loss of your mom.

 

[Kelinas]

Every 14 days, I go and give either a double or a triple platelet donation depending on my count for the day.
I donate to a specific girl, something about the antigens matching perfectly.

Well, after 6 months of donating, I just got the call from her mom
H is going home for good! No more chemo. No more platelet transfusions!

Eeeeee!
Made my day!

Also on my mind.
3.5 weeks post - LASIK. Never thought I'd say this, but I kinda miss my glasses!

 

[chemgirl]

VB, I'm sorry to hear about your mother. Her artwork is beautiful.

Kelinas, I'm going for Lasik on Friday. How was it?

 

[Kelinas]

I LOVE IT!

I did a all laser iFS LASIK. No blades.
Testing took about 90 minutes.
Then I was taken to the surgical floor, where they covered my face and numbed my eyes.
Start to finish, it took about 7 minutes. No pain! Just immense, indescribable pressure and the odd creepy smell of your eyes burning.

I regret not doing it sooner. If I had more time, I would have definitely gone the Lasek route, but I had to fit my procedure in during a surprise trip to see my parents.

Being done in Korea, there was no consultation fee. Walked in, tested. Paid and boom!
Procedure cost 1500. All the eye drops (since I got 3 months worth) cost me about 300.
Yay


One downside. Since my eyes are still healing, I find that I'm a bit farsighted. It (jussssst slightly) hurts to focus on small things. I was told it's because my pupil still can't constrict properly because the healing process. Other than that, I have halos at night, but its not bad.

 

[tyty333]

Every 14 days, I go and give either a double or a triple platelet donation depending on my count for the day.
I donate to a specific girl, something about the antigens matching perfectly.

Well, after 6 months of donating, I just got the call from her mom
H is going home for good! No more chemo. No more platelet transfusions!

Eeeeee!
Made my day!

Also on my mind.
3.5 weeks post - LASIK. Never thought I'd say this, but I kinda miss my glasses!

Wow! Some of the things that PS folks are willing to do really amazes me! I hope you feel
really proud of yourself for making a difference!!!

 

[manderz]

VB, I'm sorry to hear about your mother. Her artwork is beautiful.

Kelinas, I'm going for Lasik on Friday. How was it?

I just had it 2 months ago. It's been awesome!!

Surgery was scarier than I thought, but recovery was much easier! I had literally no pain at all, and no discomfort. My vision has been 20/20 since a few days after, though I have halos and it still fluctuates a bit. I paid more for surgery, double, in fact, but I'm in New York. My drops were covered by my insurance, so I just had a small copay. Hubby filmed mine, and he said it was about 9 minutes from walking in to back out again.

Do you have any questions about it?

 

[chemgirl]

Manderz, I don't "think" I have questions. I'm sure there are a million things I should be asking.

I went for a few free consults and decided on the company that actually has real optometrists as the testing/coordinator people. Also better surgeons since its affiliated with a University. Expensive, but the level of professionalism is helping me to keep calm.

Its the all laser one with the custom wavefront.

I'm really freaked out about the weird feelings during the procedure. I hate anything near my eyes!

Glad to hear that your recovery is going well.

 

[VapidLapid]

Kelinas, I really admire that you are so generous and kind to give platelets even once, let alone for six months!!
That is an awesome act, and an awesome gift. Deep kudos to you!


eta: iLander thank you for your kind words and good thoughts!

 

[manderz]

Manderz, I don't "think" I have questions. I'm sure there are a million things I should be asking.

I went for a few free consults and decided on the company that actually has real optometrists as the testing/coordinator people. Also better surgeons since its affiliated with a University. Expensive, but the level of professionalism is helping me to keep calm.

Its the all laser one with the custom wavefront.

I'm really freaked out about the weird feelings during the procedure. I hate anything near my eyes!

Glad to hear that your recovery is going well.

I had the traditional LASIK where they use the blade. With the numbing drops, all I felt was a bit of pressure from the suction, and the drops dripping down the sides of my face. I could see what they were doing, but couldn't feel a thing. I don't think you will have to have the pressure, if you're going with all laser.

I was terrified for exactly what you said, I can't stand the thought of anyone else near my eyes, but it was over so quickly, I decided even if it was torture, I could live through anything for 10 minutes. Well, it kinda sucked, but it was far from torture. I just got myself really worked up. Your vision is important, so putting it "at risk" is scary! It was by far the best decision I made for myself, and I wish I'd done it years ago!

One thing that I wasn't prepared for was being overwhelmed during the surgery. There was a woman who ushered me around, the doctor performing surgery and stating commands/etc for another guy, who I think was dictating the note as the surgery progressed, and another guy trying to comfort me and tell me how things were going, plus I felt like I was getting rushed a bit. I felt like I could have used an additional minute between eyes, and another moment before I sat up after. The 3 people talking all at once, plus what I was seeing and going through was very overwhelming.

 

[Kelinas]

Manderz, I don't "think" I have questions. I'm sure there are a million things I should be asking.

I went for a few free consults and decided on the company that actually has real optometrists as the testing/coordinator people. Also better surgeons since its affiliated with a University. Expensive, but the level of professionalism is helping me to keep calm.

Its the all laser one with the custom wavefront.

I'm really freaked out about the weird feelings during the procedure. I hate anything near my eyes!

Glad to hear that your recovery is going well.

I had the traditional LASIK where they use the blade. With the numbing drops, all I felt was a bit of pressure from the suction, and the drops dripping down the sides of my face. I could see what they were doing, but couldn't feel a thing. I don't think you will have to have the pressure, if you're going with all laser.

I was terrified for exactly what you said, I can't stand the thought of anyone else near my eyes, but it was over so quickly, I decided even if it was torture, I could live through anything for 10 minutes. Well, it kinda sucked, but it was far from torture. I just got myself really worked up. Your vision is important, so putting it "at risk" is scary! It was by far the best decision I made for myself, and I wish I'd done it years ago!

One thing that I wasn't prepared for was being overwhelmed during the surgery. There was a woman who ushered me around, the doctor performing surgery and stating commands/etc for another guy, who I think was dictating the note as the surgery progressed, and another guy trying to comfort me and tell me how things were going, plus I felt like I was getting rushed a bit. I felt like I could have used an additional minute between eyes, and another moment before I sat up after. The 3 people talking all at once, plus what I was seeing and going through was very overwhelming.

Nope. Definitely had a lot of pressure when I got mine done.
For a minute, it kinda felt like they were trying to burst my eyeball like a grape.
Once again, not painful but definitely a bit uncomfortable.

The first days light sensitivity SUCKED though. I took the subway home instead of staying in a hotel near the clinic
And got shocked once the anesthetic wore off and I couldn't open my eyes. Lol.
In the states, they make sure someone takes you home (aka you can't drive yourself)

 

[Kelinas]

Thanks Tyty and VL. It does feel very fulfilling.
I've visited H a bunch of times (visits with toys on christmas, a PICC line cover for her arm, custom crocheted by yours truly )
She's a ball of energy, so full of life and enthusiasm; she tends to snap me back to reality.

I look forward to hopefully staying in touch with her mother, who has been wonderful and so strong throughout this.
Either way, it made my day.

I'm at 19/35 (19platelet donations with the current blood center/ 35 all together between South Korea, Georgia and Florida)
Trying to hit the 100 mark. About 2.5 years to go

 

[missy]

Thank you for that info Vapid. I had no idea and will be getting fresh thyme tomorrow! I convinced the doctor to give me an oral anti fungal yesterday because the Nystatin rinse wasn't doing much for me but I much prefer the non invasive thyme remedy. I also bought organic sesame oil to do the oil pulling Phoenix posted about so hopefully it will help. Thanks so much.

Thank you VRBeauty. I am thinking of you and your family and hoping you are doing OK. Keeping you in my thoughts and prayers.

Calliecake, welcome to PS and thank you for your lovely comments.

Thank you for continuing to think of me TooPatient. I feel the same and sometimes traditional medicine can do more harm but it's hard to know when that is the case. We were at our favorite jewelry store in Lambertville yesterday and we were chatting about all this with one of the women there (she knows everything that has been going on with me) and she was telling us that one of her customers who is a well respected and well known physician told her that we should stay away from doctors. They'll end up killing you. LOLOL. I mean I know he was sort of kidding but I also know that there is a significant element of truth in that statement that he sincerely meant. You just have to know when it's right and when the treatment is not right. And that's not always clear to either the patient or the physician.

Hi iLander, hope you are doing well and don't let anyone irritate you. Just ignore ignore ignore. It's a mental health mantra that works.

Kelinas, way to go!!! You are amazing!

 

[Efe]

Missy, I have only seen bits and pieces of your story on your medical issues, but wanted to pipe in and ask if you have been tested for Lymes Disease? If not, it would be worth it to have your doctor do the western blot (NOT the Elisa). The Elisa has too many false negatives. Lymes is the great masquerader and can cause many seemingly unrelated symptoms.

The other thing that came to mind is SIBO (small intestine bacterial overgrowth).

Forgive me if I am off base and you have already explored these ideas. I so wish better health for you very soon.

 

[aljdewey]

VR, I don't check this thread very often, but I'm so so very sorry to learn of the loss of your mother. I'm sure one of the things she knocked out of the park was raising a really strong and capable daughter, and your dad's lucky to have your help in piecing together his path forward.

Hugs to you.

 

[distracts]

1. After reading about your LASIK experiences, omg I am never doing that. I always think about it but... I can't even stand the thing during eye appointments where that little thing comes way close to your eye.

2. I just signed up for the GIA Diamond Essentials online course! It's the one you need to take before the diamond grading one. I am pondering doing the whole GG course, and the booklet says they recommend the diamond ones before the colored stone ones so. Should be interesting! Dunno what I'd DO with it all but I'm burned out on campaigns and otherwise just housewifing at the moment, which is kinda dull. Of course, they ask when you register for your high school graduation date - who even REMEMBERS that!? Took forever to dig up my diploma to find it, lol.

 

[missy]

Missy, I have only seen bits and pieces of your story on your medical issues, but wanted to pipe in and ask if you have been tested for Lymes Disease? If not, it would be worth it to have your doctor do the western blot (NOT the Elisa). The Elisa has too many false negatives. Lymes is the great masquerader and can cause many seemingly unrelated symptoms.

The other thing that came to mind is SIBO (small intestine bacterial overgrowth).

Forgive me if I am off base and you have already explored these ideas. I so wish better health for you very soon.

Thank you Effe, I appreciate your input.
My internist thinks it unlikely that I have lyme but did a number of tests on me that would have indicated warning signs that he should do further testing regarding that but definitely worth exploring again and I am actually seeing him Tuesday so will ask again about that. As for SIBO I did ask my esophageal specialist about that and cannot remember what he did but I am eating as if I do have SIBO trying to fix/heal myself that way if I do. Thanks again for weighing in and for your good wishes

 

[Kelinas]

1. After reading about your LASIK experiences, omg I am never doing that. I always think about it but... I can't even stand the thing during eye appointments where that little thing comes way close to your eye..

Whyyyyy?
Like you, I had an extreme dislike for anything near my eyes. Couldn't do contact lens because, well duh, couldn't put the suckers in!
But.
After paying thousands of dollars for glasses, I decided I've had enough (for at least a decade or two)

Only regret is I didn't do it sooner!