risingsun
Ideal_Rock
- Joined
- Dec 19, 2006
- Messages
- 5,549
Re: Getting older isn't so bad when you consider the alterna
Good grief, Gemgirl!! Nothing is ever straightforward with you. I wasn't aware of the complexity of your fibro. I want to wrap you up in warm blankets and make your pain go away. You are always in my thoughts and prayers. Please stay strong. I know you will. {{{{{Gemgirl}}}}}
gemgirl said:soocool said:Good morning ladies! It is wet here in upstate NY today. Coming home tomorrow night. sspending the day in Corning and going to the Corning Museum of Glass. Got the whole day and so why not and blow some glass of my own.
I want to share something with all of you who have fibromyalgia. I met a woman here who has fibro for at least 10 years. A few years ago she found another doctor who has put her on Antibiotic Protocol and since then she has never felt better. I wanted to share this with all of you so that you are informed about this treatment . She also told me about this site: http://www.roadback.org/
Just something that I wanted you all to know so that you can be an advocate in your own treatment.
Antibiotics may have worked on your friend because she had an underlying disorder causing the widespread body pain. There is Primary Fibromyalgia that either comes out of nowhere or developes from a prolonged stress, or comes about as a result of something like an accident or an injury; and then there's Secondary Fibromyalgia that happens for reasons outside of the most common causes.
I have an exceedingly rare form of Fibromyalgia, diagnosed fifteen years ago, but I've had it for at least two decades. I have "Fibromyalgia Secondary to PolyEndocrinopathy". PolyEndo is the failure of two or more endocrine systems. PolyEndo is the rare part, but in theory, since I have Thyroid disease, Adrenal disease and ovarian disease(Stein Leventhal syndrome), if all of these were treated with meds (which they are), my pain should have been reduced to a very tolerable or non-existant level. But that never happened for me.
Your friend is very lucky that whatever her underlying disorder was, it responded favorably to antibiotic therapy.
All that gobble-de-gook aside, how are you doing soocool?
Good grief, Gemgirl!! Nothing is ever straightforward with you. I wasn't aware of the complexity of your fibro. I want to wrap you up in warm blankets and make your pain go away. You are always in my thoughts and prayers. Please stay strong. I know you will. {{{{{Gemgirl}}}}}