Asscherhalo_lover|1419079950|3804685 said:Thank you all for the dust! I was admitted to the hospital yesterday after my neurology appointment. So far I have had a lot of bloodworm and a CT scan. An MRI and an LP are on the way. No one has told me anything yet except that I have the issue in both eyes, it's just worse on the right. I should know more at some point today. Thank you all again for the positive thoughts!
Asscherhalo_lover|1419131975|3805096 said:Thank you all again! I ended up having the LP today which was pretty awful and I required a Xanax to lay through the procedure. Once it was over I had to lay flat for an hour and then I was immediately taken for the MRI. Another very unique unpleasant test, 45 minutes of a construction zone around my head squeezed into a tube just after a LP. When I was finally back to my room I started to really feel the pain from the LP since the local wore off. Horrible pain. Ice bags and Motrin have helped some. The one good thing my vision seems to be improving! I'll take the pain gladly if it means I'm going to regain my vision. So it's looking like intracranial hypertension aka pseudo tumor is the cause. I'll hopefully know for sure sometime tomorrow and then be able to develop an action plan. Thank you all again for your kind wishes and support!
TooPatient said:Asscherhalo_lover|1419131975|3805096 said:Thank you all again! I ended up having the LP today which was pretty awful and I required a Xanax to lay through the procedure. Once it was over I had to lay flat for an hour and then I was immediately taken for the MRI. Another very unique unpleasant test, 45 minutes of a construction zone around my head squeezed into a tube just after a LP. When I was finally back to my room I started to really feel the pain from the LP since the local wore off. Horrible pain. Ice bags and Motrin have helped some. The one good thing my vision seems to be improving! I'll take the pain gladly if it means I'm going to regain my vision. So it's looking like intracranial hypertension aka pseudo tumor is the cause. I'll hopefully know for sure sometime tomorrow and then be able to develop an action plan. Thank you all again for your kind wishes and support!
Great to hear your vision is improving! That is great news.
Continuing to send you lots of dust and hugs.
Asscherhalo_lover|1419393990|3807085 said:Thank you for ththe continued well wishes. I am still in the hospital and the LP from hell ruled out the psuedo tumor. I have had many more blood tests since then and an additional optical nerve MRI. Still waiting for answers.
Asscherhalo_lover|1419533666|3807641 said:Well I got home yesterday at about 4pm. The LP had made me horribly sick, really bad headaches and virtually non-stop vomiting and nausea for three days. I finally had my last MRI on the 23rd and then had a blood patch for the leaking LP on the 24th and was able to go home. Even though my LP was normal opening pressure some of the neurology Drs still think it might be psuedo tumor just because my vision improved after the LP. I also had some off results with my bloodwork though, specifically high ANA numbers and WBC so I've been referred to rheumatology for a possible autoimmune problem as well. Basically everything is still going to be more testing until we have some kind of explanation but until then the real frights of a brain tumor, aneurysm, or stroke have been crossed off the list so all is well.
It's odd, those 6 days and 5 nights in the hospital feel like they never happened now that they're over. It was almost like an out of body experience for me, like it happened to someone else and I was just watching. I'M relieved to have it all behind me and hope to find some solid answers and treatment going forward. Thank you all for the dust and thoughts, it really helped me when I was ill and mostly alone to know that you were all rooting for me. PS is a wonderful place!
Merry Christmas to all of those who celebrate and Happy Newton's Birthday as well!