- Joined
- Feb 12, 2011
- Messages
- 4,807
Smith no worries.. I may have read it wrong.. just saying.. it's a sparkler, no light being blocked by the halo which is also a sparkler..it will blind you.
Thank you for asking about DD and the news is actually there's a lot going on. We went for our second opinion and that is what we got. We are now headed down a short path to rule out Non-idiopathic Scoliosis. The Orlando surgeron ordered an MRI because she has "pain" which is not common in Scoliosis unless it is brought on by "Syringomyelia". This disorder causes fluid to pocket in the spinal cord and then it causes Scoliosis. The key here.. is it's linked to "Positional Plagiocephaly" which DD had when she was about 5 months old. (Laymen's terms it's when the flat spot doesn't become not flat and as the brain grows the head will become mis-shapened if it's not corrected because the sutures are closing) She wore a helmet for 6 months to correct it. If the MRI is positive we take a totally different route for now, which is to see a Nerosurgeon and schedule a less invasive surgery and then wait to decide on the other surgery. For now our date is still 8/30 but the MRI could change our path. If it's negative, then 8/30 will be a go and we will move forward as planned.
DD is calm as a cucumber while her mother is calm one minute and manic the next. She is certain she wants the corrective surgery while I'm on the fence now where I was on her side prior to the second opnion. I hadn't started a thread yet because we don't really know.. but the bottom line is... PLEASE.. get a second opinion and a third if you need it.. it's so important to completely 100% understand your options and ALL the possibilities. I thought we would roll into the second doctor's office and hear the exact same thing we were hearing from doctor #1... this couldn't be farther from what we heard.
My peace of mind right now is knowing I am doing absolutely everything I can do for my daughter. This is not life or death and we have options. We are thinking through our options and learning as we go. Lots of friends are praying for us and DD is happy and healthy and having a great summer. She just spent three weeks at a summer camp, got her braces off and is excited about her 15th birthday. She's getting a beautiful pair of OEC studs from The Jewelry Whipserer (JbEG) and she is over the moon about the trip to Chicago and going to the Art Institute. In the whole scheme of things she's a normal teenager facing a few challenges that we can overcome!
Thank you for asking about DD and the news is actually there's a lot going on. We went for our second opinion and that is what we got. We are now headed down a short path to rule out Non-idiopathic Scoliosis. The Orlando surgeron ordered an MRI because she has "pain" which is not common in Scoliosis unless it is brought on by "Syringomyelia". This disorder causes fluid to pocket in the spinal cord and then it causes Scoliosis. The key here.. is it's linked to "Positional Plagiocephaly" which DD had when she was about 5 months old. (Laymen's terms it's when the flat spot doesn't become not flat and as the brain grows the head will become mis-shapened if it's not corrected because the sutures are closing) She wore a helmet for 6 months to correct it. If the MRI is positive we take a totally different route for now, which is to see a Nerosurgeon and schedule a less invasive surgery and then wait to decide on the other surgery. For now our date is still 8/30 but the MRI could change our path. If it's negative, then 8/30 will be a go and we will move forward as planned.
DD is calm as a cucumber while her mother is calm one minute and manic the next. She is certain she wants the corrective surgery while I'm on the fence now where I was on her side prior to the second opnion. I hadn't started a thread yet because we don't really know.. but the bottom line is... PLEASE.. get a second opinion and a third if you need it.. it's so important to completely 100% understand your options and ALL the possibilities. I thought we would roll into the second doctor's office and hear the exact same thing we were hearing from doctor #1... this couldn't be farther from what we heard.
My peace of mind right now is knowing I am doing absolutely everything I can do for my daughter. This is not life or death and we have options. We are thinking through our options and learning as we go. Lots of friends are praying for us and DD is happy and healthy and having a great summer. She just spent three weeks at a summer camp, got her braces off and is excited about her 15th birthday. She's getting a beautiful pair of OEC studs from The Jewelry Whipserer (JbEG) and she is over the moon about the trip to Chicago and going to the Art Institute. In the whole scheme of things she's a normal teenager facing a few challenges that we can overcome!