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Anyone have experience with childhood tics?

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MichelleCarmen

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*** This turned out a lot longer than expected. . .thanks to those who make it through!***

About my son: he just turned 9 and he''s in 3rd grade.

When we lived in our last home (a year and a half back. . .we lived there for a few years then moved to a condo/townhome for one year and now are in a house again - all w/in a few miles - kids stayed in same school). . .my older son began blinking a lot. There was panic among family members that he had a tic. Rather than rushing him off to the neurologist, we took him to an allergist and skin pricks showed he has allergies to dogs and dust mites. In our home, we spent $1K on new carpeting in his room and the hall, bought special covers for his bed/pillow and I began washing all his bedding in hot water. That combined with antihistamines, the blinking pretty much stopped. It began again while we lived in the townhome and again we gave him allergy meds and it stopped. Now, the third summer, here in our current home, it began over the summer however the medications - including a nasal spray - weren''t able to entirely control this and it''s not gone away. Clearly it is partly seasonal so he must have other allergies (and I''m sure the woman who lived her before us had a dog). . .

The problem is that often parents say their child must have allergies and there can be confusion re: what is an allergy and what is a tic. Luckily we found evidence to support the blinking as symtomatic of allergies and we never proceeded to a neurologist. Now, he''s begun shaking his head back in forth in almost a spasm-like fashion and when he does it, he lifts his hands up by his neck, so the whole style of movement implies a child experiencing a moment of excitment.

He says it''s because he''s excited, but he isn''t able to control it and it comes and goes, but when it''s there, it''s constant.

Yesterday, after school, I took him in for his yearly check-up and the dr. said tics are common in children and to a) not mention it to him - never ask him to stop and b) come back in three months if his motions haven''t changed and she''ll give us a referal to a neurologist and c) come directly in if he begins having uncontrollable vocal tics (such as swearing or saying innappropriate things).

The only change in his life since the recent movement tic began is that he''s ended his fall sports season. He starts swimming in a few weeks, twice a week after school, and then we can see if that helps.

All the moms I''ve brought the blinking up to have said they''ve noticed it. The only ones I''ve talked to are friends of mine and I feel comfortable talking to them. . .a few of the kid have asked my son why he is blinking. Now the head shaking is going to be extremely obvious WHEN he gets into that mode and I''m worried he''ll do it at school. He has plenty of friends and the blinking hasn''t resulted in any teasing, but with the shaking. . .I''m not so sure.

Anyone have advice or experience?
 
My stepson has tics-they''re hereditary in DH''s family, so he has facial spasms relatively often. He also has mild vocal tics (and to be clear, vocal tics aren''t just saying inappropriate things. My SS clears his throat constantly, and sometimes he does this high-pitched squeak that only lasts about a nanosecond). The doctor told us that, just like his father and grandmother, he''d outgrow them so not to worry about them unless they start to interfere with his normal routine. As for other kids making fun of him, get over it.
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I say that harshly just teasing you, not to be mean, but seriously, kids will always find something to tease each other about--if your child was the epitome of perfection, he''d get teased for being perfect. We''ve worked hard at teaching the kiddo to not take himself too seriously and to let things roll off his back, so to speak. I overheard my sister''s stepson asking him about it once and my stepson replied, "I''m just so awesome, I had to let some of it out somehow" haha! The best thing you can do, in my opinion, would be to not make a big deal about it because it could stress him and make it worse, and should he bring it up, make sure he knows that it doesn''t make him weird or anything, it''s just one of those medical things that some people have and it''s nothing to be ashamed of. I apologize if this was too rambling and not helpful! I just wanted to show some support because I know that it''s a situation that can be stressful (sometimes more stressful for the parent than the kid--they''re so resilient!), and I wish you the best of luck!
 
Thanks. Your response does make things helpful. Luckily he isn''t being teased. His brother didn''t bring it up until I mentioned it. . .and I only did because when it began a few weeks back, I wasn''t sure at first what was going on and asked him to "knock it off." Quickly I quit doing that.

After doing a bit of quick goodling, I found that some kids with tics have behavioral problems and other issues, which my son doesn''t have. He''s well behaved in class (only complaint from teachers is he can be a bit chatty, but a lot of the kids are! - lol). He''s reading at a higher level than his grade, so he seems good academically.

If this goes on for a few months, we''ll survive. I am concerned that the family will freak and go 10X more overboard than I have been about this. Ugh - means more phone calls to be screened.
 
You bring up a great point that I forgot re the behavioral issues. I think a lot of kids with tics, particularly if it''s an exaggerated tic or a vocal one, tend to get labeled as being a behavioral problem because teachers often don''t know how to handle it, and if it''s something that draws other students'' attention away from what''s going on in class, the teacher gets frustrated with the child being a distraction even though the child can''t help it. I highly recommend talking to your son''s teacher so that he/she knows that, should it occur at school, he can''t control it, and he isn''t trying to be a diversion. Any teacher worth their salt will be more than happy to work with your child to make sure that he''s not getting into trouble for something beyond his control and that the situation can be managed smoothly in the classroom. As for your family, I feel ya! My DH is an only child, so SS is the only grandchild, and the whole world revolves around him as far as my in-laws are concerned, but when they seemed concerned about it, we just responded with nonchalance, and since we seemed like we had a handle on it and didn''t think it was a huge deal, they quickly calmed down, too. Wow, that was a long sentence!
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Is this the same one that is still sucking his thumb? I''m wondering if maybe something is bothering him? School issues?
 
My sister had a very bad blinking tic that developed when she was about 9. My parents eventually discovered that she was having some problems with a couple of kids at school - they moved her to a different school and the tic miraculously disappeared.

One thing that immediately sprang to mind reading your post was Tourette''s Syndrome, I don''t know if you have looked at this, but tics are a major part of the syndrome and often happen when the person is excited about something. Certainly your doctor is wondering about it: he''s mentioned the swearing which is a fairly standard feature of Tourette''s.
 
Date: 11/20/2009 4:45:19 PM
Author: Pandora II
My sister had a very bad blinking tic that developed when she was about 9. My parents eventually discovered that she was having some problems with a couple of kids at school - they moved her to a different school and the tic miraculously disappeared.

One thing that immediately sprang to mind reading your post was Tourette''s Syndrome, I don''t know if you have looked at this, but tics are a major part of the syndrome and often happen when the person is excited about something. Certainly your doctor is wondering about it: he''s mentioned the swearing which is a fairly standard feature of Tourette''s.
I was thinking the same thing, Pandora. I had a boyfriend many, many years ago who had Tourettes...his were strictly facial ticks...rapid blinking, little tweeks here and there. Honestly, I never even noticed until he mentioned it casually in passing that he did have TS.

I would adhere to the doctors advice, but don''t let that stop you from maybe getting your son tested...I know it seems like it could be overly cautious, but this is your son and being proactive is never a bad thing when it comes to children, right?
 
MC,
Take him to a Pediatric neurologist. I doubt it''s allergies. But best to know what you are dealing with. Dealing with it sooner than later and being proactive on this , is the best advice I can give you. Good luck, I know it''s scary. The scary thing is not knowing?? KWIM??
I know there are very good treatments out there... HUGS!!!
 
It's not the son sucking his thumb and he did stop. Yahhh. All it took for him to quit his habit was me telling him he is a "big boy," about 10 times per day.

The weird thing is my son's eyes began blinking after he got a spacer/retainer put into the bottom of his mouth. Now, he got his metal expanders for the top of his mouth just last month and then the head shaking started. Could there be a connection? Like an allergic reaction to the metal? I'm a bit worried as he's next getting his braces. What if it is the metal and his physical movements get even worse?

I agree regarding being proactive. That's why we went in so quickly after this began. His dr. just thought it may disappear and by postponing the next step, we may not be providing too much attention. For my insurance I have to get a referal, etc., so we'll go back in.

Again, the metal thing has got me. I'm going to google and see if anyone else has found a similar situation.
 
Date: 11/20/2009 7:04:56 PM
Author: MC
It's not the son sucking his thumb and he did stop. Yahhh.

The weird thing is my son's eyes began blinking after he got a spacer/retainer put into the bottom of his mouth. Now, he got his metal expanders for the top of his mouth just last month and then the head shaking started. Could there be a connection? Like an allergic reaction to the metal?
You won't know till you take him to a pediatric Neurologist. My Son is highly allergic, to just about everything. He had a spacer, and expanders and never had a reaction.

YOU Gotta get him evaluated. You can explain it away... But the problem isn't going away. I say that with all the empathy I have. My daughter came home with a huge bump on her leg. Just a little ole bump!! But to me it looked very odd. Took her to the Doc. The doc said , you better get to Children's hospital , this is serious. Not as in broken bone serious. We had to wait for a bone scan, they feared cancer. Turned out it was Juvenile Rheumatoid arthritis. Because she got diagnosed early, she didn't end up in a wheel chair, or lose her vision, as so many do...She's a healthy happy and very athletic 21 year old. I could have seen that bump and watched it for a while, but that's not my nature. I want to know and the sooner the better so we can deal with it, hopefully with a happy outcome!!!
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Make an appointment tomorrow.
 
Personally, I would pursue several opinions on his condition, and I think since he is 9 you should speak openly with him about it and explain in simple terms why you''re looking into it.

Although I have zero experience with tics and this is based on nothing but merely a personal observation...every person I have known that has had a tic, tourette, stutter or condition of the like have all been extremely intelligent people. I don''t know if there is any research to support this, but there must be some correlation.

Good luck and keep us posted!
 
Date: 11/20/2009 7:16:57 PM
Author: Kaleigh
You won''t know till you take him to a pediatric Neurologist. My Son is highly allergic, to just about everything. He had a spacer, and expanders and never had a reaction.

YOU Gotta get him evaluated. You can explain it away... But the problem isn''t going away. I say that with all the empathy I have. My daughter came home with a huge bump on her leg. Just a little ole bump!! But to me it looked very odd. Took her to the Doc. The doc said , you better get to Children''s hospital , this is serious. Not as in broken bone serious. We had to wait for a bone scan, they feared cancer. Turned out it was Juvenile Rheumatoid arthritis. Because she got diagnosed early, she didn''t end up in a wheel chair, or lose her vision, as so many do...She''s a healthy happy and very athletic 21 year old. I could have seen that bump and watched it for a while, but that''s not my nature. I want to know and the sooner the better so we can deal with it, hopefully with a happy outcome!!!
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Make an appointment tomorrow.
Thank you!

I''m so glad your daughter is doing well and is happy!
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Quick update - My MIL and I talked and we both think that my son's "tics" are a result of having first his spacers and now his expander. We're going to go to his ortho tomorrow and then get a referal from his ped. to a neurologist next week. I found one nurse on the phone who said that it's "theoretical" that his movements could be a result of both sets of orthodontic metal devices. Everyone else has NO idea what I'm talking about.

I'm entirely panicking about this!!!
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Stress is a very, very common cause of tics in children and adults. I get them when I am anxious. My (adopted) daughter has gotten them at times in her childhood. Given my profession (socail worker) and my Freudian approach to everything I might not even have had my daughter's tics worked up if it hadn't been for her having one fainting episode as a child. Since she did have one fainting episode, however, I had her have a complete work-up by a pediatric neurologist (MRI of the brain stem, EEG, etc., etc., etc.). My daughter's tics were due to stress. They came and went. She has plenty of other problems, but has been tic-free for a few years now.

My advice to parents-when I think some problem has a cause that is psychological- is to have them check out the possible physical causes first. I suggest that you do that. If your son has no physical problems, you may want to consult a good mental health professional.

So I am agreeing with Kaleigh and then asking you to go a step farther if the pediatric neurologist tells you that there is no physical problem.

Good luck.

AGBF
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Date: 11/23/2009 8:24:58 PM
Author: AGBF


Stress is a very, very common cause of tics in children and adults. I get them when I am anxious. My (adopted) daughter has gotten them at times in her childhood. Given my profession (socail worker) and my Freudian approach to everything I might not even have had my daughter's tics worked up if it hadn't been for her having one fainting episode as a child. Since she did have one fainting episode, however, I had her have a complete work-up by a pediatric neurologist (MRI of the brain stem, EEG, etc., etc., etc.). My daughter's tics were due to stress. They came and went. She has plenty of other problems, but has been tic-free for a few years now.
We had a long talk with my son's orthodontist. Since the tics started after his first dental appliance and then progressed to more after putting in his second, the Dr. concluded that he has stress induced tics from the trauma of having all the dental stuff. He took everything out. My son's mouth was 95% complete in it's palette spreading and now we're putting a small retainer in hoping to keep his mouth spread until we come up with a plan.

So basically, AGBF, you are right that it's about stress. A friend told me that the expander may have been hurting my son more than he wanted to say, so his newest tic was his expression.

Well, we'll take it from here. I am going to research stress management methods for children in addition to a neurologist, etc. Hopefully just having all that metal out of his mouth will calm him down.

Not sure what to do about his teeth, though, as one is situated far back and grinding against a bottom tooth.
 

Date:
11/24/2009 11:40:37 PM
Author: MC

So basically, AGBF, you are right that it''s about stress. A friend told me that the expander may have been hurting my son more than he wanted to say, so his newest tic was his expression.

Well, we''ll take it from here. I am going to research stress management methods for children in addition to a neurologist, etc. Hopefully just having all that metal out of his mouth will calm him down.

Not sure what to do about his teeth, though, as one is situated far back and grinding against a bottom tooth.

MC, I certainly do not advocate any dental procedure that causes your son undue pain and stress, however, here are a few things to consider:

Can your orthodontist do the same basic work, but more slowly, with less pain and trauma using other methods?
Can the same work be done but when your son is a little older and more able to understand and cooperate in his treatment?
Would counseling about his feelings as he is having the dental work done help him? Sometimes people have to have painful or difficult medical treatments, but the negative impact of those treatments can be mitigated by the way they are administered and the way they are discussed with the patients.

Orhodontia may not be a necessary medical procedure, but it can often be very helpful. I hate to see your son have to forego it entirely "just" because he developed a tic. A tic is not the end of the world. He could live with a tic for a few months or years. It would go away eventually. What I wouldn''t want (if he were my son) would be to see him suffering from the stress that I knew was causing that tic (once I had determined, as you seem to have, that stress was the underlying cause of the tic).

I would like to see your son have the best of both worlds: the orthodontia-in a way designed not to be so hard on him-and to be tic-free because he is understood!

Hugs,
AGBF
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We''ve considered all those routes and have decided to slowly proceed with the work. Having crooked teeth as a child is no big deal. The original reason we began so early is that one of his teeth came in set further back than the others so it is grinding on his lower teeth. I forgot to mention in my post that until we decide exactly what to do, he''s going to have a retainer that he can take in and out. One for the top that stays in except for when he brushes (to help his palette stay where the expander put it) and a lower one that only is put in at night. Seems like a gentle solution for the time being (and he has some control over his mouth - taking the retainer(s) out if he wants to eat popcorn or whatever no-no foods there were while the expander was in). Next week, we''ll work on getting a referal to a neurologist (however, that may just stress him out more?).

I want to wait until after Christmas to work on that. While he''s home on break I can watch him more closely to see how frequent his movements are.

He''s with his grandparents tonight and my MIL is going to assess the situation. She REALLY isn''t a fan of him having all that metal in his mouth and she''s relieved that it''s out. Those expanders sure look scary. Many of the kids in my son''s grade are now getting them.
 
I agree with the others who suggested to have him fully evaluated as opposed to ruling out possibilities on your own. Sometimes tics could be indicative of a neurological disorder, so you need to have that formally evaluated. Even if the tics were stress induced by the orthodontics, he would have to have some type of neurological vulnerability for the stress to induce tics. It sounds like it *may* be a tic disorder or a type of tourettes, both of which are pretty benign disorders but important to evaluate nonetheless.
 
Date: 11/30/2009 12:42:29 AM
Author: ilovethiswebsite
I agree with the others who suggested to have him fully evaluated as opposed to ruling out possibilities on your own. Sometimes tics could be indicative of a neurological disorder, so you need to have that formally evaluated. Even if the tics were stress induced by the orthodontics, he would have to have some type of neurological vulnerability for the stress to induce tics. It sounds like it *may* be a tic disorder or a type of tourettes, both of which are pretty benign disorders but important to evaluate nonetheless.
We went back to his doctor and I saw his med. records and she wrote down that my son has "simple tics," and no "vocal ones." Basically after she wrote that, she summerized that it''s my "extreme worry" that is the only reason she''s doing the neurological referal. My husband and I are contemplating what to do and now are not sure if having tests done at this time will be the best. We''re kind of uncertain where to go from here especially since my son''s palette is almost completely open and must finish opening to complete the first step in his braces.
 
Date: 12/1/2009 5:37:46 PM
Author: MC
Date: 11/30/2009 12:42:29 AM

Author: ilovethiswebsite

I agree with the others who suggested to have him fully evaluated as opposed to ruling out possibilities on your own. Sometimes tics could be indicative of a neurological disorder, so you need to have that formally evaluated. Even if the tics were stress induced by the orthodontics, he would have to have some type of neurological vulnerability for the stress to induce tics. It sounds like it *may* be a tic disorder or a type of tourettes, both of which are pretty benign disorders but important to evaluate nonetheless.
We went back to his doctor and I saw his med. records and she wrote down that my son has ''simple tics,'' and no ''vocal ones.'' Basically after she wrote that, she summerized that it''s my ''extreme worry'' that is the only reason she''s doing the neurological referal. My husband and I are contemplating what to do and now are not sure if having tests done at this time will be the best. We''re kind of uncertain where to go from here especially since my son''s palette is almost completely open and must finish opening to complete the first step in his braces.

Hi MC, glad to hear you consulted with the physician again. It sounds like you have the situation under control, and are considering all the possibilities. If you think the testing would be overwhelming for your son right now (given his dental work), and the doctor agrees he can wait to have the assessment, maybe that is a good idea. Only you know what is best for your child.
 

Date:
12/1/2009 5:37:46 PM
Author: MC

We went back to his doctor and I saw his med. records and she wrote down that my son has ''simple tics,'' and no ''vocal ones.'' Basically after she wrote that, she summerized that it''s my ''extreme worry'' that is the only reason she''s doing the neurological referal. My husband and I are contemplating what to do and now are not sure if having tests done at this time will be the best. We''re kind of uncertain where to go from here especially since my son''s palette is almost completely open and must finish opening to complete the first step in his braces.

I say have the tests done and then you can go forward with no worries. If I were a betting woman, I''d put $100 down saying your son is fine except for stress, but it''s time to get this testing done and over with. You need to close this chapter and move on! Once my daughter''s neurological check-up came up fine, I was free to know that she was just neurotic and to proceed accordingly...and that was very, very liberating!!! It''s time for you to get that clean bill of health we got! (Just my opinion, MC. You''re the mom! But I want to have you feel as good as I did! )

Hugs,
Deb
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We picked up his plastic retainers today (to hold his teeth in place) and he seems to love them because he takes them out when eating (and so can eat anything) and likes the little cases they come in.

He''s kind of adjusting in an odd way to his movements. When he has a tic motion, he''ll then do a few more moves on purpose to make it look like he''s meaning to do it.
 


Date:
12/2/2009 12:20:14 AM
Author: MC

We picked up his plastic retainers today (to hold his teeth in place) and he seems to love them because he takes them out when eating (and so can eat anything) and likes the little cases they come in.
I am so glad! That poor child deserved a break! He has been through so much! And he has been a great kid throughout! You deserve a break, too, MC!

Hugs,
Deb/AGBF
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