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Ear inflammation/ blockage and dizziness

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Phoenix

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PS'ers,

I am hoping someone might be able to chime in and help me with a current health issue.

So, as some of you may know, I have Hashimoto's which means I am super susceptible to colds, the flu and other infections, since my immune system is compromised.

Three months ago, I caught the flu/ a viral infection from someone. This went away after one week. I thought it was all ok and went to the gym after the flu symptoms subsided. Well, I fainted, hit my head on a machine at the gym. The impact was minimal; however, I was super super super dizzy (like the room was spinning at 200-300 miles an hour), couldn't even sit up, and the gym people had to call an ambulance and I was hospitalised for four days. Had numerous blood tests and had an X-ray as well as a CT Scan of the brain, which revealed nothing other than a dislodged crystal in the left ear canal. Well, some physiotherapists fixed my dislodged crystal, the super-dizziness was gone, or so I thought. I was then discharged and thought everything was ok.

A few days later, I was walking outside and suddenly felt super dizzy. Had to go inside a shop and called for my friends to come fetch me and bring me home and put me into bed, where I stayed for a continuous eight weeks (except getting up occasionally to shower etc). I couldn't even get out of bed to eat and had to have all my food and drinks brought to me in bed. I have since seen several ENT's and it appears the viral infection progressed into an ear infection which caused ear inflammation and blockage, which in turn caused dizziness (as the ears regulate your sense of balance). The main ENT prescribed several courses of medication, including steroids, anti-viral medication, non-steroidal anti-inflammatories, antihistamines, nasal decongestants etc.....followed by diuretics. I have also done a hearing test which revealed a slight hearing loss in my left ear.

So fast forward to today, I've finished all the above medication, except for the diuretics. The reason the ENT gave those to me was bc he thought it'd reduce the water lodged in my ears caused by the ear inflammation. I thought, again, that I was doing progressively better. Turned out I am not, not really. On most days, I feel a slight dizziness, headache, ear-ache (in the left ear), slight pain on left side of my face in the areas adjacent to the ear. On some days, I feel almost (almost, not quite) normal but those days are far and few between. On bad days, like once a week, for example yesterday, I feel all those symptoms which are magnified several folds and I also feel super dizzy like I am about to faint. I haven't fainted again, since that first time 3 months ago; but on bad days, I feel like I am about to faint any time.

Nobody, not even the ENTs I have seen, can put a finger on exactly what it is I am suffering from and more to the point, how to help me get better!!

Has anyone suffered or knows of anyone else who has suffered from something like this? I am at my wits' end!! I feel like my life has been put on hold. I can't go out unassisted. I've been staying at home for 3 months, mostly in bed. I can't really do anything other than light physical exercise. I have a home gym now but cannot lift heavy weights like I used to; and even when I do, am constantly fearful!! Can anyone please HELP!!!
 
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Snowdrop13

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Sounds like you may have labyrinthitis- I had a colleague at work who was ill on and off for quite a while with dizziness from that. Not sure what the best treatment is, though, sorry.
 

Dancing Fire

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Phoenix
I don't have any advise but hope you feel better soon.
 

Phoenix

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Sounds like you may have labyrinthitis- I had a colleague at work who was ill on and off for quite a while with dizziness from that. Not sure what the best treatment is, though, sorry.

I also suspect that's what I have. No treatment known.sad :((

Thank you though.
 

MaisOuiMadame

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I am sorry you are going through this, Phoenix!
DH had this about 6 years ago.

Great that your CT and x -ray are clear, so it's neither a tumor nor a stroke (first two things you need to check). These symptoms are violent when they hit and scary.

We were not at home when this happened, so had to go to a small town hospital and wait for DH to be able to travel back home to a renowned hospital (just to give backstory how we ended up with two wrong diagnoses)
Our first diagnosis was a dislodged crystal as well.
No therapy other than physiotherapy.
Didn't get better.
Went to an otolaryngologist. Diagnosed morbus menière.
Full disclosure: DH has been suffering from a tinnitus for 20 years, so differentiating this part was tough)
Treatment: physiotherapy.
Some things didn't seem quite right. I asked about sudden hearing loss. Doctor brushed me off.
I insisted to get DH home ASAP, where we already had an appointment at our big university hospital.
They determined a sudden hearing loss.
Put him on HIGH cortisone therapy and hospitalised him for 2 weeks.
Things went slowly back to normal ( 12 months all in all, went back to work after 8 weeks, dizziness mostly gone after 6 months). But he has kept an extreme sensitivity to his right ear. Too much noise and/ or extreme fatigue will result in dizzyness. Hearing loss not regained.
He sais he wouldn't do the high cortisone therapy again, as it is not proven to help and we felt is the doctor's best shot at a set of symptoms they don't fully understand.
Otolaryngoloy Professor at the hospital is a friend of ours, so we discussed all the options openly and I think we got the best treatment possible.
They determined whether it was menière or shl by testing the lost hearing frequencies.
Have you taken those tests?
DH continued to get physiotherapy and did some stress management sessions including hypnosis. Generally it is seen as stress related. But in our case , as in yours, there was a purely physical problem (severe cold / infection) just before the crisis, so I think one should acknowledge that as well.
Sorry, for being so long.
So I'd suggest testing the lost hearing frequencies in order to determine whether it might be menière or sudden hearing loss.
Keep doing physio.
Keep resting.
Try relaxation techniques.
Hope you get better soon.
 

Ally T

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Big hugs, sweetheart. Will message later x
 

Phoenix

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I am sorry you are going through this, Phoenix!
DH had this about 6 years ago.

Great that your CT and x -ray are clear, so it's neither a tumor nor a stroke (first two things you need to check). These symptoms are violent when they hit and scary.

We were not at home when this happened, so had to go to a small town hospital and wait for DH to be able to travel back home to a renowned hospital (just to give backstory how we ended up with two wrong diagnoses)
Our first diagnosis was a dislodged crystal as well.
No therapy other than physiotherapy.
Didn't get better.
Went to an otolaryngologist. Diagnosed morbus menière.
Full disclosure: DH has been suffering from a tinnitus for 20 years, so differentiating this part was tough)
Treatment: physiotherapy.
Some things didn't seem quite right. I asked about sudden hearing loss. Doctor brushed me off.
I insisted to get DH home ASAP, where we already had an appointment at our big university hospital.
They determined a sudden hearing loss.
Put him on HIGH cortisone therapy and hospitalised him for 2 weeks.
Things went slowly back to normal ( 12 months all in all, went back to work after 8 weeks, dizziness mostly gone after 6 months). But he has kept an extreme sensitivity to his right ear. Too much noise and/ or extreme fatigue will result in dizzyness. Hearing loss not regained.
He sais he wouldn't do the high cortisone therapy again, as it is not proven to help and we felt is the doctor's best shot at a set of symptoms they don't fully understand.
Otolaryngoloy Professor at the hospital is a friend of ours, so we discussed all the options openly and I think we got the best treatment possible.
They determined whether it was menière or shl by testing the lost hearing frequencies.
Have you taken those tests?
DH continued to get physiotherapy and did some stress management sessions including hypnosis. Generally it is seen as stress related. But in our case , as in yours, there was a purely physical problem (severe cold / infection) just before the crisis, so I think one should acknowledge that as well.
Sorry, for being so long.
So I'd suggest testing the lost hearing frequencies in order to determine whether it might be menière or sudden hearing loss.
Keep doing physio.
Keep resting.
Try relaxation techniques.
Hope you get better soon.

@kipari, thank you so much for your detailed reply.

Wowza! 6 months for the dizziness to go away and 12 overall for near-full recovery? OMG!! I feel like crying!! Last 3 months have been pretty hopeless/ still feeling hopeless now!! BUT I am glad that your DH has recovered and things are almost back to normal. It is hell and I wouldn't wish it on anyone.

I have done a hearing test and I know that it is a sudden hearing loss/ sensitivity. I have sensitivity to noise, for example music, people's voices that suddenly seem quite loud now when I know they are not, were definitely not previously. I also have tinnitus which I never had before. My ENT thought/ thinks I have Meniere's, hence the diuretics, which helped for a while on and off, but which no longer seem to help (as much).

You are right in that my condition and symptoms were brought on by the viral infection which went to my ears.

What physio did you DH do? I'd be interested to learn more please. At this stage, I am not sure any more/ other medication would help. So I think physio would be the answer, at least to help with the dizziness and/ or the full, blocked feeling in my ear. I am not doing any physio at the moment, as no-one has suggested that, except you.

Thank you so much.
 
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pwsg07

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Sometimes, I am dizzy because i sweat too much and drink too much water. I found that the sport drink or coconut water stops the dizziness. They all have potassium. I hope this will help you.
 

Phoenix

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Sometimes, I am dizzy because i sweat too much and drink too much water. I found that the sport drink or coconut water stops the dizziness. They all have potassium. I hope this will help you.

Thank you. I take electrolytes and am also on potassium supplement.
 

missy

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Phoenix, I am so sorry you are going through this and I hope the physio helps you find relief. Sending lots of healing your way and hugs.
 

MarionC

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Oh dear Phoenix, I am so sorry.
I have nothing helpful to say, but I am keeping you in my thoughts and hoping the situation resolves so you can get on with normal life.
 

MaisOuiMadame

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Sorry, didn't mean to freak you out!! It DID get better and back to normal!
I'm in a meeting but will be back asap in detail re. Physio & osteo.
 

BlingObsession

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Ah yes, I had / have that. Except instead of fainting, I vomit uncontrollably because the dizziness gives me motion sickness.

When I have an attack, I can't open my eyes without vomiting.

It started with a virus which caused sudden hearing loss, then the dizziness/vomiting, then tinnitus. I am now almost deaf in one ear, tinnitus in both, the dizzy spells come and go - I haven't had a serious attack for a little while now. Diagnosis: Menieres Disease apparently. No cure.

It gets a little better with time - the early attacks are the worst apparently. Your brain and body adjust to the constant dizziness which does ease off but hasn't gone completely.

I do hope yours is only a temporary virus thing and you make a full and swift recovery.

I'm sorry that you are going through this.

:(2
 

Phoenix

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Phoenix, I am so sorry you are going through this and I hope the physio helps you find relief. Sending lots of healing your way and hugs.

Thank you, Missy.

I know you have your fair share of health issues too. Sending healing dust and hugs your way too.
 

Phoenix

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Oh dear Phoenix, I am so sorry.
I have nothing helpful to say, but I am keeping you in my thoughts and hoping the situation resolves so you can get on with normal life.

Thank you so much, Jimminane. That's all I want, to be back to my normal life.
 

Phoenix

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Sorry, didn't mean to freak you out!! It DID get better and back to normal!
I'm in a meeting but will be back asap in detail re. Physio & osteo.

I am so happy to hear that, both for your DH and hoping to find relief for myself.

No worries. I'll be here...not going anywhere, that's for sure, lol. (Have to laugh, the alternative is to cry!).
 

Phoenix

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Ah yes, I had / have that. Except instead of fainting, I vomit uncontrollably because the dizziness gives me motion sickness.

When I have an attack, I can't open my eyes without vomiting.

It started with a virus which caused sudden hearing loss, then the dizziness/vomiting, then tinnitus. I am now almost deaf in one ear, tinnitus in both, the dizzy spells come and go - I haven't had a serious attack for a little while now. Diagnosis: Menieres Disease apparently. No cure.

It gets a little better with time - the early attacks are the worst apparently. Your brain and body adjust to the constant dizziness which does ease off but hasn't gone completely.

I do hope yours is only a temporary virus thing and you make a full and swift recovery.

I'm sorry that you are going through this.

:(2

OMG, I am so sorry to hear this and feel despair hearing that there's no cure.;(

The attack yesterday was so bad, almost as bad as when I first had it 3 months ago (though not as bad as when I'd just fainted and been hospitalised).

How long have you had it? Did you take diuretics and/ or try physio by any chance? Do/ did your ears feel blocked? My dizziness and blocked/ painful ear come hand-in-hand. Also, when you say the dizziness eased off, how bad is it now compared to the worst attack, let's say on a scale of 1-10, ten being the worst. And how long before it eased off?

Really appreciate your sharing and kind words. Again, I am very sorry to hear this. It really sucks!:(sad
 
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MaisOuiMadame

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Dh definitely had /has the blocked ear - warning sign that he needs to rest / needs relief for his ears (silence).
Did they test which frequencies are gone?Should determine whether it's menière's or not.
As to the physiotherapy:
In Germany he was treated by the Epley Manoeuvre method (repositioning the body to help fight the vertigo).

This method was largely unknown in France (country of origin, where the crisis hit).
Here, they treated him with vestibular reeducation. He was on a moving chair, focusing his eyes on a point.
This was not available /largely unknown in Germany. So he did both in both countries and had the feeling that the most dramatic effects came from the latter.
He met another physiotherapist ( recommended by the Prof. friend, ) who believed the origin of these problems lie in a severe imbalance in the body and suggested he treat this by ostepathie.
Watching him walk it was clear his body was not completely straight.Shoulder and head hanging down towards the right. However, to me it's more logical that this was a result of the hearing loss more than the source.
He did a few of the osteopathy sessions nonetheless. The problem was apparent and we wanted to be sure there wouldn't be any more muscle/bone/tension pain afterwards from this.
What we concluded:
He definitely had a predisposition in that area (severe allergies resulting in inflammation for months every year).You said that because of your hashimoto's your susceptible to colds as well.
Now that there's definitely a fragility and some damage to his inner ear, we try to avoid his triggers.

We identified the following:
- loud noise (obvious)
-certain frequencies (high strung)
-extreme fatigue (jetlag, sleep deprivation)
- working out in high temperatures
-inflammatory conditions in this area

This usually leads to the warning signs of:
-Amped up tinnitus and /or
- blocked feeling ("cotton wool in the ear") and /or
-slight dizziness

When those occur, he needs to rest immediately, no noise, preferably dark room. Much like when you feel a migraine attack coming. For any cold symptoms , allergic or not: deblock nose asap w/spray, nasal douching, immediate treatment.
So we feel his triggers are more related to physical stress than mental stress (as opposed to what most medical professionals told us over and over again).
He has not had a crisis again.
This seems to confirm the initial diagnosis of sudden hearing loss vs menière's in his case.

He had, however several attacks in his recovalescence phase ( like you describe).
I hope you find specialised physiotherapists for both methods and an osteopath in your area.
We also did everything else that might have helped, including acupuncture and tcm and moxa. DH isn't a fan, but I think it's worth looking into as additional methods.
Sending healing vibes!!
 

MaisOuiMadame

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Addendum:
I reread that you've been resting for the last weeks.
The specialised physiotherapists forced DH to get up and do his vertigo related exercises and the vestibular reeducation.
This was consensus in both countries. It felt extremely cruel at the time, since he was sooooooo miserable. He had the same motion sickness symptoms as @BlingObsession and passed out twice. It felt very wrong, but they insisted.
I hope you find an expert asap and wish everyone dealing with this the best.
I can remember how scared we were at first.
 

valeria101

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God ! I have certainly noticed your being away from PS & imagined the very best reasons ... I know nothing of use. Have all my good wishes !
 

Phoenix

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@kipari, thank you sooooo much for all the details. I cannot tell you how grateful I am. Again, I am super happy for your DH that he has fully recovered. It is very scary indeed!! I never know if or when I may faint again and I certainly do not want to faint while I'm outside of the house or cooking, or chopping something, or lifting weights etc...

I will certainly look into and ask for recommendations re the physiotherapists and osteopaths who perform these exercises / specialise in this area. Unfortunately, Singapore where I live is such a tiny country, I don't even know if I can find anyone suitable here. But judging from what I've read thus far and from talking to a couple of other people, maybe this condition is not so uncommon after all. And flying out of the country to see a suitable specialist(s) is not feasible at all.

I remember when I was at the hospital, following my black-out, a physiotherapist performed a certain manoeuvre which helped to eliminate the 200-300 mile an hour room spinning sensation. I don't know what this manoeuvre is called, it's similar to the Epley manoeuvre, but in this case your head is actually dropped below and off the bed. Perhaps I need to contact the hospital to see if I can see the same person again or if they can recommend someone else. She did say the waiting list to see her is super long, like 6 months or something ridiculous like that. I don't even know if the manoeuvre she performed is the right one for what I have now (as opposed to what I experienced due to the dislodged crystal at the time).

The triggers for me are very similar to those of your DH's. Actually, yesterday was a strange one. There was someone in my house who wore quite a lot of cologne, which was not an unpleasant smell per se, but it was just so much that it gave me a headache. I wonder if that was the trigger.

Re the hearing loss test, they did tell me which frequencies...I think...I'll need to call them tomorrow to find out more details. Which frequencies - high or low - are associated with Meniere's? I did a quick Google but cannot seem to find out the answer. My ENT is convinced I have Meniere's but I am not.

I am resting a lot but I also try to do some light exercise in my home gym. I do like to exercise and my ENT also insists that I do. I also tried to look into TCM and acupunture but haven't got anywhere yet. Never heard of moxa, til now. Will certainly look into that.

Oh, the 2 blackouts that your DH experienced, did he have them during the manoeuvres/ rehabilitation exercises?

Once again, many many thanks for your help. I really hope I can find relief and as you said, I hope others that suffer from this can find some form of relief as well.
 
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snotty_pie

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I'm so sorry to hear about your health problems, Phoenix! My dizziness problems in my past were due to dislodged crystals as well, so the Epley (and home epley) maneuvers really helped with those.

Sending well-wishes and health dust your way.
 

Phoenix

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@kipari and @BlingObsession , did your DH/ you suffer from any issues related to his/your eyes and/ or neck? I seem to notice that I now have a slightly blurred vision, noticeably more in my left eye, so same side where the affected ear is. Also, I have slight pain/ ache in both sides of my neck. Wrt the latter, I am seeing a chiropractor who seems to think all the conditions are related to my ear inflammation and dizziness.

Also, @kipari, how did your DH know whether to see a physiotherapist or an osteopath?
 

Phoenix

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I'm so sorry to hear about your health problems, Phoenix! My dizziness problems in my past were due to dislodged crystals as well, so the Epley (and home epley) maneuvers really helped with those.

Sending well-wishes and health dust your way.

Thank you for posting, @snotty_pie.. So glad to hear that you dizziness problems have gone away.. I really need to look more into the Epley maneuvre.

Thank you for your kind wishes and healing dust too.
 

MaisOuiMadame

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I'll have to ask him about the blurry vision specifically. He was not able to open his eyes for about the first week -10 days at all without uncontrollably vomiting. That was also the the time he passed out the second time. I'm not sure if it was during supervised exercises or when we had to get him someplace.
First blackout was on the day of the crisis.
I think menière leads to loss in lower frequencies mostly and medium frequencies.

The physiotherapy seemed to be standard procedure. The Osteopath was someone recommended by our doctor friend. Tbh, we did a lot of research and tried everything that made sense and asked, asked, asked everyone who was familiar with this for further recommendations.
If it made sense, we tried it.
As I already said: the regular medical opinion just repeated: learn relaxation techniques, it's a mental thing.
I personally think it might be for some, but we have been able to isolate clear triggers ( mostly physical) and clear warning symptoms. The relaxation might come handy in that phase, but physical rest did it for DH. He's been able to avoid another crisis.
Listen to your body and take the early signs seriously.
 
P

PierreBear

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Gosh... sorry Phoenix. :cry2: I don't have any medical advice but hopefully there will be a solution soon and that you will be on the mend.
 

azstonie

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Hang in there, Phoenix, and what I've seen is that The Tincture of Time will take care of this. I know, it SUCKS!
 

hathalove

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I couldn’t read each post but I was curious when exactly are you dizzy and is it only happening when you are up and about?
 

jadesilver

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Hi Phoenix, I’m so sorry that you are going through this :’( i hope you recover fully soon! If you are looking for more suggestions and contacts in Singapore, I think reddit.com/r/Singapore might be able to help with TCM/physio suggestions if any of them happen to have experienced this before (from the responses here it seems like it’s not uncommon). At the very least they may have some reputable TCM contacts.

My heart goes out to you, it really really really sucks. Sorry that you aren’t well :/

Edit: I just made a post on Reddit asking for help, they may or may not have contacts to share, I’ll report back if they do :)
 
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