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Need prayers

P: 7/5/2007 4:47:44 PM
Maisie Ideal Rock Total Posts: 7,767 Last Post: 11/24/2009 Member Since: 12/30/2006	I have had a message to call the Genetics counsellor. I am really worried now as I knew if she got in touch within two weeks of me being tested for Fragile X Syndrome that it would probably be bad news. My stomach is churning. I feel so sick. I am so scared to call her tomorrow.
Posted: 7/5/2007 4:47:44 PM

There are 129 replies to this message. There are 30 replies on this page.

P: 7/5/2007 4:53:24 PM
Mandarine Ideal Rock Total Posts: 3,246 Last Post: 11/6/2009 Member Since: 1/20/2006	Oh Maisie.... My heart breaks for you because I can't even imagine how you feel. I can't do more than just send prayers and good thoughts your way. May God keep your beautiful son safe (he truly is such a cutie!!!). I pray that this is nothing more than a scare, and you will come back tomorrow with good news for all of us. I pray that if this is not the case, that you and your husband are strong through all of it. All my prayers right now are for you and hubbie to stay calm tonight, and for that phone call tomorrow to be positive and only good news. Big hugs, M~
Posted: 7/5/2007 4:53:24 PM

P: 7/5/2007 5:20:43 PM
Skippy123 Ideal Rock Total Posts: 19,838 Last Post: 11/24/2009 Member Since: 11/24/2006	Maisie, I am thinking of you and you are in my prayers. Hugs. Skippy "The only things that stand between a person and what they want in life are the will to try it, and the faith to believe it's possible" Rich Devos
Posted: 7/5/2007 5:20:43 PM

P: 7/5/2007 5:23:22 PM
iwannaprettyone Ideal Rock Total Posts: 3,547 Last Post: 11/17/2009 Member Since: 2/5/2002	You are in my thoughts and my prayers too. Hang in there! Iwanna x (IWPO) *****Status: MARRIED!!!!*****
Posted: 7/5/2007 5:23:22 PM

P: 7/5/2007 5:23:43 PM
Joolskie Cut Rock Total Posts: 472 Last Post: 4/29/2009 Member Since: 11/26/2006	My thoughts and prayers are with you Maisie...
Posted: 7/5/2007 5:23:43 PM

P: 7/5/2007 5:25:03 PM
*DeeJay** Ideal Rock Total Posts: 6,491 Last Post: 9/23/2009 Member Since: 3/26/2006	Maisie, biggest hugs outgoing. Let us know as soon as you can about the results.
Posted: 7/5/2007 5:25:03 PM

P: 7/5/2007 5:43:49 PM
ChargerGrrl Ideal Rock Total Posts: 2,490 Last Post: 11/24/2009 Member Since: 8/17/2005	Oh Maisie! I'm sending you lots of good vibes from waaaay across the pond. Stay strong, and check in when you can.
Posted: 7/5/2007 5:43:49 PM

P: 7/5/2007 5:48:04 PM
Stephanie Ideal Rock Total Posts: 1,164 Last Post: 8/6/2009 Member Since: 5/25/2007	Maisie, please don't worry yourself sick. Everything will be alright. We are here for you when you come back with the news.
Posted: 7/5/2007 5:48:04 PM

P: 7/5/2007 5:52:21 PM
snlee Ideal Rock Total Posts: 5,450 Last Post: 11/23/2009 Member Since: 10/6/2004	Maisie, sending you lots of good vibes. You are in my thoughts.
Posted: 7/5/2007 5:52:21 PM

P: 7/5/2007 6:26:08 PM
divergrrl Ideal Rock Total Posts: 2,149 Last Post: 11/23/2009 Member Since: 12/9/2002	Maise: {{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}} It will be ok....no matter what. James is doing great & has hit some great milestones lately, no matter what happens, you will make it through this & James is an amazing boy. We are all here for you....please try to stay calm until you hear from her, ok? Divergrrl *************************** Don't be fooled by the rocks that I got.... :-P
Posted: 7/5/2007 6:26:08 PM

P: 7/5/2007 6:33:19 PM
strmrdr Ideal Rock Total Posts: 23,296 Last Post: 10/9/2009 Member Since: 11/1/2003	prayers outgoing ........... Karl has joined the diamond trade and is now posting as Karl_K
Posted: 7/5/2007 6:33:19 PM

P: 7/5/2007 7:07:16 PM
isaku5 Ideal Rock Total Posts: 2,283 Last Post: 11/23/2009 Member Since: 8/15/2005	Prayers and {{{{big hugs}}}}} going out to you, Maisie. This is certainly a tough wait for you and your family- thank goodness it's only one night. Your earlier post and pictures certainly indicated that James is making great strides. No matter what the results are, you know his potential is there. It may just take a little longer for him.
Posted: 7/5/2007 7:07:16 PM

P: 7/5/2007 7:18:27 PM
KimberlyH Ideal Rock Total Posts: 6,553 Last Post: 11/24/2009 Member Since: 6/15/2006	Maisie, You will all be okay, no matter the outcome, because you are such a strong family. My thoughts and prayers are with you and yours. ~K
Posted: 7/5/2007 7:18:27 PM

P: 7/5/2007 7:48:52 PM
sevens one Ideal Rock Total Posts: 9,537 Last Post: 9/8/2009 Member Since: 4/14/2004	Prayers and **Hugs coming your way. ______________________________ "You kept making all the stops?" "Well, people kept ringing the bell!" ls gift**
Posted: 7/5/2007 7:48:52 PM

P: 7/5/2007 7:55:03 PM
Girlrocks Cut Rock Total Posts: 449 Last Post: 11/12/2009 Member Since: 7/19/2006	My thoughts and prayers are with you. There is nothing worse in life that worrying about your kids. All of the moms here are thinking of you tonight. Girlrocks
Posted: 7/5/2007 7:55:03 PM

P: 7/5/2007 7:58:05 PM
ellaila Ideal Rock Total Posts: 1,631 Last Post: 11/23/2009 Member Since: 4/7/2006	You and your beautiful family are in my thoughts and prayers, Maisie ...
Posted: 7/5/2007 7:58:05 PM

P: 7/5/2007 8:05:45 PM
Kaleigh Ideal Rock Total Posts: 25,919 Last Post: 11/24/2009 Member Since: 11/18/2004	(((( huge hugs Maisie))))) Sending prayers your way. We are all thinking of you and are hoping for the best. But James will be fine either way, think of all that he has accomplished recently. What a sweetie pie. Hang in there, sweetie. ____________________________ Piece of cake and a candle. ng gift
Posted: 7/5/2007 8:05:45 PM

P: 7/5/2007 8:07:40 PM
Ellen Ideal Rock Total Posts: 22,894 Last Post: 11/6/2009 Member Since: 1/13/2006	saying prayers ~~~~~~~~~~~~~~~~ "It is also important for the State to inculcate in its subjects an aversion to any 'conspiracy theory of history' for a search for 'conspiracies' means a search for motives and an attribution of responsibility for historical misdeeds." -Murray N. Rothbard, in The Anatomy of the State John Swinton [1829-1901] Chief Editorial Writer of the New York Times (Considered "the Dean of his Profession" by his peers), when asked to toast an 'Independent Press' in a gathering at the National Press Club, circa 1880 "There is no such thing in America as an independent press unless it is in the country towns. You know it, and I know it. There is not one of you who dare express an honest opinion. If you express it you know beforehand that it would never appear in print. I am paid... for keeping my honest opinions out of the paper I am connected with. Others of you are paid similar salaries for doing similar things.... The business of the New York journalist is to distort the truth, to lie outright, to pervert, to vilify, to fawn at the feet of Mammon, and sell his country and race for his daily bread, or for what is about the same thing, his salary. You know this, and I know it and what foolery to be toasting an 'independent press.' We are tools, and the vassals of rich men behind the scenes. We are jumping-jacks. They pull the strings and we dance. Our time, our talents, our lives, our possibilities, all are the property of other men. We are intellectual prostitutes."
Posted: 7/5/2007 8:07:40 PM

P: 7/5/2007 8:18:07 PM
Miranda Ideal Rock Total Posts: 4,042 Last Post: 9/24/2009 Member Since: 2/18/2006	Sending prayers Maisie! You and your family are in my thoughts.
Posted: 7/5/2007 8:18:07 PM

P: 7/5/2007 9:08:37 PM
mrssalvo Ideal Rock Total Posts: 16,859 Last Post: 11/23/2009 Member Since: 1/3/2005	prayers and hugs from me too... ----------------------------- A deal is only a deal if you are getting exactly what you want.
Posted: 7/5/2007 9:08:37 PM

P: 7/5/2007 9:13:59 PM
Miscka Ideal Rock Total Posts: 1,674 Last Post: 11/10/2009 Member Since: 4/9/2007	My thoughts and prayers are with you Maisie
Posted: 7/5/2007 9:13:59 PM

P: 7/5/2007 9:31:06 PM
diamondseeker2006 Ideal Rock Total Posts: 17,609 Last Post: 11/18/2009 Member Since: 1/11/2006	Praying for good news, Maisie! ~~~ When in doubt...don't.~~~
Posted: 7/5/2007 9:31:06 PM

P: 7/5/2007 9:32:01 PM
oshinbreez Ideal Rock Total Posts: 1,135 Last Post: 8/20/2009 Member Since: 6/16/2006	Keeping all of you in my prayers. No matter what happens, it's all part of God's plan. There ARE reasons for everything. Keep strong. There are thousands of things kids need to be protected from. Hugging isn't one of them.
Posted: 7/5/2007 9:32:01 PM

P: 7/5/2007 10:16:32 PM
Tacori E-ring Ideal Rock Total Posts: 16,101 Last Post: 11/23/2009 Member Since: 8/15/2005	I hope it is good news! Your family is in my thoughts!
Posted: 7/5/2007 10:16:32 PM

P: 7/6/2007 2:11:28 AM
DiaDiva Ideal Rock Total Posts: 1,251 Last Post: 11/23/2009 Member Since: 10/7/2004	Maisie, you are in my thoughts and prayers. Hang in there....
Posted: 7/6/2007 2:11:28 AM

P: 7/6/2007 3:45:30 AM
Maisie Ideal Rock Total Posts: 7,767 Last Post: 11/24/2009 Member Since: 12/30/2006	The result was positive. I'm devastated.
Posted: 7/6/2007 3:45:30 AM

P: 7/6/2007 6:39:44 AM
NYCsparkle Ideal Rock Total Posts: 1,278 Last Post: 11/21/2009 Member Since: 7/23/2006	Maise, I'm so sorry. big hugs your family will be in my prayers. I know you probably already know this, but their are a ton of web support groups for families with your sons condition. www.DailyStrength.org There is also a book called: Dear Megan: Letters on Life, Love and Fragile X by mary busby, and it is a highly inspirational book. i'm sure you have read plenty of clinical stuff, this book is written by 2 mothers. hugs
Posted: 7/6/2007 6:39:44 AM

P: 7/6/2007 7:24:38 AM
AGBF Ideal Rock Total Posts: 8,048 Last Post: 11/24/2009 Member Since: 1/26/2003	Maisie, I have been following the threads about other aspects of your life in Hangout and wasn't aware that this was happening contemporaneously. I have seen other threads here (in Family, Home & Health) about your son's being tested for autism, but I do not recall reading about "Fragile X". Can you (or someone else) send me to the correct thread so that I can read more about it? I am very sorry that he has it. I have an acquaintance with two special needs children. One (the boy) is autistic. I know that they both have an identifiable genetic factor. When she had a third child she was grateful he did not have it. She is now 46 and pregnant with twin girls who are also free of the genetic flaw. I will ask her if this is called, "Fragile X"...but not right now. She is on bed rest, trying not to give birth before mid July since the twins are not due until August.... Life can be very hard. My heart is with you and your family. Deb A Girl's Best Friend
Posted: 7/6/2007 7:24:38 AM

P: 7/6/2007 7:54:11 AM
Samantha Red Cut Rock Total Posts: 371 Last Post: 11/13/2009 Member Since: 1/9/2007	Maisie I am so sorry to hear this news. However, you sound like an incredibly strong and loving family and I am sure you will help each other through. My thoughts are with you
Posted: 7/6/2007 7:54:11 AM

P: 7/6/2007 7:54:28 AM
Maisie Ideal Rock Total Posts: 7,767 Last Post: 11/24/2009 Member Since: 12/30/2006	I first started talking about the testing in this thread: http://www.pricescope.com/idealbb/view.asp?topicID=56451 I had thought James was being tested for Fragile X back then but it turns out he wasn't. I have had the tests instead as I didn't want to traumatise him further. I have it so they now have to test him for it. I feel so guilty that I gave him this - I know I couldn't have known but its still devastated me. I feel sick and my head is really killing me from crying so much. I know we will get through this but it just looks so hard from where we are standing.
Posted: 7/6/2007 7:54:28 AM

P: 7/6/2007 8:53:22 AM
anchor31 Ideal Rock Total Posts: 6,363 Last Post: 11/24/2009 Member Since: 10/18/2005	I'm so sorry this is happening to you. Maisie, sweetheart, this is not your fault. I understand that you might feel this way since it's your egg that carried the defective X chromosome, but you didn't "give" him this. Genetics is pretty complicated, and a lot of it is random. You never wanted him to have this condition, all you ever wanted for him is to be healthy and happy... And it's certainly not your fault if you carry the defective gene to start with. It's not your fault. It's not anyone's fault. I will keep you and your son in my prayers and thoughts. I'm sending you tons of hugs too. ******** R & J 08-02-08 Expecting baby on 12-30-09
Posted: 7/6/2007 8:53:22 AM

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