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Can you spare some PS dust? (Health related)

NOYFB

Ideal_Rock
Joined
Nov 16, 2008
Messages
2,649
Hi everyone,
I'm asking for some PS dust, prayers, positive thoughts, whatever you can spare, etc, as I'm facing a potential health crisis. I had my yearly mammogram last week and got a call back the next day that I needed a "spot compression" for a suspicious area on my left breast. I went in for that on Tuesday, and, after waiting for about 30 minutes, with my little white robe on in the waiting room, was told that they wanted to do an ultrasound, too. I was not expecting that, but got it done and was told by the tech "Ok, you should be hearing from your doctor by Friday.". Of course, I was concerned, because I'm thinking "Why can't they just tell me now what's going on?". I go to a specialized Breast Center in a hospital. My sister, who is 4.5 years older than me had the same scenario a few months ago and they came right in afterward and told her everything was fine and to come back next year. So, being told that my doctor will call me with the results had me anxious, obviously.

Well, that evening, my doctor called me and told me that there is a mass that needs to be biopsied and gave me the name and number of a surgeon. At this point, I am freaking out. A little bit of history - my mother was diagnosed with breast cancer 10 years ago, which is when I started going for annual mammograms. My aunt (mom's sister) also had breast cancer, although I'm not sure exactly when. I've had one other spot compression a few years ago, but whatever showed up on the mammo disappeared in the spot compression. This mass did not, hence the need for ultrasound.

I'm terrified and not quite sure what to expect. I do know that regardless if the mass if benign or malignant, I will be having it removed, and I am trying to prepare myself for that. Again, dust, prayers, positive energy, etc, all appreciated.

Now for the rant...I have an HMO. Although I work in healthcare, my company's health insurance is awful, so I am on DH's United Healthcare HMO. I haven't had an HMO in years, and I'm starting to realize why. We both have the same PCP, who we've been seeing for a few years. We love him and he's great. I've also been seeing my gyne for over 10 years and I trust her (she did my hysterectomy 5 years ago). They are not, however, within the same hospital system. Because I have an HMO, any referral to a specialist (i.e. the surgeon) requires a referral from my PCP. So, I called my PCP's office yesterday and spoke with Pamela, the office secretary. It's a very small practice and I used to work in the same hospital, so I've known and communicated with Pamela for some time. She's usually pleasant enough and seemed competent. Until yesterday.

When I explained to her the situation and that I needed I referral she literally sighed out loud and said she a) didn't think I really had an HMO, b) didn't have a referral form and c) didn't do that sort of thing. I calmly explained that yes, I do have an HMO and that after talking to my insurance company I confirmed that a referral needed to be done on the United Healthcare website, so all she needed to do was go online and fill in a few pieces of information. I gave her all of my doctor's information (even though it was on all of the reports that I had them fax to her), and the surgeon's information (even though I had given it to her the day before). Again, I received heavy sighs and was told that she didn't have time for this, that she had spent over an hour on the phone with my insurance company and got transferred to 6 different people, etc...on and on and on...and finally told me "as soon as this is taken care of, we are dropping out of the network, sorry", very unapologetically. I made several calls to her and to my insurance company and they actually ended up calling her and talking to her while I waited on hold. At this point, she told me that she had spoken to my PCP and he thought it was something that could just be "monitored'. I advised her to please read the US report that specifically stated that a biopsy was necessary. I realized then that she hadn't even read the reports because she was like "Oh, I see that...let me highlight that for the doctor". Then she came back and told me that my PCP didn't think I needed to see a surgeon for the biopsy, and that I could just go to Interventional Radiology at the hospital where he works. I explained to her that I have been going to the Breast Center for years and that the biopsy will be an ultrasound guided biopsy done at the Breast Center and that my gyne recommended this particular surgeon for a reason. Again, more heavy sighs and "I'll have to talk to him, but since we're planning to drop United Healthcare you may want to find a new PCP at the same hospital where your gyne is". It was all very rude and not patient-centered care at all. I had to struggle to be calm and nice because I really need her to do this for me.

Side note - I did try to get a new PCP but any changes that I make will not take effect until 8/1/14 and my surgical consultation is scheduled for 7/7. I don't have time to wait.

So, basically, she's telling me that I'm inconveniencing her and that I need to get a new doctor because she doesn't have time to deal with me. She even admitted to not being computer savvy and having to sit down with her husband to go through the online referral process (hello, HIPAA!!!!).
I'm so upset with her and the whole healthcare system as a whole. I mean, I'm sorry that the fact that I may have breast cancer is such an inconvenience to you! I'm sorry that you're computer illiterate and can't deal with an online referral process! It's 2014, for crying out loud. Welcome to the world of managed care and social media. If you're going to drop contracts with any insurance company that only deals with online referrals you better get ready to go out of business. Seriously, what the hell???? :angryfire: :angryfire:

In the end, nothing got resolved and she said I'd need to come in on Monday to see my PCP before a referral can even be done. I'm sure she's secretly thinking he'll talk me out of it so she doesn't have to be bothered with me. That's not happening. I've got enough reasons why a) I need this consultation/surgery and b) why I need to use this particular surgeon.

I've you've read this whole thing, thank you. I needed to get that off my chest (literally and figuratively).
 

justginger

Ideal_Rock
Joined
May 11, 2009
Messages
3,712
LM, please try not to fret. There are many common benign conditions that this could easily be. I very much hope the biopsy process is as smooth as possible, and that you receive the results back from the histo dept quickly, to put your mind at ease. In all likelihood it will end up being a fibroadenoma and you'll be done and dusted in no time. :))

What a logistical nightmare though. I can't pretend to understand the hoops of the American medical/insurance system these days, but I really hope that secretary manages to sort out how to do her job. You were awesome to have not gotten short with her!

All of my very best wishes, and a boatload of dust. Please keep us posted.
 

NOYFB

Ideal_Rock
Joined
Nov 16, 2008
Messages
2,649
Thank you, Ginger. I hope you're right. And I will definitely keep you posted. This is the only place I feel comfortable sharing all of this, so I'm thankful for the outlet to do so.
 

luv2sparkle

Ideal_Rock
Premium
Joined
Feb 3, 2008
Messages
7,950
Lil Misfit, I am soooo sorry you had to go throught this at such a stressful time!!! It is amazing how uncaring and rude people can be. I will be praying for you. Hopefully, this will be over soon and will end up being a non issue after the biopsy. I wish you didn't even have to go through that! Sending you big hugs, much dust and many prayers!
 

tyty333

Super_Ideal_Rock
Premium
Joined
Dec 17, 2008
Messages
27,238
Lots of pink dust for you...hoping that it is nothing seriously and get taken care of as soon as Pamela gets off her a$$ and
does your paperwork! Seriously, Pamela needs a new job. Everything is on computers these days and I think there is a law
that says everything has to go digital by a certain date (but not sure about that). The nerve of that women!

Again, lots of dust...
 

Calliecake

Ideal_Rock
Premium
Joined
Jun 7, 2014
Messages
9,234
Lil Misfit, I'm so sorry your having to go thru all of this. Please try to remain calm. Not all masses are malignant. I'm also insured with a HMO and had a similar scare regarding a large mass on my ovary. I researched the heck out of gynecological oncologists in Chicago (which I believe is where you are from). The specialist I wanted to see wasn't on the list of doctors or hospitals my primary care specialist could send me to. After a few calls to my insurance company I found out they have people that will advocate on your behalf if needed to get proper approvals so I could see the doctor I wanted to see.

I can't imagine the way you were treated would be acceptable to the doctor. It's a referral for goodness sake. Sending lots of dust and hugs your way.
 

Dancing Fire

Super_Ideal_Rock
Premium
Joined
Apr 3, 2004
Messages
33,852
Lil Misfit..lots of DUST on its way to you!
 

junebug17

Super_Ideal_Rock
Premium
Joined
Jun 17, 2009
Messages
14,138
Sending tons of dust and positive thoughts that it turns out to be nothing serious LM. And so sorry you had to deal with such a rude and incompetent person at such a stressful time.
 

marcy

Super_Ideal_Rock
Premium
Joined
Feb 27, 2007
Messages
26,308
Lil Misfit lots of PS dust coming your way.
 

Enerchi

Super_Ideal_Rock
Joined
Oct 4, 2011
Messages
10,658
DUST DUST DUST, my friend. I hope it all goes super smoothly and everything turns out very healthy in the results.

Pamela sounds very much like an office princess in the wrong line of work! It's healthcare!!- ppl need service and cooperation, not a hard time Iwhen they are going through a stressful situation! Rant any time- happy to listen!
 

woofmama

Ideal_Rock
Joined
Sep 23, 2011
Messages
3,021
So sorry you're going through this LM! Sending loads of dust your way, I hope your testing and biopsy go smoothly & no further concerns are found.
As for incompetent Pamela, what the hell is wrong with her to try to dismiss you?! She better learn to do her job, HIIPA violation is right, she could be pink slipped for that. Just ridiculous! If you can go over her head to get the testing scheduled you should.
 

diamondseeker2006

Super_Ideal_Rock
Premium
Joined
Jan 11, 2006
Messages
58,547
Oh my gosh, as if the biopsy situation isn't stressful enough!!! :angryfire: I would have been sooo furious!!!

Praying that all goes well for you and that it is nothing. I know how scary that can be, and you are 100% right to pursue this thoroughly!!!!
 

kroshka

Brilliant_Rock
Joined
Jan 30, 2004
Messages
566
Hugs and dust to you, and prayers that it turns out to be nothing serious.

Kroshka
 

Gypsy

Super_Ideal_Rock
Joined
Aug 8, 2005
Messages
40,225
Lots of dussssssssssssssssssssssssssst!!!!
 

Rosebloom

Ideal_Rock
Joined
May 23, 2012
Messages
3,943
Oh LM I'm so sorry!!! Dust dust and dust. Please keep us posted.
 

MarionC

Ideal_Rock
Premium
Joined
Dec 9, 2013
Messages
6,246
I know how worried you are. Please try not to think too much ahead of things as lots of times it turns out to be nothing and then you have stressed yourself. You have so many people sending dust & positive vibes; I add mine to that great big pile of beautiful love dust settling all around you.
 

MissGotRocks

Super_Ideal_Rock
Premium
Joined
Jun 23, 2005
Messages
16,330
So sorry you are having to go through this - lots of dust and good wishes coming your way!
 

missy

Super_Ideal_Rock
Premium
Joined
Jun 8, 2008
Messages
54,098
I am so sorry about this Lil Misfit. I am sending you buckets and buckets of dust!!! I cannot believe how awful your PCP's office secretary is behaving. I am keeping you in my thoughts and prayers and hoping it turns out to be nothing serious at all! (((Hugs))).
 

lknvrb4

Ideal_Rock
Joined
Nov 1, 2009
Messages
3,738
Oh my goodness, like you don't have enough stress to deal with and then you have to deal with Pamela? She should be ashamed of herself and God help her if she is ever put into your situation. I will send some dust your way.
 

Sparklelu

Brilliant_Rock
Joined
Jul 2, 2010
Messages
1,036
First of all entire buckets of pink sparkly dust coming your way!! It will be fine!

Second of all, who us Pamela's boss? I think a phone call or ten up the chain at that office are in order. She is beyond out if order.
 

NOYFB

Ideal_Rock
Joined
Nov 16, 2008
Messages
2,649
Thanks everyone. I appreciate all the dust, positive energy, etc. I'm doing better about not really thinking about it.

Unfortunately, Pamela's boss is my PCP. I'm definitely going to speak to him about her behavior when I see him on Monday.
 

CJ2008

Ideal_Rock
Premium
Joined
Dec 31, 2006
Messages
4,750
Sending you tons of dust Lil Misfit
 

Calliecake

Ideal_Rock
Premium
Joined
Jun 7, 2014
Messages
9,234
Lil Misfit, Your PCP is not going to approve of Pamela's behavior. She should have done everything she possibly could to help you and showed you a lot of compassion. All of us here can tell how stressful this is for you. I seriously doubt that she could not hear how worried you are in your voice. Her boss really needs to have a discussion with her so the next patient is treated better. Sending lots of dust to you.
 

Tekate

Ideal_Rock
Premium
Joined
May 11, 2013
Messages
7,570
THIS IS EFFING LUDICROUS.. you need to speak to the PCP immediately, you need to report them all to the AMA, your local YELP and on GOOGLE and anywhere else you can to get the word out.. I cannot fathom one woman treating another like this and then with the BIG C in the background looming.. I am 61 years old and let me tell you, I would get on my damn broom and let them know in no uncertain terms that you are being mistreated.. I am very sorry for this whole thing and send loving, caring thoughts your way and healing vibes... I sincerely hope it's nada.. they love to over diagnose.
 

isaku5

Ideal_Rock
Joined
Aug 15, 2005
Messages
3,296
Tekate|1403383847|3698201 said:
THIS IS EFFING LUDICROUS.. you need to speak to the PCP immediately, you need to report them all to the AMA, your local YELP and on GOOGLE and anywhere else you can to get the word out.. I cannot fathom one woman treating another like this and then with the BIG C in the background looming.. I am 61 years old and let me tell you, I would get on my damn broom and let them know in no uncertain terms that you are being mistreated.. I am very sorry for this whole thing and send loving, caring thoughts your way and healing vibes... I sincerely hope it's nada.. they love to over diagnose.

I couldn't agree more! This is your body and you're going to treat it as you know its quirks. Stalling and wondering are not going to help. Do you have a pro-active friend who could explain how you feel about the whole situation? Possibly, she could fast forward tests and make a record of everything that's happened.

I watched a friend's husband die of bladder cancer because his PCP and the specialist were on vacation!!! I know that everyone deserves a vacation, but not all the doctors and specialists at the same time for goodness sake. Communicate with each other so that at least one of the doctors or specialists is available. My friend's husband eventually passed away because there was no advocate with a persuasive voice to make alternate decisions.

When my husband was diagnosed with prostate cancer, my daughter and I attended every appointment. She and her dad are very close so I though that an extra set of ears would be beneficial. Our son's wife called and said that our son would also have been willing to go, had he been asked. He lives farther away than our daughter, so naturally I tried the child closest to the hospital. It worked extremely well. I had questions, DD had questions and the surgeon listened to both of us and replied accordingly. DH was well looked after and to this day remains cancer-free.

Never shrink from the big C. It sees you waffling and will come in and take advantage. :appl: :wavey:
 

lulu

Ideal_Rock
Joined
Jul 11, 2003
Messages
2,328
Sending you lots of dust. Remember, most of these are benign.
 

minousbijoux

Super_Ideal_Rock
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Joined
Aug 5, 2010
Messages
12,815
Calliecake|1403312523|3697643 said:
Lil Misfit, I'm so sorry your having to go thru all of this. Please try to remain calm. Not all masses are malignant. I'm also insured with a HMO and had a similar scare regarding a large mass on my ovary. I researched the heck out of gynecological oncologists in Chicago (which I believe is where you are from). The specialist I wanted to see wasn't on the list of doctors or hospitals my primary care specialist could send me to. After a few calls to my insurance company I found out they have people that will advocate on your behalf if needed to get proper approvals so I could see the doctor I wanted to see.

I can't imagine the way you were treated would be acceptable to the doctor. It's a referral for goodness sake. Sending lots of dust and hugs your way.


What a thoughtless, self-centered b---ch you had to deal with Lil M. :(sad There is no excuse for her behavior. None at all. She took advantage of you in a vulnerable and needy state (not needy like emotional needy but needy as in you legitimately needed something from the doctor and expected her help). This really angers me, having been through what you are going through.

I am so sorry and sending you prayers, positive thoughts, and tons and tons of dust. You absolutely deserve good treatment, which it sounds like you have yet to really receive. Huge, warm, energizing hugs to you.

Oh, and something to consider: years after my health scare, I still had PTSD from the whole diagnosis and treatment experience. I had a cervical biopsy done for something unusual, and although they said the results would be available in a few days, they wouldn't release them to me because my doctor was away on vacation. I dealt with it the best I could until I could stand it no more, and finally, out of sheer desperation, showed up at the HMO and sat in the waiting room panicking and on the verge of tears saying I needed to speak to somebody who would explain things. After an hour they took pity on me and brought me in to see the covering doctor who made it clear he didn't see "what the big deal is," and proceeded to tell me everything was normal. Now how hard was that people?!! Really? Fact of the matter, they were so caught up in their own to do lists and forms and stuff to realize that they had one patient going off the deep end. When it becomes unavoidable and in their face (thank God for the very human reception/admin people who saw me falling apart), then they will change their routine and help. That is my take away from that experience. :blackeye:
 

JaneSmith

Brilliant_Rock
Joined
Jun 11, 2012
Messages
1,589
How horribly stressful! I cannot believe the callous heartless behavior of that awful arse of a secretary! :angryfire:

I hope you get your biopsy right away, and that it is just a normal little bit of lumpy boob. I have lumpy boobs, and my doc always says that I am pretty normal. I like to think of them as my solid bulletproof kevlar tits! :devil:
 

arkieb1

Ideal_Rock
Premium
Joined
May 11, 2012
Messages
9,786
I agree with the others it sounds like the lazy a@#$ secretary resents the fact you are making more work for her which is totally unacceptable because you are a patient there and they should be doing everything required to see that you get the best possible medical care. I hope that you resolve the situation quickly and that you are O.K. Sending lots of dust and positive wishes.
 

movie zombie

Super_Ideal_Rock
Joined
Jan 20, 2005
Messages
11,879
I'm speechless and we all know how rarely that happens.
wow.
what a bitch is right!
get your referral and get out of that practice ASAP which I think the date is August 14?
geez.
and let this dr know just exactly what you think of her AFTER you get that referral in your hand.

dust to you and all around you and yours as you deal with this.
 
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